EIN 27-3646193

Global Foundation for Peroxisomal Disorders

IRS 501(c) type
501(c)(3)
Num. employees
2
City
Year formed
2010
Most recent tax filings
2022-12-01
Description
"GFPD funds research, empowers families through educational programs, and builds health & scientific literacy for individuals with peroxisomal disorders.".
Total revenues
$815,854
2022
Total expenses
$1,150,024
2022
Total assets
$851,736
2022
Num. employees
2
2022

Program areas at Global Foundation for Peroxisomal Disorders

Family support program: health literacy: the gfpd is focused on building health and scientific literacy for patients and caregivers through a wide array of communication mechanisms. Through a powerful website that was redesigned in 2022 to create greater ease of use and access to resources, the gfpd reached hundreds of families worldwide to disseminate information including the only peer-reviewed treatment guidelines for Peroxisomal patients. Additionally, we have more than 4,000 followers worldwide on social media where more than half of the posts and messaging are designed to empower caregivers of patients with health information and other tools for clinical outcomes. Patient support:the gfpd hosted a biennial conference in 2022 for 294 participants comprising families, patients, researchers, scientists, physicians, other clinicians, university students and fellows, interns and trained team members to engage in five days of learning, supports and exchange for families with Peroxisomal patients. There were more than 60 sessions focused on science and medicine advancements, care provision, mental health supports, and more. Additionally, the conference was able to provide care for children of varying needs through its warrior camp model that pairs university interns with families and children. Finally, the gfpd was able to provide access to more than $100,000 worth of pro bono consultations from physicians, scientists, allied health professionals, etc. To families from around the world. Other activities:the gfpd hosted a number of virtual meet-ups, webinars and support groups for parents and caregivers to increase health literacy that results in better clinical outcomes for patients, linkage to care providers across the country, as well as provide necessary emotional and behavioral supports for caregivers and assist in advocacy and policy change for rare disease patients.
Research and medicine:the gfpd has established a strong committee of physicians and scientists as part of our medical and scientific advisors group. These individuals comprise researchers, clinicians and experts from north america and europe that treat and assist Peroxisomal patients through clinical medicine and research. The gfpd has awarded a number of grants for further research including natural history study, mouse model research and access to genetic counseling and information. Primary research partners include mcgill university, baylor college of medicine, university of southern California, university of amsterdam, the kennedy krieger institute and montclair state university. Additionally, the gfpd has clinical advisors from a number of children's hospitals throughout north america.

Who funds Global Foundation for Peroxisomal Disorders

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Peter Hopkins FoundationDonation$125,887
Network for GoodUnrestricted$62,934
Charities Aid Foundation of AmericaCharitable Donation$13,234
...and 9 more grants received

Personnel at Global Foundation for Peroxisomal Disorders

NameTitleCompensation
Jackie BrooksChief Financial Officer
Melissa BryceExecutive Director$83,654
Katie SacraDirector of Operations and Family Programs
Melissa GamblePast Executive Director / President / Treasurer$40,387
Brian TimsBoard Treasurer$0
...and 3 more key personnel

Financials for Global Foundation for Peroxisomal Disorders

RevenuesFYE 12/2022
Total grants, contributions, etc.$799,711
Program services$0
Investment income and dividends$4,748
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$5,854
Net income from gaming activities$0
Net income from sales of inventory$3,722
Miscellaneous revenues$1,819
Total revenues$815,854

Form 990s for Global Foundation for Peroxisomal Disorders

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-14990View PDF
2021-122022-11-14990View PDF
2020-122021-09-30990View PDF
2019-122020-09-17990View PDF
2018-122019-10-18990View PDF
...and 7 more Form 990s
Data update history
January 15, 2024
Posted financials
Added Form 990 for fiscal year 2022
December 23, 2023
Received grants
Identified 8 new grant, including a grant for $15,000 from Biotechnology Innovation Organization (BIO)
July 15, 2023
Posted financials
Added Form 990 for fiscal year 2021
July 5, 2023
Updated personnel
Identified 1 new personnel
June 7, 2023
Posted financials
Added Form 990 for fiscal year 2020
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthEducationDiseases and disorders
Characteristics
Conducts researchFundraising eventsNational levelTax deductible donations
General information
Address
PO Box 33238
Tulsa, OK 74153
Metro area
Tulsa, OK
County
Tulsa County, OK
Website URL
thegfpd.org/ 
Phone
(918) 998-5798
IRS details
EIN
27-3646193
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2010
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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