Program areas at FSR
Patient and clinician support and programming:fsr provides patients with direct support through our peer-led trained volunteer community groups, support groups, our one-one-one patient navigator support program, and community outreach activities. Fsr provides direct patient education through fsr's webinar and town hall educational series, fsr sarc fighter podcast, and multi-day virtual educational summit consisting of 23 educational sessions for over 300 patients world-wide. Fsr has also provided a specific emphasis on improving diversity equity and inclusion in Sarcoidosis diagnosis, care, and increasing diversity in clinical trials through our ignore no more efforts. Fsr also provides clinician education and support through the clinician education and engagement series, peer case reviews, and the fsr journal club. These programs provide clinicians with continuing medical education credits and foster best practice sharing and outcome improvement strategies.
Fsr works directly with industry partners leveraging their expertise, contacts, the fsr patient reported outcomes registry, and its database in support of academic and industry sponsored Research efforts. Through this program fsr helps to review protocols, connect industry with possible investigators and Research sites, and support the recruitment and enrollment of sarcoidosis-related industry sponsored trials.
Fsr provides Research funding through our fellowship, cardiac grant, and pilot grant funding program. Through the fsr clinical studies network, fsr funds and facilitates a 12 site international study seeking to understand the diagnosis of cardiac Sarcoidosis. Fsr has also significantly increased participation in the fsr patient reported outcomes registry in order to increase understanding of patient's lived experience with Sarcoidosis.