Program areas at Epilepsy Foundation
Advocacy and services for individuals, families, and communities - designed to ensure that all people living with Epilepsy and seizure disorders, and thier families and communities, receive the best possible services and care. The Foundation develops nationwide programs available through its network of nearly fifty local Epilepsy foundations and can also be found on epilepsy.com. Programs and initiatives focus on engaging parents, children and adults on improving their quality of life. The Foundation also has programs dedicated to ending early death from Epilepsy and improving overall wellness. The programs are designed to be culturally and ethnically diverse. The Foundation and its grassroots volunteers across the country advocate at the federal and state levels to secure funding for Epilepsy programs.
Research, innovation, and new therapies - accelerates the development of innovative therapies, prevention, and cures for all forms of epilepsies, and seeks to address the gap in the research and commercialization continuum. The main objective is to develop an Epilepsy research ecosystem that covers all parts of therapy, from idea to market. The Foundation's research initiatives include: innovation programs that test new ideas and follow new research leads and engagement programs that improve communication between people with Epilepsy, their families, advocates, researchers, and investors. Digital tools that support research infrastructure. Funding that supports young researchers to bring their ideas to life. Practice solutions to eradicate sudden and unexpected death in Epilepsy (sudep).
Public health, education, and awareness - provides educational and supporting services that create and promote public awareness surrounding Epilepsy. The program utilizes traditional and digital media channels including social media and through the direct mail program which serve the dual purpose of raising funds for the Foundation and increasing awareness of the Foundation's cause. The Foundation educates through engagement with media sources, and partnerships with other non-profits and professional and government organizations. In addition, the Foundation established the Epilepsy learning healthcare system (elhs) network, which is a public health initiative to drive quality health services research to improve medical outcomes for people with Epilepsy.
Who funds Epilepsy Foundation
Grants from foundations and other nonprofits
Personnel at Epilepsy Foundation
Name | Title | Compensation | Date of data |
---|
Bernice Martin Lee | President and Chief Executive Officer | | 2024-12-26 |
Brandy Fureman, PhD | Chief Outcomes Officer | $232,853 | 2024-11-04 |
Rahel Rosner | Cfoo | $269,600 | 2024-05-14 |
Wanda Cook | Chief Financial Officer | | 2025-03-25 |
David-Alexandre Jost | Chief Research and Innovation Officer | | 2024-12-26 |
...and 19 more key personnel |
Financials for Epilepsy Foundation
Revenues | FYE 06/2023 | FYE 06/2022 | % Change |
---|
Total grants, contributions, etc. | $18,834,892 | $20,369,605 | -7.5% |
Program services | $703,581 | $642,816 | 9.5% |
Investment income and dividends | $428,539 | $44 | - |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $1,806 | $44 | 4004.5% |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $-1,382,706 | $2,003,783 | -169% |
Net income from fundraising events | $-798,448 | $-1,139,334 | 29.9% |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $0 | $-105,248 | -100% |
Miscellaneous revenues | $53,550 | $125,457 | -57.3% |
Total revenues | $17,841,214 | $21,897,167 | -18.5% |
Organizations like Epilepsy Foundation
Organization | Type | Location | Revenue |
---|
Parkinsons Disease Foundation Incorporated (PDF) | 501(c)(3) | New York, NY | $55,962,188 |
Cure Sma (CSMA) | 501(c)(3) | Elk Grove Village, IL | $14,785,235 |
Arthritis Foundation | 501(c)(3) | Atlanta, GA | $68,319,013 |
Tourette Association of America | 501(c)(3) | Bayside, NY | $5,048,195 |
American Parkinson Disease Association (APDA) | 501(c)(3) | Staten Island, NY | $23,361,566 |
The Cure Starts Now | 501(c)(3) | Cincinnati, OH | $5,080,693 |
Muscular Dystrophy Association | 501(c)(3) | Chicago, IL | $59,437,892 |
The Als Association - Greater New York Chapter | 501(c)(3) | New York, NY | $4,847,061 |
Epilepsy Foundation New England | 501(c)(3) | Lowell, MA | $7,355,741 |
GO2 For Lung Cancer (ALCF) | 501(c)(3) | Washington, DC | $12,804,058 |
Data update history
January 14, 2025
Received grants
Identified 17 new grant, including a grant for $248,025 from PayPal Giving Fund November 5, 2024
Updated personnel
Identified 7 new personnel
July 21, 2024
Updated personnel
Identified 4 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
MembershipsPolitical advocacyConducts researchLobbyingFundraising eventsPeer-to-peer fundraisingOperates internationallyNational levelReceives government fundingEndowed supportCommunity engagement / volunteeringGala fundraisersFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
- Address
- 3540 Crain Hwy 675
- Bowie, MD 20716
- Metro area
- Washington-Arlington-Alexandria, DC-VA-MD-WV
- County
- Prince George's County, MD
- Website URL
- epilepsy.com/local/marylandÂ
- Phone
- (800) 332-1000
- Facebook page
- EpilepsyFoundationofAmericaÂ
- Twitter profile
- @epilepsyfdnÂ
IRS details
- EIN
- 52-0856660
- Fiscal year end
- June
- Taxreturn type
- Form 990
- Year formed
- 1967
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Central organization
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current - Awaiting Reporting
- FTB status revoked
- Not revoked
- AG Registration Number
- 017219
- FTB Entity ID
- 1587607
- AB 488 data last updated ("as-of") date
- 2025-03-19
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