EIN 91-2059167

Cystic Fibrosis Foundation (CFF)

IRS 501(c) type
501(c)(3)
Num. employees
61
Year formed
2000
Most recent tax filings
2022-12-01
Description
The Cystic Fibrosis Foundation is committed to finding new therapies and ultimately a cure for CF.
Also known as...
Cystic Fibrosis Foundation Therapeutics
Total revenues
$0
2022
Total expenses
$0
2022
Total assets
$0
2022
Num. employees
61
2017

Program areas at CFF

Cfft supported a national clinical research network of nearly 80 foundation-accredited care centers that collaborate to conduct clinical trials, allowing potential new cf therapies to move to larger, late-stage studies more quickly. Medical programs in 2017 consisted of costs to support scientific study and investigations. 465 grants were awarded in 2017.
Funding by Cystic Fibrosis Foundation Therapeutics (cfft) in state-of-the-art contracted research has accelerated progress toward developing new cf treatments and finding a cure for the disease. By funding cf drug discovery and development research conducted by biotechnology companies and providing matching awards to cf drug developers for cf research, and with a specialized cf clinical trials network, cfft has attracted significant industry involvement in the fight against cf. The cf pipeline had 30 therapies in development for cf in 2017. Cfft accomplishes its mission by funding life-saving research to discover and develop effective therapies for people with cf. Cfft has funded hundreds of millions of dollars of research costs to help discover/develop cf drugs and therapies. Through cffts efforts, the life expectancy of people with cf has doubled in the last 30 years, and research to find a cure is more promising than ever before.

Who funds Cystic Fibrosis Foundation (CFF)

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
E Brooks Fbo Mass Cystic FibrosisUnrestriced General Support$144,715
The Ivan Bowen Family FoundationUnrestricted Use$125,000
The William and Sylvia Silberstein FoundationTo Carry Out Purposes for Which Established$124,180
...and 269 more grants received totalling $2,015,445

Personnel at CFF

NameTitleCompensation
Marc S GinskyChief Operating Officer and Director / President and Director / Executive Vice President and Chief Operating Officer / Executive Vice President , Chief Operating Officer and Secretary$0
Mary B. DwightVice President of Clinical Research
Irena BarisicTreasurer$0
Vera H TwiggTreasurer and Director / Executive Vice President , Chief Financial Officer and Secretary / Executive Vice President and Chief Financial Officer$0
Preston W. Campbell, Iii, M.D.President and Chief Executive Officer$304,574
...and 2 more key personnel

Financials for CFF

RevenuesFYE 12/2022
Total grants, contributions, etc.$0
Program services$0
Membership dues$0
Investment income and dividends$0
Net gain from sale of non-inventory assets$0
Net income from gaming activities and fundraising events, combined$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$0

Form 990s for CFF

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-14990EZView PDF
2021-122022-11-15990EZView PDF
2020-122021-11-10990EZView PDF
2019-122021-05-13990EZView PDF
2018-122020-01-06990EZView PDF
...and 9 more Form 990s
Data update history
September 27, 2023
Received grants
Identified 17 new grant, including a grant for $15,000 from Huizenga Family Foundation
August 29, 2023
Posted financials
Added Form 990EZ for fiscal year 2020
August 20, 2023
Received grants
Identified 143 new grant, including a grant for $150,000 from Charles T Bauer Charitable Foundation
August 7, 2023
Posted financials
Added Form 990EZ for fiscal year 2021
June 2, 2023
Updated personnel
Identified 1 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchPartially liquidatedOperates internationallyTax deductible donationsNo full-time employees
General information
Address
4550 Montgomery Ave 1100n
Bethesda, MD 20814
Metro area
Washington-Arlington-Alexandria, DC-VA-MD-WV
Website URL
cff.org/news/news-archive/2017/cfft-activities-transferred-to-the-cf-foundation/ 
Phone
(301) 951-4422
Facebook page
cysticfibrosisfoundation 
Twitter profile
@cf_foundation 
IRS details
EIN
91-2059167
Fiscal year end
December
Taxreturn type
Form 990-EZ
Year formed
2000
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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