EIN 52-0856660

Epilepsy Foundation

IRS 501(c) type
Num. employees
Year formed
Most recent tax filings
The mission of the Epilepsy Foundation is to stop seizures and sudep, find a cure and overcome the challenges created by Epilepsy through efforts including education, advocacy and research to accelerate ideas into therapies.
Also known as...
Epilepsy Foundation of America
Total revenues
Total expenses
Total assets
Num. employees

Program areas at Epilepsy Foundation

Advocacy for individuals, families and communities - the Foundation is on the front lines helping ensure all people living with Epilepsy and seizures, and their families and communities, receive the best possible services and care. The Foundation develops nationwide programs available through its network of nearly 50 chapters and affiliates and also on epilepsy.com. Programs and initiatives focus on engaging parents, children and adults in improving their quality of life. The Foundation also has programs dedicated to ending early death from Epilepsy and in improving overall wellness. The programs are designed to be culturally and ethnically diverse. The Foundation and its grassroots volunteers across the country advocate at the federal and state levels to secure funding for Epilepsy programs.
Research, innovation, and new therapies - bringing innovative new therapies in a timeframe that matters is a driving force and key strategic priority for the Foundation. Through the Epilepsy therapy project, the Foundation accelerates development of innovative therapies, prevention, and cures for all forms of the epilepsies, and addresses gaps in the research and commercialization continuum. Other key initiatives include research to eradicate sudep, analysis of data from patient registries for common and rare forms of Epilepsy in the human Epilepsy project and the rare Epilepsy network, support for promising and meritorious research grant and fellowship applications.
Public health, education and awareness - the Foundation leads the fight to end Epilepsy by creating awareness through national media outreach with traditional and digital channels including epilepsy.com and social media and through the direct mail program which serves the dual purpose of raising funds for the organization and increasing awareness of thefoundation's cause. The Foundation educates about seizure recognition and first aid, emphasizing the importance of early and accurate diagnosis, when to seek specialty care, and pursuit of wellness and best quality of life. The Foundation educates through engagement withmedia sources, partnerships with other non-profit, professional and government organizations. The Foundation's Epilepsy learning healthcare system network is a public health initiative to drive quality improvement and health services research to improve outcomes for people with Epilepsy.

Grants made by Epilepsy Foundation

GranteeGrant descriptionAmount
Mayo ClinicSeizure Gauge Grant; New Therapy Commercial Grant$260,773
American Brain FoundationSusan B. Spencer Grant$50,000
American Epilepsy Society (AES)Research Grant$50,000
...and 2 more grants made

Who funds Epilepsy Foundation

Grants from foundations and other nonprofits
Magistro Family FoundationUnrestricted General$500,000
Vanguard Charitable Endowment ProgramFor Recipient's Exempt Purpose$244,500
T Rowe Price CharitableMultiple$244,100
...and 114 more grants received totalling $2,595,237
Federal funding details
Federal agencyProgram nameAmount

Personnel at Epilepsy Foundation

David HawkChief Executive Officer Chairman$0
Greg MayesChief Executive Officer$0
Philip M GattonePresident and Chief Executive Officer$312,845
Randy SiegelNorth American Chief Executive Officer$0
Roger HeldmanChief Executive Officer$0
...and 28 more key personnel

Financials for Epilepsy Foundation

RevenuesFYE 06/2022
Total grants, contributions, etc.$20,369,605
Program services$642,816
Investment income and dividends$44
Tax-exempt bond proceeds$0
Royalty revenue$44
Net rental income$0
Net gain from sale of non-inventory assets$2,003,783
Net income from fundraising events$-1,139,334
Net income from gaming activities$0
Net income from sales of inventory$-105,248
Miscellaneous revenues$125,457
Total revenues$21,897,167

Form 990s for Epilepsy Foundation

Fiscal year endingDate received by IRSFormPDF link
2022-062023-02-15990View PDF
2021-062022-03-16990View PDF
2021-062022-03-09990View PDF
2020-062021-04-05990View PDF
2019-062020-01-31990View PDF
...and 9 more Form 990s
Data update history
June 19, 2023
Posted financials
Added Form 990 for fiscal year 2022
June 17, 2023
Updated personnel
Identified 9 new personnel
June 13, 2023
Used new vendors
Identified 3 new vendors, including , , and
June 9, 2023
Updated personnel
Identified 3 new personnel
May 27, 2023
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
HealthDiseases and disorders
Political advocacyConducts researchLobbyingFundraising eventsPeer-to-peer fundraisingOperates internationallyNational levelReceives government fundingEndowed supportProvides scholarshipsGala fundraisersFundraising races, competitions, and tournamentsTax deductible donations
General information
3540 Crain Hwy 675
Bowie, MD 20716
Metro area
Washington-Arlington-Alexandria, DC-VA-MD-WV
Website URL
(800) 332-1000
Facebook page
Twitter profile
IRS details
Fiscal year end
Taxreturn type
Form 990
Year formed
Eligible to receive tax-deductible contributions (Pub 78)
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Central organization
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