| Grantee | Grant description | Grant year | Amount |
|---|---|---|---|
| VWD Connect Foundation | GBDF Received A Grant From Octapharma Into the GBDF Foundation for A National VWD Type 3 Conference. These Funds Were Used To Hold An Educational Conference in Florida for Bleeding Disorder Patients With Type 3 Von Wille Brand Disease and Their Families. This Grant Covered: Transportation, Lodging, Meals, Childcare, Staff, Supplies and Other Expenses. the Conference Brought in the Top Physicians, Nurses, Social Workers,, Physical Therapist and Other Ancillary Staff for the Educational Sessions. the Conference Length Was 3 1/2 Days. An Audience Response System (Ars) Was Used To Capture Attendees Responses That Was Used To Get Real-Time Data Regarding the Information Presented at the Conference. Total Attendance Was 235. | 2017-12 | $190,000 |
| Name | Title | Compensation | Date of data |
|---|---|---|---|
| Edward Kuebler | President | $80,700 | 2024-10-09 |
| Madeline Cantini | Ancillary Me | $5,000 | 2021-12-31 |
| Maritess Wooton | Treasurer | $0 | 2023-12-31 |
| Brandi Blomquist | Vice President | $0 | 2023-12-31 |
| Allison Pohl | Secretary | $0 | 2023-12-31 |
| ...and 1 more key personnel | |||
| Revenues | FYE 12/2023 |
|---|---|
| Total grants, contributions, etc. | $176,653 |
| Program services | $0 |
| Investment income and dividends | $0 |
| Tax-exempt bond proceeds | $0 |
| Royalty revenue | $0 |
| Net rental income | $0 |
| Net gain from sale of non-inventory assets | $0 |
| Net income from fundraising events | $0 |
| Net income from gaming activities | $0 |
| Net income from sales of inventory | $0 |
| Miscellaneous revenues | $0 |
| Total revenues | $176,653 |
| Fiscal year ending | Date received by IRS | Form | PDF link |
|---|---|---|---|
| 2023-12 | 2024-10-09 | 990 | View PDF |
| 2022-12 | 2023-09-26 | 990 | View PDF |
| 2021-12 | 2022-11-17 | 990 | View PDF |
| 2020-12 | 2021-11-15 | 990 | View PDF |
| 2019-12 | 2021-06-02 | 990EZ | View PDF |
| ...and 6 more Form 990s | |||
| Organization | Type | Location | Revenue |
|---|---|---|---|
| Pandas Networkorg | 501(c)(3) | Menlo Park, CA | $204,601 |
| International Brain Mapping and Intra- Operative Surgical Planning Foundation | 501(c)(3) | Pacific Palisades, CA | $342,752 |
| Foundation for Physical Medicine and Rehabilitation | 501(c)(3) | Rosemont, IL | $430,156 |
| In A Heartbeat | 501(c)(3) | Wallingford, CT | $131,509 |
| Their Voice of Greater Cincinnati | 501(c)(3) | Cincinnati, OH | $51,705 |
| The American Academy of Periodontology Foundation | 501(c)(3) | Chicago, IL | $821,164 |
| Neuro-Optometric Rehabitation Asc | 501(c)(3) | Boynton Beach, FL | $340,088 |
| Jampolsky Outreach Foundation | 501(c)(3) | Sausalito, CA | $106,203 |
| Neuroimmune Foundation | 501(c)(3) | Colgate, WI | $730,417 |
| The Mastocytosis Cell Disease Society | 501(c)(3) | Sterling, MA | $441,868 |
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