EIN 27-2417202

EB Research Partnership

IRS 501(c) type
501(c)(3)
Num. employees
7
Year formed
2010
Most recent tax filings
2022-12-01
Description
Eb Research Partnership is dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth.
Also known as...
Jackson Gabriel Silver Foundation
Total revenues
$6,450,445
2022
Total expenses
$7,021,827
2022
Total assets
$22,585,702
2022
Num. employees
7
2022

Program areas at EB Research Partnership

Grants and money awarded for further Research. Eb Research Partnership funds the most promising, innovative and potentially commercially viable treatments and potential cures for Eb. Our Research grants incorporate advances through the field of biomedicine for better treatments for all Eb subtypes. Our scientific advisory board reviews all grant applications so that we are assured that grants are relevant, innovative and could meaningfully improve the quality of life for those living with Eb.

Grants made by EB Research Partnership

GranteeGrant descriptionAmount
Stanford University / The Board of Trustees of the Leland Stanford Junior UniversityTo Fund Research To Find A Cure for Eb$1,680,779
Regents of the University of ColoradoTo Fund Research To Find A Cure for Eb$1,044,842
Northwestern UniversityTo Fund Research To Find A Cure for Eb$487,935
...and 9 more grants made

Who funds EB Research Partnership

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Ann and Ari Deshe FoundationGeneral Operating Fund$1,000,000
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$617,954
National Philanthropic TrustHealth$162,000
...and 42 more grants received totalling $2,331,717

Personnel at EB Research Partnership

NameTitleCompensation
Michael HundChief Executive Officer$352,081
Sarah ThyssenExecutive General Manager$0
Donna WhiffinPast Executive Director , Ebrpal$52,774
Jamie G SilverSecretary$0
Jill VedderVice Chairman$0
...and 3 more key personnel

Financials for EB Research Partnership

RevenuesFYE 12/2022
Total grants, contributions, etc.$6,106,138
Program services$0
Investment income and dividends$283,333
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$-210,789
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$271,763
Total revenues$6,450,445

Form 990s for EB Research Partnership

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-14990View PDF
2021-122022-11-15990View PDF
2020-122021-09-23990View PDF
2019-122020-11-19990View PDF
2018-122020-02-05990View PDF
...and 9 more Form 990s
Data update history
January 22, 2024
Updated personnel
Identified 1 new personnel
January 15, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 3, 2024
Received grants
Identified 8 new grant, including a grant for $1,000,000 from Ann and Ari Deshe Foundation
October 23, 2023
Received grants
Identified 2 new grant, including a grant for $10,000 from Cheli's Children's Foundation
August 19, 2023
Received grants
Identified 30 new grant, including a grant for $1,000,000 from Ann and Ari Deshe Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsOperates internationallyNational levelGala fundraisersTax deductible donations
General information
Address
244 Madison Ave 104
New York, NY 10016
Metro area
New York-Newark-Jersey City, NY-NJ-PA
Website URL
ebresearch.org/ 
Phone
(212) 554-1467
Facebook page
EBResearch 
IRS details
EIN
27-2417202
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2010
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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