EIN 26-4431001

Global Down Syndrome Foundation

IRS 501(c) type
501(c)(3)
Num. employees
17
City
Year formed
2009
Most recent tax filings
2024-07-01
Description
The Global Down Syndrome Foundation's mission aims to improve the lives of people with Down Syndrome by significantly improving their medical care and eradicating their cognitive illnesses. Its research helps scientists develop better methods to understand how triplication leads to a higher incidence of Down Syndrome. The foundation offers various programs, workshops, and educational classes for self-advocates, family members and professionals to support and improve their lives.
Total revenues
$4,313,796
2024
Total expenses
$4,670,703
2024
Total assets
$8,646,012
2024
Num. employees
17
2024

Program areas at Global Down Syndrome Foundation

Research and clinical care: Down Syndrome is when a person is born with three copies of chromosome 21 instead of the usual two. Because of Global's work, scientists are developing better methods to understand how the triplication leads to a higher incidence of certain diseases and protects those same individuals from other diseases. They do so in the following ways: - creating and updating medical guidelines by conducting research on how people with Down Syndrome are treated for certain conditions or diseases and what interventions or medications work for people with Down Syndrome. - conducting medical or clinical research to improve the health and lifespan of people with Down Syndrome, especially in areas where they are highly predisposed to disease (e.g. Alzheimer's disease and autoimmune conditions) and highly protected (e.g. Solid tumors and certain types of heart attack and stroke.) - conducting basic or laboratory research in conjunction with medical or clinical research. - expanding awareness through education outreach, government advocacy, and public relations work in coordination with and for the crnic institute, Global's other affiliates, and the entire Down Syndrome community.
Outreach, education, and conferences: Global offers a variety of research and medical outreach meetings, workshops, webinars, educational programs, and classes designed to support and improve the lives of Global 's self- advocates, family members and professionals serving our community. Many of our educational programs involve building skills, building self-esteem and fostering independence.

Grants made by Global Down Syndrome Foundation

GranteeGrant descriptionAmount
University of Colorado FoundationEducation$500,000
Central Florida Down Syndrome AssociationEducation$10,000
Down Syndrome Association of Middle TennesseeEducation$7,000
...and 4 more grants made

Who funds Global Down Syndrome Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Anna and John J. Sie FoundationFor Research/edu/advocacy/grants.$1,192,480
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$84,125
The Denver FoundationDown Syndrome$59,000
...and 43 more grants received totalling $1,889,231

Financials for Global Down Syndrome Foundation

RevenuesFYE 07/2024
Total grants, contributions, etc.$4,084,242
Program services$1,500
Investment income and dividends$228,054
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$4,313,796
Data update history
April 20, 2025
Received grants
Identified 5 new grant, including a grant for $25,000 from Silicon Valley Community Foundation (SVCF)
February 20, 2025
Posted financials
Added Form 990 for fiscal year 2024
February 15, 2025
Updated personnel
Identified 2 new personnel
January 20, 2025
Used new vendors
Identified 1 new vendor, including
January 15, 2025
Received grants
Identified 23 new grant, including a grant for $1,192,480 from Anna and John J. Sie Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingOperates internationallyNational levelCommunity engagement / volunteeringTax deductible donationsAccepts online donations
General information
Address
3239 E 2nd Ave
Denver, CO 80206
Metro area
Denver-Aurora-Lakewood, CO
County
Denver County, CO
Website URL
globaldownsyndrome.org/ 
Phone
(720) 548-5618
IRS details
EIN
26-4431001
Fiscal year end
July
Taxreturn type
Form 990
Year formed
2009
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Central organization
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current
FTB status revoked
Not revoked
AG Registration Number
CT0270404
FTB Entity ID
4561583
AB 488 data last updated ("as-of") date
2025-08-06
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