Cause IQ organization profile

Cystic Fibrosis Foundation Therapeutics (CFF)

Program areas | Form 990s | Financials | Vendors | Personnel | Peers

CFF is a medical practice research organization based in Bethesda, MD that was founded in 2000. As of 2019 they had $0 in revenue and $1 in assets.

Fiscal year end:
Revenue trends:
Asset trends:

Program areas at CFF

Cfft supported a national clinical research network of nearly 80 foundation-accredited care centers that collaborate to conduct clinical trials, allowing potential new cf therapies to move to larger, late-stage studies more quickly. Medical programs in 2017 consisted of costs to support scientific study and investigations. 465 grants were awarded in 2017.

Funding by Cystic Fibrosis Foundation Therapeutics (cfft) in state-of-the-art contracted research has accelerated progress toward developing new cf treatments and finding a cure for the disease. By funding cf drug discovery and development research conducted by biotechnology companies and providing matching awards to cf drug developers for cf research, and with a specialized cf clinical trials network, cfft has attracted significant industry involvement in the fight against cf. The cf pipeline had 30 therapies in development for cf in 2017. Cfft accomplishes its mission by funding life-saving research to discover and develop effective therapies for people with cf. Cfft has funded hundreds of millions of dollars of research costs to help discover/develop cf drugs and therapies. Through cffts efforts, the life expectancy of people with cf has doubled in the last 30 years, and research to find a cure is more promising than ever before.

Form 990s for CFF

Fiscal year endingDate received by IRSFormPDF link
2018-12Jan 6, 2020990EZView PDF
2017-12Dec 22, 2018990View PDF
2016-12Oct 19, 2017990View PDF
2015-12Dec 12, 2016990View PDF
2014-12Sep 21, 2015990View PDF
...and five more Form 990 PDFs

Financials for CFF

Total grants, contributions, etc.$0
Program services$0
Investment income and dividends$0
Net gain from sale of non-inventory assets$0
Net income from gaming activities and fundraising events, combined$0
Net income from sales of inventory$0
Miscellaneous revenues
Total revenues$0

Vendors for CFF

VendorServicesAmount paidDate
KimbiaFundraising software2020-06-16
███████ ███ ████Fundraising software; Payment processing2020-06-16
█████████CRM software; Marketing software2020-03-17
████ ███Tax accounting2018-10-01
██████ ███████████████ ███Contracted Research$12,500,0002017-12-01
██████ ███Contracted Research$2,120,8892017-12-01
███████ ███████████Contracted Research$9,330,2802017-12-01
█████████ ███Contracted Research$2,073,3332017-12-01
...and two more vendors

Personnel at CFF

NameTitleCompensationMost recent data
Preston W. Campbell, Iii, M.D.President and Chief Executive Officer$304,574Aug. 11, 2019
Marc S. GinskyExecutive Vice President and Chief Operating Officer$0Aug. 11, 2019
████ ██████Chief Investment Officer-Aug. 11, 2019
████ ██ █████Executive Vice President and Chief Financial Officer$0Feb. 16, 2018
███████ ██ ██████ ███Chief Information Officer-Aug. 11, 2019
████████ ███████Chief of Staff-Aug. 11, 2019
██████ ██ ██████Senior Vice President and Chief Human Resources Officer-Feb. 16, 2018
█████ ██████Chief of Strategy-Feb. 16, 2018
███ ███████Senior Vice President of Communications-Feb. 16, 2018
████ ██ ██████Senior Vice President of Policy and Advocacy-Aug. 11, 2019
...and 10 more key personnel

Peer medical discipline research centers

1Lupus Research Institute (LRI)501(c)(3)$6.6 millionNew York, NY
2Military Health Research Foundation501(c)(3)$3.1 millionLaurel, MD
3Stanley Medical Research Institute (SMRI)501(c)(3)$8.4 millionKensington, MD
4Foundation Fighting Blindness Clinical Research Institute501(c)(3)$13 millionColumbia, MD
5Foundation for Holistic Medical Research501(c)(3)$211,785Wellington, FL
6Ecohydrology Research501(c)(3)$141,907Woodland, CA
7The Arizona Cattle Industry Research and Education Foundation501(c)(3)$94,966Phoenix, AZ
8Melanoma Research Alliance (MRA)501(c)(3)$5.8 millionWashington, DC
9Ocular Surface Research and Education Foundation501(c)(3)$21,000Miami, FL
10The Morris L Lichtenstein JR Medical Research Foundation501(c)(3)$1.1 millionCorpus Christi, TX
11Ehlers-Danlos Society501(c)(3)$1.6 millionNew York, NY
12Heart Disease Aid and Research Fund501(c)(3)$359,971Phoenix, AZ
13The Naspghan Foundation501(c)(3)$1.2 millionAmbler, PA
14Urology Research and Education Foundation501(c)(3)$124,206Dallas, TX
15Medical Research Charities (MRC)501(c)(3)$940,891Salem, MA
16EB Research Partnership501(c)(3)$5.3 millionNew York, NY
17Frances Bean Vair Te501(c)(3)$3.1 millionPittsburgh, PA
18Bridge the Gap - Syngap Education and Research Foundation501(c)(3)$159,028Cypress, TX
19Foundation for Health Research501(c)(3)$94,662Duarte, CA
20Galien Foundation501(c)(3)$1.7 millionNew York, NY
21PhRMA Foundation501(c)(3)$5.1 millionWashington, DC
22The Moran Foundation501(c)(3)$-920Houston, TX
23Heritage Medical Research Institute501(c)(3)$6.2 millionMarina Del Rey, CA
24Center for Neurologic Study501(c)(3)$1.0 millionLa Jolla, CA
25The Axion Research Foundation501(c)(3)$3.4 millionHamden, CT