Program areas at Team Gleason Foundation
Helping deliver leading edge equipment, services and technology, the Team Gleason Foundation provides ALS patients with the tools to allow people living with ALS to communicate, interact, and live with purpose. Technology and equipment have advanced over the past decade but these services can be taken even further. The Foundation works with creative companies to develop voice creation and hands-free software and technology.The Foundation provided $27,300 in financial assistance to the Team Gleason House at St. Margaret's Nursing Home. The facility whose technology was funded by the Foundation was dedicated in 2015 and provided 1,922 patient days of specialized care in 2021.The Foundation maintains contact with ALS families receiving specialized equipment and recycles the equipment to new patients when the equipment is no longer needed. In 2021, $1,900,000 of such equipment was repurposed. In addition, Voice Banking technology was provided to 740 patients valued at $1,202,000 and seat elevators were provided to 1,071 patients.The Foundation initiated a respite care program in 2018 to provide skilled nursing care to assist families caring for an ALS patient. These families received over 10,150 hours of such assistance in 2021 at a cost of $235,000.The Foundation partnered with Comcast in 2020 to continue improvement of their TIME Magazine Top 100 Inventions of 2019, the Xfinity Eye Control which allows patients to control their televisions using assistive devices they already use.The Foundation opened a state of the art Assistive Technology Lab in 2020, with the assistance of Google and Microsoft, to help educate and empower people living with ALS and to assist in sharing new inventions with our partners and patient community.Team Gleason teamed up with Major League Baseball (MLB) and Google to advocate and promote the inaugural Lou Gehrig Day. The organization has been a leader in collaborating with companies like Google to find innovative solutions and create tools to help people living with ALS and other physical and speech disabilities. Steve Gleason was able to recite Lous speech, with the help of Project Euphonia, a Google Research team focused on helping people with atypical speech to be better understood. Using previously recorded voice samples, Project Euphonia was able to create an authentic, personalized version of his voice.Comcast and Team Gleason have partnered to drive inclusive innovation to improve the independence and quality of life for people with physical and speech disabilities, including those living with ALS. Together, Comcast and Team Gleason are actively engaging with people with ALS (pALS) and caregivers, as well as preeminent clinicians, technologists and assistive technology partners to define and develop accessible, empowering experiences from TV control to smart home solutions and beyond.
Who funds Team Gleason Foundation
Grants from foundations and other nonprofits
Personnel at Team Gleason Foundation
Name | Title | Compensation | Date of data |
---|
Blair Casey | Chief Impact Offcr | $107,738 | 2021-12-31 |
Paul Varisco | Board Member | $50,000 | 2024-03-20 |
William K Gay | Director of Development | $109,008 | 2021-12-31 |
Chris Casey | Board Member | $0 | 2024-03-20 |
Clare Durrett | Director | $0 | 2021-12-31 |
...and 1 more key personnel |
Financials for Team Gleason Foundation
Revenues | FYE 12/2021 | FYE 12/2020 | % Change |
---|
Total grants, contributions, etc. | $2,235,521 | $2,134,140 | 4.8% |
Program services | $50,000 | $0 | 999% |
Investment income and dividends | $124,142 | $107,447 | 15.5% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $351,922 | $-30,262 | 1262.9% |
Net income from fundraising events | $695,861 | $709,039 | -1.9% |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $21,103 | $93,400 | -77.4% |
Total revenues | $3,478,549 | $3,013,764 | 15.4% |
Organizations like Team Gleason Foundation
Organization | Type | Location | Revenue |
---|
Arthritis Foundation Upper Midwest Region | 501(c)(3) | St Paul, MN | $2,891,319 |
The Als Association - Greater New York Chapter | 501(c)(3) | New York, NY | $4,837,719 |
ALS Association St Louis Regional Chapter | 501(c)(3) | Saint Louis, MO | $2,624,591 |
The Als Association - Arizona Chapter | 501(c)(3) | Phoenix, AZ | $1,372,285 |
Tourette Association of America | 501(c)(3) | Bayside, NY | $4,883,886 |
Cure Sma (CSMA) | 501(c)(3) | Elk Grove Village, IL | $13,668,775 |
The Als Association - Central & Southern Ohio Chapter | 501(c)(3) | Columbus, OH | $1,532,034 |
Epilepsy Foundation of Texas | 501(c)(3) | Houston, TX | $1,612,999 |
Epilepsy Foundation of Greater Los Angel | 501(c)(3) | Los Angeles, CA | $1,788,459 |
ALS Association of Georgia | 501(c)(3) | Atlanta, GA | $1,495,964 |
Data update history
March 20, 2024
Updated personnel
Identified 6 new personnel
August 10, 2023
Posted financials
Added Form 990 for fiscal year 2021
May 18, 2023
Updated personnel
Identified 3 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthHuman servicesDiseases and disorders
Characteristics
Conducts researchLobbyingFundraising eventsEndowed supportCommunity engagement / volunteeringFundraising races, competitions, and tournamentsTax deductible donations
General information
- Address
- 2021 Lakeshore Dr 120
- New Orleans, LA 70122
- Metro area
- New Orleans-Metairie, LA
- County
- Orleans Parish, LA
- Website URL
- teamgleason.org/board-of-directors/Â
- Phone
- (504) 934-1037
IRS details
- EIN
- 45-3689316
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2011
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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