Program areas at Epilepsy Foundation
Advocacy for individuals, families and communities - the Foundation is on the front lines helping ensure all people living with Epilepsy and seizures, and their families and communities, receive the best possible services and care. The Foundation develops nationwide programs available through its network of nearly 50 chapters and affiliates and also on epilepsy.com. Programs and initiatives focus on engaging parents, children and adults in improving their quality of life. The Foundation also has programs dedicated to ending early death from Epilepsy and in improving overall wellness. The programs are designed to be culturally and ethnically diverse. The Foundation and its grassroots volunteers across the country advocate at the federal and state levels to secure funding for Epilepsy programs.
Research, innovation, and new therapies - bringing innovative new therapies in a timeframe that matters is a driving force and key strategic priority for the Foundation. Through the Epilepsy therapy project, the Foundation accelerates development of innovative therapies, prevention, and cures for all forms of the epilepsies, and addresses gaps in the research and commercialization continuum. Other key initiatives include research to eradicate sudep, analysis of data from patient registries for common and rare forms of Epilepsy in the human Epilepsy project and the rare Epilepsy network, support for promising and meritorious research grant and fellowship applications.
Public health, education and awareness - the Foundation leads the fight to end Epilepsy by creating awareness through national media outreach with traditional and digital channels including epilepsy.com and social media and through the direct mail program which serves the dual purpose of raising funds for the organization and increasing awareness of thefoundation's cause. The Foundation educates about seizure recognition and first aid, emphasizing the importance of early and accurate diagnosis, when to seek specialty care, and pursuit of wellness and best quality of life. The Foundation educates through engagement withmedia sources, partnerships with other non-profit, professional and government organizations. The Foundation's Epilepsy learning healthcare system network is a public health initiative to drive quality improvement and health services research to improve outcomes for people with Epilepsy.
Grants made by Epilepsy Foundation
Who funds Epilepsy Foundation
Grants from foundations and other nonprofits
Federal funding details
Federal agency | CFDA code | Program name | Amount |
---|
Department of Health and Human Services | 93.850 | IMPROVING EPILEPSY PROGRAMS, SERVICES, AND OUTCOMES THROUGH NATIONAL PARTNERSHIPS | $3,801,185 |
Personnel at Epilepsy Foundation
Name | Title | Compensation | Date of data |
---|
David Hawk | Chief Executive Officer Chairman | $0 | 2022-07-07 |
Greg Mayes | Chief Executive Officer | $0 | 2022-07-07 |
Philip M Gattone | President and Chief Executive Officer | $312,845 | 2022-03-09 |
Randy Siegel | North American Chief Executive Officer | $0 | 2022-07-07 |
Roger Heldman | Chief Executive Officer | $0 | 2022-07-07 |
...and 28 more key personnel |
Financials for Epilepsy Foundation
Revenues | FYE 06/2022 | FYE 06/2021 | % Change |
---|
Total grants, contributions, etc. | $20,369,605 | $18,909,147 | 7.7% |
Program services | $642,816 | $619,665 | 3.7% |
Investment income and dividends | $44 | $292,101 | -100% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $44 | $7,772 | -99.4% |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $2,003,783 | $429,143 | 366.9% |
Net income from fundraising events | $-1,139,334 | $-874,281 | -30.3% |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $-105,248 | $4,499 | -2439.4% |
Miscellaneous revenues | $125,457 | $11,325 | 1007.8% |
Total revenues | $21,897,167 | $19,399,371 | 12.9% |
Organizations like Epilepsy Foundation
Organization | Type | Location | Revenue |
---|
ALS Association (ALS) | 501(c)(3) | Arlington, VA | $39,792,803 |
Lupus Foundation of America | 501(c)(3) | Washington, DC | $15,023,543 |
Parkinsons Disease Foundation Incorporated (PDF) | 501(c)(3) | Miami, FL | $50,273,391 |
Immune Deficiency Foundation (IDF) | 501(c)(3) | Towson, MD | $9,938,471 |
Epilepsy Foundation New England | 501(c)(3) | Lowell, MA | $5,980,042 |
American Parkinson Disease Association (APDA) | 501(c)(3) | Staten Island, NY | $19,021,103 |
Arthritis Foundation | 501(c)(3) | Atlanta, GA | $65,224,961 |
Autism Speaks | 501(c)(3) | Princeton, NJ | $46,771,653 |
The Als Association - Greater New York Chapter | 501(c)(3) | New York, NY | $5,803,291 |
National Kidney Foundation (NKF) | 501(c)(3) | New York, NY | $49,574,913 |
Data update history
June 19, 2023
Posted financials
Added Form 990 for fiscal year 2022
June 17, 2023
Updated personnel
Identified 9 new personnel
June 13, 2023
Used new vendors
Identified 3 new vendors, including , , and
June 9, 2023
Updated personnel
Identified 3 new personnel
May 27, 2023
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingFundraising eventsPeer-to-peer fundraisingOperates internationallyNational levelReceives government fundingEndowed supportProvides scholarshipsGala fundraisersFundraising races, competitions, and tournamentsTax deductible donations
General information
- Address
- 3540 Crain Hwy 675
- Bowie, MD 20716
- Metro area
- Washington-Arlington-Alexandria, DC-VA-MD-WV
- Website URL
- epilepsy.com/Â
- Phone
- (800) 332-1000
- Facebook page
- EpilepsyFoundationofAmericaÂ
- Twitter profile
- @epilepsyfdnÂ
IRS details
- EIN
- 52-0856660
- Fiscal year end
- June
- Taxreturn type
- Form 990
- Year formed
- 1967
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Central organization
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