Program areas at FSR
The organization approaches their mission of finding a cure for sarcoidosis and improving care for sarcoidosis patients through following major program areas: Patient Outreach and Education Programs, Physician Outreach Program and Scientific Research Agenda. In these programs, various resources and education are providing to the patient and their loved ones, navigation and network are built up to connect patients, physicians and peers of both communities.
Research - fsr's small grant program focuses on awarding funds to new or early stage Research on Sarcoidosis. Fsr's clinical studies network(csn) and sarconnect programs continued to engage and partner with pharmaceutical companies through patient outreach and recruitment for large multi- center trials. Both programs help carry out multiple studies with focus in cardiac and pulmonary Sarcoidosis. Fsr continued growing the patient registry and made significant progress on the scoutendpoints project, in addition to providing services and support to advance Sarcoidosis Research and the mission of the organization.
Who funds Foundation for Sarcoidosis Research (FSR)
Grants from foundations and other nonprofits
Personnel at FSR
Name | Title | Compensation | Date of data |
---|
Mary E McGowan | Chief Executive Officer / Executive Director | $246,000 | 2022-12-31 |
Louise M Perkins | Board President | $0 | 2023-11-10 |
Mary Cobb | Board Secretary / Director | $0 | 2022-12-31 |
Craig Lipset | Board Vice President / Vice President / Director | $0 | 2022-12-31 |
Reading Wilson | Past Treasurer / Director / President | $0 | 2021-03-02 |
...and 2 more key personnel |
Financials for FSR
Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
---|
Total grants, contributions, etc. | $1,291,209 | $1,943,444 | -33.6% |
Program services | $341,425 | $188,396 | 81.2% |
Investment income and dividends | $119,287 | $154,644 | -22.9% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $-79,697 | $98,479 | -180.9% |
Net income from fundraising events | $0 | $0 | - |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $1,375 | $320 | 329.7% |
Total revenues | $1,673,599 | $2,385,283 | -29.8% |
Organizations like FSR
Organization | Type | Location | Revenue |
---|
Lions Eye Institute for Transplant and Research Foundation | 501(c)(3) | Tampa, FL | $1,048,157 |
Progeria Research Foundation (PRF) | 501(c)(3) | Peabody, MA | $1,793,850 |
cont SLC13A5 Foundation | 501(c)(3) | Menlo Park, CA | $610,734 |
Rett Syndrome Research Trust (RSRT) | 501(c)(3) | Trumbull, CT | $7,097,993 |
Myelin Repair Foundation (MRF) | 501(c)(3) | Saratoga, CA | $552,239 |
CMT Research Foundation | 501(c)(3) | Atlanta, GA | $4,352,285 |
Dystonia Medical Research Foundation | 501(c)(3) | Chicago, IL | $2,569,110 |
Cornea Research Foundation of America | 501(c)(3) | Indianapolis, IN | $1,137,490 |
Pediatric Dermatology Research Alliance | 501(c)(3) | Portland, OR | $1,402,323 |
Clayton Foundation for Research | 501(c)(3) | Houston, TX | $6,604,622 |
Data update history
January 24, 2024
Updated personnel
Identified 1 new personnel
January 23, 2024
Posted financials
Added Form 990 for fiscal year 2022
August 6, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
HealthCommunity improvement
Characteristics
MembershipsProvides grantsConducts researchPeer-to-peer fundraisingOperates internationallyFundraising races, competitions, and tournamentsTax deductible donations
General information
- Address
- 320 W Ohio St 300
- Chicago, IL 60654
- Metro area
- Chicago-Naperville-Elgin, IL-IN-WI
- Website URL
- stopsarcoidosis.org/Â
- Phone
- (312) 341-0500
- Facebook page
- StopSarcoidosisÂ
- Twitter profile
- @fdnsarcresearchÂ
IRS details
- EIN
- 36-4378232
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2000
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- H90: Medical Specialty Research
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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