EIN 59-2164525

Epilepsy Alliance Florida

IRS 501(c) type
501(c)(3)
Num. employees
82
City
State
Year formed
1971
Most recent tax filings
2023-06-01
Description
Epilepsy Alliance Florida supports those affected by epilepsy by addressing the range of challenges that result from seizures. It provides direct patient services such as case management, support groups, and medical evaluations across 35 counties in Florida. The organization also offers prevention and education services in English, Spanish, and Creole, including presentations to corporations and public schools for both students and personnel. Epilepsy Alliance Florida is located in Miami, FL.
Also known as...
Epilepsy Florida; Epilepsy Foundation of Florida
Total revenues
$6,029,455
2023
Total expenses
$6,017,113
2023
Total assets
$1,981,195
2023
Num. employees
82
2023

Program areas at Epilepsy Alliance Florida

Direct patient services were provided in 35 Florida counties. Services provided were case management, support groups and medical services which include initial neurological evaluations, follow-up examinations, medical treatment, blood test, electroencephalograms and other diagnostic tests as required are provided to persons with Epilepsy (children and adults) and their families. The organization has a virtual intake and case management system whereby clients have more immediate access to services and case managers had reduced administrative time allowing for more quality case management services. Effective 89% of expenditures go directly to program costs. Epilepsy Alliance Florida impacted 9,792 individuals with its case management, support group and transportation services. 1,545 diagnostic tests were underwritten by the organization. 707 psychological sessions were provided to clients. More than 1.5 million people were educated through presentations, special events, awareness activities and online and social media platforms. 4,198 service calls were received from patients. 45 camp scholarships were provided to children and families with Epilepsy. Epilepsy Alliance Florida continues to be dedicated to providing education at health fairs and other awareness events including presentations, educational meetings, support groups, presence at community health fairs and similar activities. As an agency federally funded to provide navigation assistance for the affordable care act , Epilepsy Alliance Florida assisted and educated over 71,000 consumers and reached over 45 million via media coverage over the life of the program. 1,893 consumers were assisted to enroll in a qualified health plan or medicaid through this program.
Prevention & education services - comprehensive prevention and education services and information and referrals are provided in english, spanish and creole. They include regular presentations to corporations, public schools (both to personnel and students); physicians, attorneys and other community professionals; police, emergency medical services personnel, health care professionals, health and social service agencies and other community based organizations and child care providers such as day care centers. Federally funded navigation services and education were provided to consumers throughout south Florida.

Who funds Epilepsy Alliance Florida

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
United Way MiamiGeneral Support$70,475
HFSF Grants Management (HFSF)Broward Kidcare Outreach, Education and Enrollment School-Based Pilot- Year 2$50,625
United Way of Palm Beach CountyAllocations To Agencies and Community Impact$20,000
...and 21 more grants received totalling $242,390

Personnel at Epilepsy Alliance Florida

NameTitleCompensation
Karen Basha EgoziPresident and Chief Executive Officer$211,112
Monica RodriguezChief Financial Officer and Chief Operating Officer$147,457
Mary GomezVice President of Development$109,011
Judy ClauserVice President of Programs
Marchet EaddyMarketing Director
...and 19 more key personnel

Financials for Epilepsy Alliance Florida

RevenuesFYE 06/2023
Total grants, contributions, etc.$6,015,763
Program services$10,979
Investment income and dividends$2,479
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$234
Total revenues$6,029,455

Form 990s for Epilepsy Alliance Florida

Fiscal year endingDate received by IRSFormPDF link
2023-062023-12-14990View PDF
2022-062022-12-15990View PDF
2021-062022-08-26990View PDF
2021-062022-01-17990View PDF
2020-062021-04-05990View PDF
...and 11 more Form 990s
Data update history
February 5, 2024
Posted financials
Added Form 990 for fiscal year 2023
February 5, 2024
Updated personnel
Identified 1 new personnel
February 4, 2024
Received grants
Identified 6 new grant, including a grant for $70,475 from United Way Miami
December 17, 2023
Updated personnel
Identified 5 new personnel
October 25, 2023
Received grants
Identified 4 new grant, including a grant for $17,500 from Dr John T Macdonald Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthEducationDiseases and disorders
Characteristics
Conducts researchLobbyingFundraising eventsState / local levelReceives government fundingCommunity engagement / volunteeringTax deductible donations
General information
Address
7300 N Kendall Dr 760
Miami, FL 33156
Metro area
Miami-Fort Lauderdale-Pompano Beach, FL
County
Miami-Dade County, FL
Website URL
epilepsyalliancefl.org/ 
Phone
(305) 670-4949
IRS details
EIN
59-2164525
Fiscal year end
June
Taxreturn type
Form 990
Year formed
1971
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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