EIN 45-3689316

Team Gleason Foundation

IRS 501(c) type
501(c)(3)
Num. employees
16
Year formed
2011
Most recent tax filings
2021-12-01
Description
The Team Gleason Foundation helps provide individuals with neuro-muscular diseases or injuries with leading edge technology, equipment and services. They raise public awareness towards amyotrophic lateral sclerosis by providing and documenting life adventures for individuals with muscle degeneration. The foundation delivers leading edge equipment, services, and technology to give ALS patients the ability to communicate, interact, and live with purpose. The advancements in technology and equipment have allowed for greater independence for people living with ALS.
Also known as...
Gleason Initiative Foundation
Total revenues
$3,478,549
2021
Total expenses
$3,351,106
2021
Total assets
$9,810,955
2021
Num. employees
16
2021

Program areas at Team Gleason Foundation

Helping deliver leading edge equipment, services and technology, the Team Gleason Foundation provides ALS patients with the tools to allow people living with ALS to communicate, interact, and live with purpose. Technology and equipment have advanced over the past decade but these services can be taken even further. The Foundation works with creative companies to develop voice creation and hands-free software and technology.The Foundation provided $27,300 in financial assistance to the Team Gleason House at St. Margaret's Nursing Home. The facility whose technology was funded by the Foundation was dedicated in 2015 and provided 1,922 patient days of specialized care in 2021.The Foundation maintains contact with ALS families receiving specialized equipment and recycles the equipment to new patients when the equipment is no longer needed. In 2021, $1,900,000 of such equipment was repurposed. In addition, Voice Banking technology was provided to 740 patients valued at $1,202,000 and seat elevators were provided to 1,071 patients.The Foundation initiated a respite care program in 2018 to provide skilled nursing care to assist families caring for an ALS patient. These families received over 10,150 hours of such assistance in 2021 at a cost of $235,000.The Foundation partnered with Comcast in 2020 to continue improvement of their TIME Magazine Top 100 Inventions of 2019, the Xfinity Eye Control which allows patients to control their televisions using assistive devices they already use.The Foundation opened a state of the art Assistive Technology Lab in 2020, with the assistance of Google and Microsoft, to help educate and empower people living with ALS and to assist in sharing new inventions with our partners and patient community.Team Gleason teamed up with Major League Baseball (MLB) and Google to advocate and promote the inaugural Lou Gehrig Day. The organization has been a leader in collaborating with companies like Google to find innovative solutions and create tools to help people living with ALS and other physical and speech disabilities. Steve Gleason was able to recite Lous speech, with the help of Project Euphonia, a Google Research team focused on helping people with atypical speech to be better understood. Using previously recorded voice samples, Project Euphonia was able to create an authentic, personalized version of his voice.Comcast and Team Gleason have partnered to drive inclusive innovation to improve the independence and quality of life for people with physical and speech disabilities, including those living with ALS. Together, Comcast and Team Gleason are actively engaging with people with ALS (pALS) and caregivers, as well as preeminent clinicians, technologists and assistive technology partners to define and develop accessible, empowering experiences from TV control to smart home solutions and beyond.

Who funds Team Gleason Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$457,162
Schwab Charitable FundHuman Services$336,850
The Greater New Orleans FoundationFund Raising & Fund Distribution$156,998
...and 45 more grants received totalling $1,372,213

Personnel at Team Gleason Foundation

NameTitleCompensation
Blair CaseyChief Impact Offcr$107,738
Paul VariscoBoard Member$50,000
William K GayDirector of Development$109,008
Chris CaseyBoard Member$0
Clare DurrettDirector$0
...and 1 more key personnel

Financials for Team Gleason Foundation

RevenuesFYE 12/2021
Total grants, contributions, etc.$2,235,521
Program services$50,000
Investment income and dividends$124,142
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$351,922
Net income from fundraising events$695,861
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$21,103
Total revenues$3,478,549

Form 990s for Team Gleason Foundation

Fiscal year endingDate received by IRSFormPDF link
2021-122022-10-11990View PDF
2020-122021-11-04990View PDF
2019-122021-02-18990View PDF
2018-122019-10-10990View PDF
2017-122018-11-15990View PDF
...and 6 more Form 990s
Data update history
March 20, 2024
Updated personnel
Identified 6 new personnel
January 2, 2024
Received grants
Identified 11 new grant, including a grant for $156,998 from The Greater New Orleans Foundation
October 25, 2023
Received grants
Identified 21 new grant, including a grant for $197,023 from The Greater New Orleans Foundation
August 10, 2023
Posted financials
Added Form 990 for fiscal year 2021
May 18, 2023
Updated personnel
Identified 3 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthHuman servicesDiseases and disorders
Characteristics
Conducts researchLobbyingFundraising eventsEndowed supportCommunity engagement / volunteeringFundraising races, competitions, and tournamentsTax deductible donations
General information
Address
2021 Lakeshore Dr 120
New Orleans, LA 70122
Metro area
New Orleans-Metairie, LA
County
Orleans Parish, LA
Website URL
teamgleason.org/board-of-directors/ 
Phone
(504) 934-1037
IRS details
EIN
45-3689316
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2011
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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