EIN 31-1763110

Foundation for Prader Willi Research (FPWR)

IRS 501(c) type
501(c)(3)
Num. employees
12
City
Year formed
2001
Most recent tax filings
2022-12-01
Description
The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research. High-quality research will lead to more effective treatments and an eventual cure for this disorder.
Also known as...
Foundation for Prader-Willi Researchinc
Total revenues
$5,083,937
2022
Total expenses
$5,088,497
2022
Total assets
$8,344,580
2022
Num. employees
12
2022

Program areas at FPWR

Through the implementation of translational Research programs, the management of a world-class grants program, and the development of prader willi syndrome (pws) Research tools, the Foundation for prader-will Research (fpwr) advances Research in order to develop new treatments for pws and improve the health and well-being of those with pws. Under the guidance of our scientific advisory board through a carefully managed grants process, fpwr selects Research projects based on the collaborative input of researchers and parents, choosing projects that are both scientifically meritorious and highly relevant for individuals with pws and their families.

Grants made by FPWR

GranteeGrant descriptionAmount
Maimonides Medical CenterResearch$165,148
The Rockefeller UniversityResearch$162,000
Duke UniversityResearch$162,000
...and 16 more grants made

Who funds Foundation for Prader Willi Research (FPWR)

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$1,793,758
The Storr Family FoundationMedical$151,907
Vanguard Charitable Endowment ProgramFor Recipient's Exempt Purpose$102,000
...and 27 more grants received totalling $2,409,647

Personnel at FPWR

NameTitleCompensation
John WalterChief Executive Officer Thru 12 and 17 and 21$242,434
Susan HedstromExecutive Director$73,353
Theresa StrongDirector of Research Programs$158,830
Paul Wissman PresidentEff 3 and 22 , Treasurer$0
Amber RobersonSecretary / Board Member$0
...and 6 more key personnel

Financials for FPWR

RevenuesFYE 12/2022
Total grants, contributions, etc.$4,654,934
Program services$231,217
Investment income and dividends$83,302
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$114,368
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$116
Total revenues$5,083,937

Form 990s for FPWR

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-15990View PDF
2021-122022-10-24990View PDF
2020-122021-11-12990View PDF
2019-122021-04-02990View PDF
2018-122020-02-10990View PDF
...and 9 more Form 990s
Data update history
January 9, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 8, 2024
Updated personnel
Identified 6 new personnel
January 2, 2024
Received grants
Identified 10 new grant, including a grant for $35,000 from Moriah Foundation
October 25, 2023
Received grants
Identified 4 new grant, including a grant for $39,676 from The Blackbaud Giving Fund
July 27, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsPeer-to-peer fundraisingOperates internationallyNational levelTax deductible donations
General information
Address
440 N Barranca Ave 3620
Covina, CA 91723
Metro area
Los Angeles-Long Beach-Anaheim, CA
Website URL
fpwr.org/ 
Phone
(888) 322-5487
Twitter profile
@fpwr 
IRS details
EIN
31-1763110
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2001
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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