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  4. Foundation to Eradicate Duchenne
EIN 71-0874241

Foundation to Eradicate Duchenne

IRS 501(c) type
501(c)(3)
Num. employees
0
City
Alexandria
State
Virginia
Year formed
2002
Most recent tax filings
2023-12-01
NTEE code, primary
G20: Birth Defects and Genetic Diseases
Description
Foundation to Eradicate Duchenne funds aggressive research into treatments for Duchenne Muscular Dystrophy, awards research grants totaling $519,194 in 2022 to develop potential therapies targeting the genetic flaw of this catastrophic disease in hopes of finding a cure.
Total revenues
$826,783
2023
Total expenses
$639,710
2023
Total assets
$1,030,887
2023
Num. employees
0
2023

Program areas at Foundation to Eradicate Duchenne

The organization awarded research grants in the amount of $407,352 during 2023. These grants were awarded To fund the development of potential therapies for Duchenne muscular dystrophy utilizing strategies designed To repair the genetic flaw of this catastrophic, single-gene-defect disorder; support academic research institutions in efforts To bring therapies To the marketplace that would compensate for the lack of a protein essential in muscle regeneration and repair; and fund scientific workshops for leading muscle researchers and clinicians To effectively collaborate on strategies for translation approaches To muscular dystrophy.

Grants made by Foundation to Eradicate Duchenne

GranteeGrant descriptionAmount
Binghamton University FoundationTo Fund Research for Treatment of Duchenne Muscular Dystrophy$134,865
Children's National Research Institute (CNHS)To Fund Research for Treatment of Duchenne Muscular Dystrophy$125,000
Parent Project Muscular Dystrophy (PPMD)To Fund Research for Treatment of Duchenne Muscular Dystrophy$50,000
...and 1 more grant made

Who funds Foundation to Eradicate Duchenne

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Council of Insurance Agents and BrokersEpicurean Sponsorship$50,000
Foxhedge Charitable FoundationCash Grant$10,000
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$6,700
...and 7 more grants received

Personnel at Foundation to Eradicate Duchenne

NameTitle
Michelle PayneExecutive Director

Financials for Foundation to Eradicate Duchenne

RevenuesFYE 12/2023
Total grants, contributions, etc.$834,048
Program services$0
Investment income and dividends$2,721
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$-142,923
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$132,937
Total revenues$826,783

Form 990s for Foundation to Eradicate Duchenne

Fiscal year endingDate received by IRSFormPDF link
2023-122024-11-14990View PDF
2022-122023-11-07990View PDF
2021-122022-11-15990View PDF
2020-122021-11-11990View PDF
2019-122021-04-02990View PDF
...and 9 more Form 990s
Data update history
February 13, 2025
Posted financials
Added Form 990 for fiscal year 2023
January 28, 2025
Updated personnel
Identified 1 new personnel
January 14, 2025
Used new vendors
Identified 1 new vendor, including
January 5, 2025
Received grants
Identified 3 new grant, including a grant for $50,000 from Council of Insurance Agents and Brokers
September 21, 2024
Received grants
Identified 2 new grant, including a grant for $1,000 from The RCM&D Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyProvides grantsConducts researchLobbyingFundraising eventsOperates internationallyNational levelTax deductible donationsNo full-time employeesAccepts online donations
General information
Address
PO Box 2371
Alexandria, VA 22301
Metro area
Washington-Arlington-Alexandria, DC-VA-MD-WV
County
Alexandria city, VA
Website URL
duchennemd.org/ 
Phone
(703) 683-7500
IRS details
EIN
71-0874241
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2002
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Not Operate or Solicit for Charitable Purposes
Charity Registration status
Revoked
FTB status revoked
Not revoked
AG Registration Number
116513
FTB Entity ID
None yet
AB 488 data last updated ("as-of") date
2025-03-19
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