EIN 36-4378232

Foundation for Sarcoidosis Research (FSR)

IRS 501(c) type
501(c)(3)
Num. employees
14
Year formed
2000
Most recent tax filings
2022-12-01
Description
The Foundation for Sarcoidosis Research is the nation's leading organization dedicated to finding a cure for this disease and to improving care for sarcoidosis patients.
Total revenues
$1,673,599
2022
Total expenses
$2,027,945
2022
Total assets
$4,929,854
2022
Num. employees
14
2022

Program areas at FSR

The organization approaches their mission of finding a cure for sarcoidosis and improving care for sarcoidosis patients through following major program areas: Patient Outreach and Education Programs, Physician Outreach Program and Scientific Research Agenda. In these programs, various resources and education are providing to the patient and their loved ones, navigation and network are built up to connect patients, physicians and peers of both communities.
Research - fsr's small grant program focuses on awarding funds to new or early stage Research on Sarcoidosis. Fsr's clinical studies network(csn) and sarconnect programs continued to engage and partner with pharmaceutical companies through patient outreach and recruitment for large multi- center trials. Both programs help carry out multiple studies with focus in cardiac and pulmonary Sarcoidosis. Fsr continued growing the patient registry and made significant progress on the scoutendpoints project, in addition to providing services and support to advance Sarcoidosis Research and the mission of the organization.

Grants made by FSR

GranteeGrant descriptionAmount
National Jewish HealthFellowship$150,000
Regents of the University of ColoradoResearch$25,000
Northwestern UniversityResearch$14,900
...and 6 more grants made

Who funds Foundation for Sarcoidosis Research (FSR)

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Harlene and Marvin Wool FoundationImproving Care for Sarcoidosis Patients and To Finding A Cure for This Disease$50,000
Network for GoodUnrestricted$43,827
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$38,660
...and 21 more grants received totalling $306,762

Personnel at FSR

NameTitleCompensation
Mary E McGowanChief Executive Officer / Executive Director$246,000
Louise M PerkinsBoard President$0
Mary CobbBoard Secretary / Director$0
Craig LipsetBoard Vice President / Vice President / Director$0
Reading WilsonPast Treasurer / Director / President$0
...and 2 more key personnel

Financials for FSR

RevenuesFYE 12/2022
Total grants, contributions, etc.$1,291,209
Program services$341,425
Investment income and dividends$119,287
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$-79,697
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$1,375
Total revenues$1,673,599

Form 990s for FSR

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-10990View PDF
2021-122022-11-11990View PDF
2020-122021-11-12990View PDF
2019-122021-03-02990View PDF
2018-122020-01-03990View PDF
...and 7 more Form 990s
Data update history
January 24, 2024
Updated personnel
Identified 1 new personnel
January 23, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 2, 2024
Received grants
Identified 6 new grant, including a grant for $10,000 from Coastal Community Foundation
October 23, 2023
Received grants
Identified 3 new grant, including a grant for $50,000 from Harlene and Marvin Wool Foundation
August 6, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
HealthCommunity improvement
Characteristics
MembershipsProvides grantsConducts researchPeer-to-peer fundraisingOperates internationallyFundraising races, competitions, and tournamentsTax deductible donations
General information
Address
320 W Ohio St 300
Chicago, IL 60654
Metro area
Chicago-Naperville-Elgin, IL-IN-WI
Website URL
stopsarcoidosis.org/ 
Phone
(312) 341-0500
Facebook page
StopSarcoidosis 
Twitter profile
@fdnsarcresearch 
IRS details
EIN
36-4378232
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2000
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H90: Medical Specialty Research
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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