EIN 35-2222262

Cure JM Foundation

IRS 501(c) type
501(c)(3)
Num. employees
5
Year formed
2003
Most recent tax filings
2019-09
Description
Cure JM Foundation is a medical research: general in Leesburg, VA whose mission is: To find better treatments and a Cure for juvenile myositis and improve the lives of families.

Program areas at Cure JM Foundation

The organization directly supported research as follows: 1) 196 ,106 to the Cure JM center of excellence in JM research at stanley manne children's research institute, affiliated with ann & robert h. lurie children's hospital in chicago, il. This facility has cared for over 600 children with jdm and other forms of inflammatory myopathy. The team is working to discover the biomarkers of JM activity to guide the utilization and/or creation of more effective therapies. They have already identified a variety of genetic and environmental factors that not only play a role in the onset of symptoms, but also govern the child' s outcome; 2) 200,000 to the gw medical faculty associates myositis center in Washington, dc. As a national referral site for inflammatory muscle diseases, the center is often called upon to either establish a diagnosis or to provide a second opinion related to the management of children and adults with JM. The center also specializes in JM research and education working in collaboration with the national institute of health (nih); 3) 100,000 to nacts to advance translational science research in the area of juvenile autoimmune disorders; 4) 130,000 to george Washington university for a study to explore relationships between various components of fatigue primarily mediated by the cardiorespiratory system ; 5 62,500 to carra to support expansion of the registry to include patients with jdm; 6) 120,000 to university of California, san francisco for a fellow to conduct research regarding longitudinal immune profiling for biomarker discovery in patients with jdm; 7 40 ,000 to university of pittsburgh to determine if ultrasound can detect muscle disease in children with active inflammation; 8) 1,031 for transcription services and recording devices related to a mental health focus group; and 10 65,000 to university of bath (uk) for validation of commercial myositis autoantibody panels leading to increased accessibility of testing, standardization in testing and improved diagnostic criteria.
The organization is committed to increasing awareness and education of this rare, incurable autoimmune disease as well as providing a support community for impacted families. These efforts are accomplished through a variety of methods such as: attendance at medical conferences representing Cure JM Foundation and its work/activities; distribution of printed information cards, brochures and educational books to impacted families and the medical community; distribution of welcome kits to newly diagnosed families; newsletters; educational events and gatherings; family support; survey and metric tools; maintenance of a patient registry and message board and updates/maintenance of the organization' s website.
The annual national family conference & walk strong to Cure JM event was held in arlington, va just outside of Washington, dc. 90 families attended including 40 grandparents , 150+ parents, 70 children, 50 teens and over a dozen young adults. 90 medical professionals also participated in a 1-day medical conference to share the latest advancements in JM research and treatments. Families capped the weekend with attendance at the walk strong to Cure JM dc event.

Form 990s for Cure JM Foundation

Fiscal year endingDate received by IRSFormPDF link
2019-092020-10-22990View PDF
2018-092019-09-30990View PDF
2017-092018-10-13990View PDF
2016-092017-08-23990View PDF
2015-092016-09-09990View PDF
...and 5 more Form 990s

Who funds Cure JM Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Rockefeller Philanthropy Advisors (RPA)General$87,500
 Subscribe to view████ ██$99,999
 Subscribe to view██████$9,999
...and 13 more grants received

Grants made by Cure JM Foundation

GranteeGrant descriptionAmount
Childhood Arthritis and Rheumatology Research AllianceSupport the Expansio$262,548
 Subscribe to view████ ██████$999,999
 Subscribe to view███ █ ███ █$99,999
 Subscribe to view████ ██ ████$99,999
 Subscribe to view████ █████$99,999
...and 3 more grants made

Financials for Cure JM Foundation

RevenuesFYE 09/2019
Total grants, contributions, etc.$1,854,330
Program services$0
Investment income and dividends$13,143
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$1,501
Miscellaneous revenues$54,296
Total revenues$1,923,270

Personnel at Cure JM Foundation

NameTitleCompensation
Denise C DoriaChief Financial Officer and Director$0
James MinowExecutive Director$152,773
Pam AldredData Program Manager
 Subscribe to viewSecretary$0

Organizations like Cure JM Foundation

OrganizationLocationRevenue
Gbscidp Foundation InternationalConshohocken, PA$2,373,175
Dystonia Medical Research FoundationChicago, IL$2,417,667
The Transverse Myelitis AssociationPowell, OH$691,880
The Red Sox FoundationBoston, MA$9,457,487
Pediatric Brain Tumor Foundation of the United StatesAsheville, NC$6,362,573
Pat Tillman FoundationChicago, IL$3,782,090
Scleroderma Foundation of Greater ChicagoChicago, IL$792,725
Osteogenesis Imperfecta FoundationGaithersburg, MD$1,835,341
Chicagoland Arthritis FoundationChicago, IL$7,286,804
Maine Cancer FoundationFalmouth, ME$3,006,057
Hydrocephalus Association (HA)Bethesda, MD$3,409,455
Beyond CeliacAmbler, PA$1,938,199
California Counties FoundationSacramento, CA$1,713,138
National Alopecia Areata Foundation (NAAF)San Rafael, CA$2,224,187
PKD FoundationKansas City, MO$6,759,603
3Strands Global FoundationEl Dorado Hills, CA$1,310,446
National Foundation for Ectodermal DysplasiasFairview Heights, IL$1,078,711
RettsyndromeorgCincinnati, OH$4,782,320
Fidelco Guide Dog FoundationBloomfield, CT$4,246,495
National Community Pharmacists Association FoundationAlexandria, VA$504,929
FRAXA Research FoundationNewburyport, MA$1,351,927
Parkinson Research FoundationSarasota, FL$2,512,803
Williams Syndrome AssociationTroy, MI$1,918,427
The Myocarditis FoundationKingwood, TX$778,428
MDS Foundation / The Myelodysplastic Syndromes FoundationYardville, NJ$1,531,833
Nonprofit Types
Issues
Characteristics
Key performance indicators
Total revenues
$1,923,270
2019
Yearly growth
-2.6%
% of revenues
n/a
Total expenses
$1,740,400
2019
Yearly growth
1.7%
% of expenses
n/a
Total assets
$1,920,336
2019
Yearly growth
-10.4%
% of assets
n/a
Num. employees
5
2019
Yearly growth
150%
% of total
n/a
General information
Address
19309 Winmeade Drive Suite 204
Leesburg, VA 20176
Metro area
Washington-Arlington-Alexandria, DC-VA-MD-WV
Website URL
curejm.org/ 
Phone
(202) 596-6267
IRS details
EIN
35-2222262
Fiscal year end
September
Taxreturn type
Form 990
Year formed
2003
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H00: Medical Research: General
NAICS code, primary
813211: Grantmaking Foundations
Parent/child status
Independent