EIN 04-3222167

FRAXA Research Foundation

IRS 501(c) type
501(c)(3)
Num. employees
4
Year formed
1994
Most recent tax filings
2022-12-01
NTEE code, primary
Description
The FRAXA Research Foundation aims to discover effective treatments and a cure for Fragile X syndrome through direct funding of grant research. It funds programs that educate the public about the condition.
Total revenues
$2,018,041
2022
Total expenses
$1,898,116
2022
Total assets
$3,531,781
2022
Num. employees
4
2022

Program areas at FRAXA Research Foundation

To raise funds for the direct funding of grant research for the purpose of finding treatment and cure for Fragile X.
To fund programs for the purpose of educating the general public about Fragile X.

Grants made by FRAXA Research Foundation

GranteeGrant descriptionAmount
Regents of the University of California at RiversideResearch$95,000
UMass Memorial Health Care (UMMHC)Research$81,401
Rush University Medical CenterResearch$65,324
...and 11 more grants made

Who funds FRAXA Research Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$120,830
Robert and Ardis James FoundationGeneral & Unrestricted$110,000
Bny Mellon Charitable Gift FundTo Further the Organization's Exempt Purpose$59,000
...and 32 more grants received totalling $553,043

Personnel at FRAXA Research Foundation

NameTitleCompensation
Katherine ClappPresident$128,292
Michael TranfagliaMedical Director , Treasurer , Founder$122,112
Holly RoosCommunity Services Director
Deborah StevensonBoard Chair / Director$0

Financials for FRAXA Research Foundation

RevenuesFYE 12/2022
Total grants, contributions, etc.$1,695,420
Program services$0
Investment income and dividends$42,006
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$229,794
Net income from fundraising events$50,821
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$2,018,041

Form 990s for FRAXA Research Foundation

Fiscal year endingDate received by IRSFormPDF link
2022-122023-05-12990View PDF
2021-122022-06-14990View PDF
2020-122021-08-09990View PDF
2019-122020-10-16990View PDF
2018-122019-09-14990View PDF
...and 10 more Form 990s
Data update history
January 29, 2024
Updated personnel
Identified 1 new personnel
January 2, 2024
Received grants
Identified 6 new grant, including a grant for $110,000 from Robert and Ardis James Foundation
October 24, 2023
Received grants
Identified 4 new grant, including a grant for $25,000 from Nancy Lurie Marks Family Foundation
August 22, 2023
Posted financials
Added Form 990 for fiscal year 2021
July 23, 2023
Received grants
Identified 25 new grant, including a grant for $59,000 from Bny Mellon Charitable Gift Fund
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
Health
Characteristics
Provides grantsConducts researchFundraising eventsNational levelCommunity engagement / volunteeringTax deductible donations
General information
Address
10 Prince Pl
Newburyport, MA 01950
Metro area
Boston-Cambridge-Newton, MA-NH
County
Essex County, MA
Website URL
fraxa.org/ 
Phone
(978) 462-1866
IRS details
EIN
04-3222167
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1994
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H30: Cancer Research
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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