Program areas at Fanconi Anemia Research Fund
Research initiatives - "advances our stand up to cancer project, awards and manages Research grants, manages the virtual tumor board, advances our clinical registry, oversees the Fanconi Anemia Research materials project, keeps Fanconi anemi guidelines manual up to date, manages Fanconi Anemia cancer consortium, manges Fanconi Anemia brush biopsy project, convenes farf sparks meetings."
Family support - "onboards newly diagnosed families, manages adult council, manages winn/byrd award, manages international support grant program, manages bereavement support, manages caregiver support, manages peer support, convenes fa connect sessions "
Events - "annual planning meeting, joel walker series meetings, annual family retreat, scientific symposium, adult fa retreat, international summit, support for farf sparks and fa connect."
Grants made by Fanconi Anemia Research Fund
Who funds Fanconi Anemia Research Fund
Grants from foundations and other nonprofits
Personnel at Fanconi Anemia Research Fund
| Name | Title | Compensation | Date of data |
|---|
| Mark Quinlan | Executive Director | $133,765 | 2023-10-23 |
| Sherri van Ravenhorst | Research Fund Communications Director | | 2021-09-07 |
| McKenna Knapp | Fa Research Fund Philanthropy Director | | 2021-09-07 |
| Jordan Deines | Research Fund Family Services Director | | 2021-09-07 |
| Isis Sroka | Scientific Director | $117,716 | 2022-12-31 |
| ...and 10 more key personnel |
Financials for Fanconi Anemia Research Fund
| Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
|---|
| Total grants, contributions, etc. | $2,979,498 | $3,309,323 | -10% |
| Program services | $23,549 | $0 | 999% |
| Investment income and dividends | $164,431 | $279,590 | -41.2% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $558 | $2,323 | -76% |
| Net income from fundraising events | $2,750 | $0 | 999% |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $1,202 | $7,548 | -84.1% |
| Total revenues | $3,171,988 | $3,598,784 | -11.9% |
Organizations like Fanconi Anemia Research Fund
| Organization | Type | Location | Revenue |
|---|
| CureSearch for Children's Cancer | 501(c)(3) | Bethesda, MD | $4,389,970 |
| Sarcoma Foundation of America | 501(c)(3) | Damascus, MD | $3,674,023 |
| Leukemia Research Foundation (LRF) | 501(c)(3) | Northfield, IL | $4,193,244 |
| Lymphoma Research Foundation (LRF) | 501(c)(3) | New York, NY | $14,709,927 |
| Diabetes Research Institute Foundation (DRIF) | 501(c)(3) | Hollywood, FL | $11,474,074 |
| Melanoma Research Alliance (MRA) | 501(c)(3) | Washington, DC | $11,614,639 |
| American Institute for Cancer Research | 501(c)(3) | Arlington, VA | $14,473,654 |
| Israel Cancer Research Fund | 501(c)(3) | New York, NY | $5,734,601 |
| National Foundation for Cancer Research (NFCR) | 501(c)(3) | Rockville, MD | $8,408,059 |
| Melanoma Research Foundation (MRF) | 501(c)(3) | Washington, DC | $6,578,223 |
Data update history
December 6, 2023
Posted financials
Added Form 990 for fiscal year 2021
December 1, 2023
Posted financials
Added Form 990 for fiscal year 2022
November 30, 2023
Updated personnel
Identified 2 new personnel
November 27, 2023
Used new vendors
Identified 1 new vendor, including
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2020
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsOperates internationallyNational levelEndowed supportCommunity engagement / volunteeringTax deductible donations
General information
- Address
- 360 E 10th Ave Suite 201
- Eugene, OR 97401
- Metro area
- Eugene-Springfield, OR
- County
- Lane County, OR
- Website URL
- fanconi.org/Â
- Phone
- (541) 687-4658
IRS details
- EIN
- 93-0995453
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1989
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- H30: Cancer Research
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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