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EIN 43-1890134

Fabry Support and Information Group (FSIG)

IRS 501(c) type
501(c)(3)
Num. employees
8
City
Concordia
State
Missouri
Year formed
2000
Most recent tax filings
2023-12-01
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
Description
Fabry Support and Information Group (FSIG) advocates for awareness, treatment, and support for Fabry disease, connecting patients with vital resources and community.
Total revenues
$443,701
2023
Total expenses
$541,381
2023
Total assets
$736,747
2023
Num. employees
8
2023

Program areas at FSIG

Patient meetings-since Fabry patients have a hard time with travel, Fsig takes our meetings to them in cities near them. We provide them with up to date Information from medical and industry professionals. This also gives patients an opportunity to talk to other Fabry patients who are facing the same day-to-day challenges as they are. In 2023, we reached approximately 195 patients/family members.
Fefc registration fee - registration fee charged to attend 2023 Fsig expert Fabry conference. Appx. 100 attendees in live venue.
Website development - provide a forum for Fabry patients to make contact and help Support one another.

Who funds Fabry Support and Information Group (FSIG)

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Ge FoundationMatching Gifts$250
Pfizer FoundationMatching Gifts$50

Personnel at FSIG

NameTitleCompensation
Brian JonesFounder
Jack JohnsonFounder and Executive Director$80,600
Tia JonesFounder
Connie BaldwinDirector of Operations
Lisa BaconDirector of Programs

Financials for FSIG

RevenuesFYE 12/2023
Total grants, contributions, etc.$65,632
Program services$353,199
Investment income and dividends$10,595
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$13,607
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$668
Total revenues$443,701

Form 990s for FSIG

Fiscal year endingDate received by IRSFormPDF link
2023-122024-11-05990View PDF
2022-122023-11-14990View PDF
2021-122022-10-26990View PDF
2020-122021-10-05990View PDF
2019-122020-09-29990View PDF
...and 10 more Form 990s
Data update history
January 27, 2025
Posted financials
Added Form 990 for fiscal year 2023
January 27, 2025
Updated personnel
Identified 2 new personnel
November 19, 2024
Updated personnel
Identified 4 new personnel
December 26, 2023
Posted financials
Added Form 990 for fiscal year 2022
December 24, 2023
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsPeer-to-peer fundraisingNational levelFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
Address
PO Box 510
Concordia, MO 64020
Metro area
Kansas City, MO-KS
County
Lafayette County, MO
Website URL
fabry.org/ 
Phone
(660) 463-1355
IRS details
EIN
43-1890134
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2000
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current
FTB status revoked
Not revoked
AG Registration Number
CT0263485
FTB Entity ID
4259619
AB 488 data last updated ("as-of") date
2025-03-05
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