EIN 45-3689316

Team Gleason Foundation

IRS 501(c) type
501(c)(3)
Num. employees
26
Year formed
2011
Most recent tax filings
2023-12-01
Description
The Team Gleason Foundation helps provide individuals with neuro-muscular diseases or injuries with leading edge technology, equipment and services. They raise public awareness towards amyotrophic lateral sclerosis by providing and documenting life adventures for individuals with muscle degeneration. The foundation delivers leading edge equipment, services, and technology to give ALS patients the ability to communicate, interact, and live with purpose. The advancements in technology and equipment have allowed for greater independence for people living with ALS.
Also known as...
Gleason Initiative Foundation
Total revenues
$5,648,263
2023
Total expenses
$5,631,699
2023
Total assets
$8,443,085
2023
Num. employees
26
2023

Program areas at Team Gleason Foundation

Helping deliver leading edge equipment, services and technology, the Team Gleason Foundation provides ALS patients with the tools to allow people living with ALS to communicate, interact, and live with purpose. Technology and equipment have advanced over the past decade but these services can be taken even further. The Foundation works with creative companies to develop voice creation and hands-free software and technology.The Foundation maintains contact with ALS families receiving specialized equipment and recycles the equipment to new patients when the equipment is no longer needed. In 2023, the approximate value of such equipment repurposed was $2,100,000. In addition, Voice Banking technology was provided to 1,571 patients valued at $2,200,000.For the second year in a row, Team Gleason was voted "Best Non-profit" in Gambit's best of new orleans issue.Team Gleason partnered with Tobii Dynavox, the world leader in assistive communication and the leading provider of technology for the ALS community, to increase access to assistive communications technology for people living with ALS to live purposeful lives. This partnership is focused on engaging the ALS community and clinicians to provide a higher level of service, product, and support to enhance care and help more people living with ALS. Team Gleason participated in the Bureau of Industry and Security (BIS) 2023 Brain-Computer Interface Technology Conference. BIS consists of industry experts to further BIS and the public's understanding of the status and future developments in Brain-Computer Interface (BCI) technology and anticipated future developments in research and applications. Team Gleason was honored to have been a part of the Inaugural American Possibilities: White House Demo Day. This event showcased the innovative work of 40 different groups. Team Gleason had the opportunity to spotlight available technologies for individuals with ALS and other disabilities, while also discussing the teams role in propelling innovation and advancing ALS research at an accelerated pace. Ochsner Health and Team Gleason announced a partnership to enhance healthcare, clinical research and care, technology and equipment solutions and other resources for those living with amyotrophic lateral sclerosis (ALS) and other neurological disorders. With this partnership, Ochsner and Team Gleason combine their expertise to bring patients a continuum of care experience that delivers evaluations, treatments, teaching and training, and innovative equipment and technology, supporting the shared mission of increasing independence and quality of life to those living from ALS and other neurological diseases.

Who funds Team Gleason Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$399,250
The Greater New Orleans FoundationFund Raising & Fund Distribution$168,488
Gayle and Tom Benson Charitable FoundationCharitable$100,000
...and 45 more grants received totalling $1,369,315

Personnel at Team Gleason Foundation

NameTitleCompensation
Sally CoxChief of Staff
Michel VariscoCo - Founder and Merchandise
Steve GleasonCo - Founder
Blair CaseyExecutive Director$117,735
David DarraghManaging Director$127,343
...and 3 more key personnel

Financials for Team Gleason Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$3,956,537
Program services$0
Investment income and dividends$220,582
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$174,333
Net income from fundraising events$1,296,155
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$656
Total revenues$5,648,263

Form 990s for Team Gleason Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-122024-11-20990View PDF
2022-122024-01-29990View PDF
2021-122022-10-11990View PDF
2020-122021-11-04990View PDF
2019-122021-02-18990View PDF
...and 8 more Form 990s

Organizations like Team Gleason Foundation

OrganizationLocationRevenue
The Als Association - Greater New York ChapterNew York, NY$4,847,061
Epilepsy FoundationBowie, MD$17,841,214
Tourette Association of AmericaBayside, NY$5,048,195
Als United OhioColumbus, OH$2,372,590
The Cure Starts NowCincinnati, OH$5,080,693
Als ArizonaPhoenix, AZ$1,685,724
Cure Sma (CSMA)Elk Grove Village, IL$14,785,235
Jett FoundationPlymouth, MA$3,537,013
GO2 For Lung Cancer (ALCF)Washington, DC$12,804,058
Les Turner ALS FoundationSkokie, IL$2,682,408
Data update history
January 11, 2025
Received grants
Identified 6 new grant, including a grant for $25,000 from Harold Brown Foundation
January 4, 2025
Posted financials
Added Form 990 for fiscal year 2023
October 20, 2024
Received grants
Identified 1 new grant, including a grant for $1,000 from The Prejean Foundationinc
September 21, 2024
Received grants
Identified 16 new grant, including a grant for $100,000 from Leandro P. Rizzuto Foundation
June 13, 2024
Updated personnel
Identified 5 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthHuman servicesDiseases and disorders
Characteristics
Conducts researchLobbyingFundraising eventsReceives government fundingEndowed supportFundraising races, competitions, and tournamentsTax deductible donations
General information
Address
1450 Poydras St 2550
New Orleans, LA 70112
Metro area
New Orleans-Metairie, LA
County
Orleans Parish, LA
Phone
(504) 934-1037
IRS details
EIN
45-3689316
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2011
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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