Cause IQ organization profile

Epilepsy Foundation of America

Program areas | Form 990s | Financials | Vendors | Personnel | Peers

Epilepsy Foundation of America is a nerve, muscle, or bone disease organization based in Landover, MD that was founded in 1967. As of 2019 they had $20 million in revenue and $20 million in assets.

The mission of the Epilepsy Foundation is to stop seizures and sudep, find a cure and overcome the challenges created by Epilepsy through efforts including education, advocacy and research to accelerate ideas into therapies. To lead the fight to overc...

Previous legal names or variations of their name include: Epilepsy Foundation National Office.

Type:
501(c)(3)
NTEE:
Revenue:
$20,510,086
Assets:
$20,192,871
Employees:
125
Fiscal year end:
June
Revenue trends:
Asset trends:

Program areas at Epilepsy Foundation of America

Advocacy and services for individuals, families and communities - the Epilepsy Foundation is on the front lines helping ensure all people living with Epilepsy and seizures - and their families and communities - receive the best possible services and care. We develop nationwide programs available through our network of over 50 local Epilepsy foundations and can also be found on epilepsy.com. Programs and initiatives focus on engaging parents, children and independent adults on improving their quality of life. We also have programs dedicated to ending early death from Epilepsy and improving overall wellness. Our programs are designed to be culturally and ethnically diverse. The Foundation and its grassroots volunteers across the country advocate at the federal and state levels to secure funding for Epilepsy programs, improve access to health care, foster biomedical innovation and safeguard disability rights. The Foundation also supports people with Epilepsy through our information and referral line, ...

Research, innovation, and new therapies - bringing innovative new therapies in a timeframe that matters is a driving force and key strategic priority for the Foundation. Through the Epilepsy therapy project, we accelerate development of innovative therapies, prevention, and cures for all forms of Epilepsy, and address gaps in the research, and commercialization continuum. The Foundation's Epilepsy learning healthcare system pilot network drives quality improvement and health services research to improve outcomes for people with Epilepsy. Other key initiatives include research to eradicate sudep, expanded patient registries for common and rare forms of Epilepsy in the human Epilepsy project and the rare Epilepsy network, support for promising and meritorious research grant and fellowship applications to new investigators to attract the best and the brightest to Epilepsy research and clinical service, and a campaign to support the Epilepsy innovation institute (ei2), an innovation incubator supporting early development projects to funnel new ...

Education and awareness -the Epilepsy Foundation leads the fight to end Epilepsy by creating awareness through national media outreach with traditional & digital channels, including epilepsy.com and endepilepsy.org. We raise awareness of seizure recognition and first aid, emphasizing the importance of early and proper diagnosis, when to seek specialty care, and pursuit of wellness and best quality of life. We educate through engagement with media sources, partnerships with professional and government organizations, and through our direct mail program which serves the dual purpose of raising funds for the organization and increasing awareness of our cause. As a result, in accordance with the financial accounting standards board (fasb) guidelines, we allocate a portion of our direct mail costs to program services. Public educational programs are also disseminated through our local Epilepsy foundations around the nation, including outreach programs to schools, employers, first responders and other front-line community groups who engage with ...

Form 990s for Epilepsy Foundation of America

Fiscal year endingDate received by IRSFormPDF link
2019-06Jan 31, 2020990View PDF
2018-06Feb 21, 2019990View PDF
2017-06Jan 19, 2018990View PDF
2016-06Apr 4, 2017990View PDF
2015-06Jul 20, 2016990View PDF
...and five more Form 990 PDFs

Financials for Epilepsy Foundation of America

Field2019
Total grants, contributions, etc.$19,683,958
Program services$1,655,104
Investment income and dividends$262,896
Tax-exempt bond proceeds$0
Royalty revenue$8,411
Net rental income$0
Net gain from sale of non-inventory assets$167,828
Net income from fundraising events$-1,365,261
Net income from gaming activities$0
Net income from sales of inventory$14,300
Miscellaneous revenues$82,850
Total revenues$20,510,086

Vendors for Epilepsy Foundation of America

VendorServicesAmount paidDate
CQ Roll CallAdvocacy software2020-06-17
██████Content management system software2020-06-17
█████████Marketing software2020-06-17
███████ ███████ ███Tax accounting; Audit accounting2020-01-31
████████ ████████ █████████Subcontractor$2,8572020-01-31
█████████It Support$2,8642020-01-31
████████ █████ ██████████Subcontractor$5,0322020-01-31
████████ ███Fundraising Consultant$121,5002019-06-01
...and three more vendors

Personnel at Epilepsy Foundation of America

NameTitleCompensationMost recent data
Laura ThrallChief Executive Officer-May 20, 2020
Phil GattonePresident and Chief Executive Officer-July 17, 2019
█████ █████Chief Operating Officer and Vice President$187,371May 20, 2020
█████ ██████████Chief Financial Officer / Vice President of Finance and Administra$132,718May 20, 2020
██████████ ██████Chief Medical and Innovation Officer / Chief Scientific Officer-May 20, 2020
█████ ████████Chief Development Officer-May 20, 2020
██████ ███████Chief Outcomes Officer 5 Question Interview / Vice President of Research and New Therapies 5 / Vice President Research$192,284May 20, 2020
███ █████████Vice President of Digital Strategies and Engagement / Vice President of Communications and Digital Strategy-May 20, 2020
█████ ███████Vice President of Marketing-May 20, 2020
█████ ███████Vice President of Government Affairs and Advocacy-May 20, 2020
...and 14 more key personnel

Peer arthritis, muscular dystrophy, multiple sclerosis, and epilepsy organizations

 NameTypeRevenueLocation
1Association for Frontotemporal Degeneration (AFTD)501(c)(3)$9.1 millionRadnor, PA
2ALS Association (ALS)501(c)(3)$27 millionWashington, DC
3National Hemophilia Foundation501(c)(3)$22 millionNew York, NY
4Parent Project Muscular Dystrophy (PPMD)501(c)(3)$9.0 millionHackensack, NJ
5International Myeloma Foundation501(c)(3)$16 millionNorth Hollywood, CA
6American Liver Foundation (ALF)501(c)(3)$9.1 millionNew York, NY
7The Als Association - Als Association MNNDSD Chapter501(c)(3)$6.0 millionSt Paul, MN
8National Multiple Sclerosis Society Greater Carolinas Chapter / Greater Carolinas Chapter501(c)(3)$5.3 millionRaleigh, NC
9National Multiple Sclerosis Society Northern California501(c)(3)$6.4 millionSan Francisco, CA
10National Multiple Sclerosis Society Greater Northwest Chapter501(c)(3)$7.0 millionSeattle, WA
11National Multiple Sclerosis Society Upper Midwest Chapter501(c)(3)$7.7 millionMinneapolis, MN
12National Multiple Sclerosis Society Greater New England Chapter501(c)(3)$11 millionWaltham, MA
13Arthritis Foundation501(c)(3)$86 millionAtlanta, GA
14The ALS Association - ALS Association Golden West Chapter501(c)(3)$7.5 millionAgoura Hills, CA
15United Spinal Association501(c)(3)$8.3 millionKew Gardens, NY
16South Central Chapter of the National Multiple Sclerosis Society501(c)(3)$24 millionHouston, TX
17Arthritis Foundation Pacific Region501(c)(3)$7.7 millionLos Angeles, CA
18Alpha-1 Foundation501(c)(3)$10 millionMiami, FL
19National Multiple Sclerosis Society New York City- Southern New York Chapter501(c)(3)$8.8 millionNew York, NY
20Lupus Foundation of America501(c)(3)$16 millionWashington, DC
21Ovarian Cancer Research Alliance501(c)(3)$9.7 millionNew York, NY
22Hemophilia Federation of America (HFA)501(c)(3)$5.7 millionWashington, DC
23National Federation of the Blind / Blind Federation of America (NFB)501(c)(3)$19 millionBaltimore, MD
24Tuberous Sclerosis Alliance501(c)(3)$5.4 millionSilver Spring, MD
25Boomer Esiason Foundation501(c)(3)$5.7 millionBethesda, MD