EIN 52-1704978

CurePSP

IRS 501(c) type
501(c)(3)
Num. employees
12
Year formed
1990
Most recent tax filings
2022-06-01
NTEE code, primary
Description
CurePSP is the leading nonprofit organization working to improve awareness, education, care, and cure for devastating Prime of Life neurodegenerative diseases.
Also known as...
Foundation for PSP CBD and Related Brain Diseases
Total revenues
$3,806,911
2022
Total expenses
$3,461,407
2022
Total assets
$7,863,202
2022
Num. employees
12
2022

Program areas at CurePSP

CurePSP is a catalyst for new treatments and a cure. As such, it advances the understanding and seeks treatment and a cure for progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and multiple system atrophy (MSA). The science that is advanced by CurePSP also benefits the broader field of research in neurodegeneration, including Alzheimers and Parkinsons diseases, in addition to other rare neurodegenerative diseases. Continued on Schedule O
CurePSP publishes a library of printed and online educational materials for families, patients, physicians, and other healthcare professionals. These materials are developed in collaboration with CurePSP Centers of Care, a network of hospitals and best-in-class academic centers specializing in treating patients with PSP, CBD, and MSA. CurePSP sponsors professional educational conferences in collaboration with leading institutions to increase knowledge of the disease that will lead to earlier and more accurate diagnosis and better patient care. Several dozen volunteer events annually, supported by CurePSP, further educate the public. CurePSP uses several social media platforms to communicate with its constituents, maintains an online patient and caregiver forum, and produces national webinars, online support groups, and online presentations from clinicians and researchers.
CurePSP advocates for patients, families, and caregivers living with or managing PSP, CBD, and MSA. The goal of CurePSP is to improve the quality of life and patient outcomes and to create a community to increase resilience and accelerate problem-solving. CurePSP does this through the organization of family conferences, caregiver retreats, volunteer development, professional education, online and printed resources, and the dissemination of relevant information on social media. CurePSP supports more than 50 virtual and in-person support groups and has over 250 volunteers providing online, telephone, and face-to-face support worldwide. Continued on Schedule O

Grants made by CurePSP

GranteeGrant descriptionAmount
Community Foundation of North Texas (NTXCF)Research$106,900
University of Pennsylvania (Penn)Research$100,000
General Hospital CorporationResearch$90,000
...and 3 more grants made

Who funds CurePSP

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$177,377
American Online Giving FoundationGeneral Support$55,876
Fred and Mabel R Parks FoundationPSP Research Program$50,000
...and 48 more grants received totalling $486,767

Personnel at CurePSP

NameTitleCompensation
Kristophe DiazExecutive Director$190,885
Sabrina da RochaDirector , Marketing and Communications
Rich SpainDirector, Development
Jessica ShurerDirector , Clinical Affairs and Advocacy$0
Jaclyn ZendrianSenior Director , Events
...and 16 more key personnel

Financials for CurePSP

RevenuesFYE 06/2022
Total grants, contributions, etc.$3,585,545
Program services$0
Investment income and dividends$237,008
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$-19,626
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$3,984
Total revenues$3,806,911

Form 990s for CurePSP

Fiscal year endingDate received by IRSFormPDF link
2022-062023-05-10990View PDF
2020-062021-05-11990View PDF
2019-062020-09-24990View PDF
2018-062019-05-14990View PDF
2017-062018-10-16990View PDF
...and 9 more Form 990s

Organizations like CurePSP

OrganizationLocationRevenue
Fistula FoundationSan Jose, CA$18,648,495
American Osteopathic Foundation (AOF)Chicago, IL$1,843,079
National MPS SocietyDurham, NC$1,902,823
Sepsis AllianceSan Diego, CA$2,245,229
Urology Care FoundationLinthicum HTS, MD$9,488,144
American Syringomyelia and Chiari Alliance ProjectLongview, TX$1,211,738
Jordan Elizabeth Harris FoundationFort Worth, TX$1,157,595
Cure JM FoundationLeesburg, VA$1,824,036
Team Jack FoundationAtkinson, NE$1,258,041
Orthopaedic FoundationLos Angeles, CA$17,778,217
Data update history
July 11, 2023
Posted financials
Added Form 990 for fiscal year 2022
May 24, 2023
Updated personnel
Identified 6 new personnel
May 7, 2023
Received grants
Identified 1 new grant, including a grant for $10,000 from CHMC Anesthesia Foundation
April 21, 2023
Updated personnel
Identified 1 new personnel
August 3, 2022
Received grants
Identified 2 new grant, including a grant for $16,612 from JustGive
Nonprofit Types
Grantmaking organizationsDisease research fundraisersProfessional associationsDisease-focused nonprofitsCharities
Issues
HealthDiseases and disordersMedical disciplines
Characteristics
Conducts researchFundraising eventsOperates internationallyNational levelEndowed supportCommunity engagement / volunteeringTax deductible donations
General information
Address
1216 Broadway 2nd Floor
New York, NY 10001
Metro area
New York-Newark-Jersey City, NY-NJ-PA
County
New York County, NY
Website URL
psp.org/ 
Phone
(800) 457-4777
Facebook page
curepsp.foundation 
Twitter profile
@curepsp 
IRS details
EIN
52-1704978
Fiscal year end
June
Taxreturn type
Form 990
Year formed
1990
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G90: Medical Disciplines
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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