EIN 23-7198807

Epilepsy Association

IRS 501(c) type
501(c)(3)
Num. employees
9
State
Year formed
1972
Most recent tax filings
2022-12-01
Description
The Epilepsy Association is a not-for-profit corporation dedicated to helping people cope with and manage seizure disorders by improving their quality of life, while empowering individuals to reach their full potential within the community. Providing specialized services for children, teens, adults and families affected by Epilepsy.
Total revenues
$747,236
2022
Total expenses
$707,690
2022
Total assets
$1,326,942
2022
Num. employees
9
2022

Program areas at Epilepsy Association

Patient services: the Association provides community case management and mental health assessment services to adult clients who are affected by Epilepsy. Clients meet with agency social workers to establish individualized goals. Plans are established to assist clients in meeting those needs. An emphasis is placed on consumer choice, maintaining medical stability, and improving the quality of life for clients. In 2022, there were 413 adults who received case management and other social services.
Kids and family: the Association provides support for families who have a child with Epilepsy. The Association staff assess the needs of each family member with one-on-one support and connects them with community services, provides general assistance, Epilepsy education and advocacy. Services are tailored to meet the unique needs of each family. In 2022 there were 128 children and families who were served through programming and 125 virtual visits provided to individuals and schools.
Public health education: the Association provides educational presentations to a variety of community groups, students, teachers, and the general public to increase the awareness and understanding of Epilepsy. Education is provided about Epilepsy facts, seizure recognition, and Epilepsy first aid. 13,041 individuals were reached through community education programs and another 174 individuals accessed assistance through information and referral programming.

Who funds Epilepsy Association

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
The Blackbaud Giving FundGeneral Support$13,708
Lincoln Electric Foundation PFDNGeneral Operating$3,000
The SK Wellman FoundationMedical Research$2,000
...and 4 more grants received

Personnel at Epilepsy Association

NameTitleCompensation
Kelley NeedhamChief Executive Officer$117,347
Colleen SaunierDirector of Development
Christine SpradlingContract Clinical Director
Nicole RichterDirector of Community Programming
Susan StambergerVice President / Trustee$0
...and 4 more key personnel

Financials for Epilepsy Association

RevenuesFYE 12/2022
Total grants, contributions, etc.$545,700
Program services$213,923
Investment income and dividends$21,831
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$4,152
Net income from fundraising events$-38,370
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$747,236

Form 990s for Epilepsy Association

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-09990View PDF
2021-122022-10-31990View PDF
2020-122021-11-05990View PDF
2019-122021-04-02990View PDF
2018-122020-01-14990View PDF
...and 9 more Form 990s
Data update history
January 23, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 23, 2024
Updated personnel
Identified 2 new personnel
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
October 23, 2023
Received grants
Identified 4 new grant, including a grant for $13,708 from The Blackbaud Giving Fund
July 6, 2023
Updated personnel
Identified 6 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsPeer-to-peer fundraisingEndowed supportCommunity engagement / volunteeringGala fundraisersFundraising races, competitions, and tournamentsTax deductible donations
General information
Address
2831 Prospect Ave
Cleveland, OH 44115
Metro area
Cleveland-Elyria, OH
County
Cuyahoga County, OH
Website URL
epilepsyinfo.org/ 
Phone
(216) 579-1330
IRS details
EIN
23-7198807
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1972
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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