Grantee | Grant description | Grant year | Amount |
---|---|---|---|
Stanford University / The Board of Trustees of the Leland Stanford Junior University | To Fund Research To Find A Cure for Eb | 2022-12 | $1,680,779 |
Regents of the University of Colorado | To Fund Research To Find A Cure for Eb | 2022-12 | $1,044,842 |
Northwestern University | To Fund Research To Find A Cure for Eb | 2022-12 | $487,935 |
...and 9 more grants made |
Grantmaker | Grantmaker tax period | Description | Amount |
---|---|---|---|
Ann and Ari Deshe Foundation | 2022-12 | General Operating Fund | $1,000,000 |
Fidelity Investments Charitable Gift Fund | 2022-06 | For Grant Recipient's Exempt Purposes | $617,954 |
National Philanthropic Trust | 2022-06 | Health | $162,000 |
...and 42 more grants received totalling $2,331,717 |
Name | Title | Compensation | Date of data |
---|---|---|---|
Michael Hund | Chief Executive Officer | $352,081 | 2023-11-14 |
Sarah Thyssen | Executive General Manager | $0 | 2022-12-31 |
Donna Whiffin | Past Executive Director , Ebrpal | $52,774 | 2021-12-31 |
Jamie G Silver | Secretary | $0 | 2022-12-31 |
Jill Vedder | Vice Chairman | $0 | 2022-12-31 |
...and 3 more key personnel |
Revenues | FYE 12/2022 |
---|---|
Total grants, contributions, etc. | $6,106,138 |
Program services | $0 |
Investment income and dividends | $283,333 |
Tax-exempt bond proceeds | $0 |
Royalty revenue | $0 |
Net rental income | $0 |
Net gain from sale of non-inventory assets | $0 |
Net income from fundraising events | $-210,789 |
Net income from gaming activities | $0 |
Net income from sales of inventory | $0 |
Miscellaneous revenues | $271,763 |
Total revenues | $6,450,445 |
Fiscal year ending | Date received by IRS | Form | PDF link |
---|---|---|---|
2022-12 | 2023-11-14 | 990 | View PDF |
2021-12 | 2022-11-15 | 990 | View PDF |
2020-12 | 2021-09-23 | 990 | View PDF |
2019-12 | 2020-11-19 | 990 | View PDF |
2018-12 | 2020-02-05 | 990 | View PDF |
...and 9 more Form 990s |
Organization | Type | Location | Revenue |
---|---|---|---|
Foundation for Prader Willi Research (FPWR) | 501(c)(3) | Covina, CA | $5,083,937 |
Digestive Health Foundation | 501(c)(3) | Chicago, IL | $1,666,523 |
Alexs Lemonade Stand Foundation (ALSF) | 501(c)(3) | Wynnewood, PA | $26,830,754 |
The Cure Starts Now | 501(c)(3) | Cincinnati, OH | $5,231,630 |
Angelman Syndrome Foundation | 501(c)(3) | Aurora, IL | $3,676,179 |
Bay Area Lyme Foundation | 501(c)(3) | Portola Valley, CA | $3,112,927 |
Women's International Zionist Organization (WIZO) | 501(c)(3) | New York, NY | $8,135,442 |
The Center Helping Obesity in Children End Successfully (CHOICES) | 501(c)(3) | Kennesaw, GA | $1,757,433 |
the Foundation of the American Academy of Ophthalmology | 501(c)(3) | San Francisco, CA | $13,944,505 |
Charcot-Marie-Tooth Association (CMTA) | 501(c)(3) | Glenolden, PA | $10,398,940 |
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