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EIN 26-0256621

Cure Tay-Sachs Foundation

IRS 501(c) type
501(c)(3)
Num. employees
0
City
Phoenix
State
Arizona
Year formed
2007
Most recent tax filings
2023-12-01
NTEE code, primary
G20: Birth Defects and Genetic Diseases
Description
The Cure Tay-Sachs Foundation has been created to fund the research initiatives that show promise to treat and ultimately Cure Tay-Sachs disease (tsd). Tsd is hereditary disease passed on when two carrier parents both pass the Tay-Sachs gene to their child. Tay-Sachs has three forms - the classic or infantile form, the juvenile onset form and the late on-set form known as lots. Children infected with the infantile or juvenile form currently have a 100% mortaility rate - no child has ever survived this disease. We aim to change that.
Total revenues
$107,582
2023
Total expenses
$189,307
2023
Total assets
$2,122,357
2023
Num. employees
0
2023

Program areas at Cure Tay-Sachs Foundation

The Cure Tay-Sachs Foundation has been created to fund the research initiatives that show promise to treat and ultimately Cure Tay-Sachs disease (tsd). Tsd is hereditary disease passed on when two carrier parents both pass the Tay-Sachs gene to their child. Tay-Sachs has three forms - the classic or infantile form, the juvenile onset form and the late on-set form known as lots. Children infected with the infantile or juvenile form currently have a 100% mortaility rate - no child has ever survived this disease. We aim to change that.

Grants made by Cure Tay-Sachs Foundation

GranteeGrant descriptionAmount
University of MassachusettsGrant$79,875
National Tay-Sachs and Allied Diseases AssociationGrant$40,000

Who funds Cure Tay-Sachs Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Delta Dental of CaliforniaTake A Hike Tay Sachs 2024$8,000
American Express FoundationGeneral Support$60
American Express FoundationGeneral Support$60
...and 3 more grants received

Personnel at Cure Tay-Sachs Foundation

NameTitleCompensation
Rick KarlPresident$0
Bruce SteigerTreasurer$0
Dave RabinowitzVice President$0
Kenneth BihnPresident$0
Timothy BihnVice President$0
...and 1 more key personnel

Financials for Cure Tay-Sachs Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$29,339
Program services$0
Investment income and dividends$63,249
Tax-exempt bond proceeds$0
Royalty revenue$38,630
Net rental income$0
Net gain from sale of non-inventory assets$-23,636
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$107,582

Form 990s for Cure Tay-Sachs Foundation

Fiscal year endingDate received by IRSFormPDF link
2023-122024-11-08990View PDF
2022-122023-11-15990View PDF
2021-122022-11-15990View PDF
2020-122021-11-10990View PDF
2019-122021-04-02990View PDF
...and 8 more Form 990s

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OrganizationLocationRevenue
JB'S Keys To DMDDover, MA$374,046
Cpath Cerebral Palsy Awareness Transition HopeAustin, TX$204,749
Syngap1 FoundationWashington, DC$69,941
Faces FoundationPortland, OR$116,300
Down Syndrome Network OregonLake Oswego, OR$105,831
Sickle Cell 101San Jose, CA$349,501
Down Syndrome Association of RoanokeRoanoke, VA$33,373
The LENN FoundationColumbus, OH$53,679
Angels in DisguiseLouisville, KY$208,281
Down By the BorderBrownsville, TX$30,457
Data update history
January 9, 2024
Posted financials
Added Form 990 for fiscal year 2022
December 27, 2023
Received grants
Identified 2 new grant, including a grant for $63,968 from PayPal Giving Fund
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
August 16, 2022
Posted financials
Added Form 990 for fiscal year 2020
August 23, 2021
Posted financials
Added Form 990 for fiscal year 2019
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchAuction fundraisersTax deductible donationsNo full-time employeesAccepts online donations
General information
Address
2409 E Luke Ave
Phoenix, AZ 85016
Metro area
Phoenix-Mesa-Chandler, AZ
County
Maricopa County, AZ
Website URL
curetay-sachs.org/ 
Phone
(216) 251-9070
IRS details
EIN
26-0256621
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2007
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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