1. Directory
  2. California
  3. Newport Beach
  4. CureDuchenne
EIN 20-0299958

CureDuchenne

IRS 501(c) type
501(c)(3)
Num. employees
37
City
Newport Beach
State
California
Year formed
2003
Most recent tax filings
2022-12-01
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
Description
Coordinating and funding research necessary to find a cure for Duchenne muscular dystrophy also, improving the care and health of Duchenne muscular dystrophy patients.
Total revenues
$5,751,368
2022
Total expenses
$9,005,616
2022
Total assets
$28,410,543
2022
Num. employees
37
2022

Program areas at CureDuchenne

Cure Duchenne was organized in 2003 with the mission to fund research necessary to find a Cure for Duchenne muscular dystrophy patients, and improving the care and health of Duchenne muscular dystrophy patients. Since Cure Duchenne was organized, the organziatio has been very instrumental in having several drugs approved by the fda for patients with Duchenne muscular dystrophy.

Grants made by CureDuchenne

GranteeGrant descriptionAmount
Partners Healthcare System / Brigham & Womens Hospital IncEducation/ Outreach/ Research$230,000
Foundation for the National Institute of Health (FNIH)Education/ Outreach/ Research$100,000

Who funds CureDuchenne

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Mack Jack & McConaugheyGeneral Support$1,100,000
Vanguard Charitable Endowment ProgramFor Recipient's Exempt Purpose$1,016,634
Kozmetsky Family FoundationSupport To Expand Both the Link and Physical Therapy Programs To Conduct Research and Improve the Quality of Life for Individuals With Duchenne Muscular Dystrophy$200,000
...and 19 more grants received totalling $2,630,064

Personnel at CureDuchenne

NameTitleCompensation
Debra MillerChief Executive Officer$151,305
Michael KellyChief Scientific Officer$175,000
Lianna OrlandoVice President of Research / Senior Director of Research$180,875
Kathlene BalisyFinance Director$170,833
Andrea PikeSenior Director of Marketing
...and 15 more key personnel

Financials for CureDuchenne

RevenuesFYE 12/2022
Total grants, contributions, etc.$2,429,586
Program services$0
Investment income and dividends$362,715
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$-215,059
Net income from fundraising events$3,207,054
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$-32,928
Total revenues$5,751,368

Form 990s for CureDuchenne

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-14990View PDF
2021-122022-11-15990View PDF
2020-122021-11-15990View PDF
2019-122021-04-02990View PDF
2018-122019-09-27990View PDF
...and 9 more Form 990s
Data update history
January 5, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 4, 2024
Updated personnel
Identified 1 new personnel
January 2, 2024
Received grants
Identified 7 new grant, including a grant for $200,000 from Kozmetsky Family Foundation
December 25, 2023
Used new vendors
Identified 6 new vendors, including , , , , , and
October 25, 2023
Received grants
Identified 8 new grant, including a grant for $1,100,000 from Mack Jack & McConaughey
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsNational levelGala fundraisersTax deductible donations
General information
Address
100 Bayview Cir 5600
Newport Beach, CA 92660
Metro area
Los Angeles-Long Beach-Anaheim, CA
Website URL
cureduchenne.org/ 
Phone
(949) 872-2552
Facebook page
cureduchenne 
Twitter profile
@cureduchenne 
IRS details
EIN
20-0299958
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2003
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Central organization
Free account sign-up

Want updates when CureDuchenne has new information, or want to find more organizations like CureDuchenne?

Create free Cause IQ account
Cause IQ is a website that helps companies grow, maintain, and serve their nonprofit clients, and helps nonprofits find additional foundation funding. Our data and tools help professionals prospect for nonprofits, research opportunities, benchmark their clients, and enrich existing information.
Nonprofits
Product
Customers
About

© 2024 Nonprofit Metrics LLC
Terms of Service and Privacy Policy