Program areas at Cure HHT
Research - the research program is supportive in funding research for the understanding of the mechanism of HHT disease, novel therapeutic approaches to treatment and management, and translational research leading to multi-center trials. The HHT international scientific conference is held every other year.
Public information - the goal of the public information program is to increase public, private, and governmental awareness of the HHT disorder through the press and the media.
Education - the goal of the education program is to promote education, diagnosis, and best practice treatments related to HHT through patient support, support of conferences, meetings, and comprehensive HHT clinical centers of excellence.
Advocacy - the goal of the advocacy program is to advocate for and support those with HHT by pursuing recognition and funding for awareness, access to expert care and clinical trials.
Who funds Cure HHT
Grants from foundations and other nonprofits
Financials for Cure HHT
| Revenues | FYE 06/2024 | FYE 06/2023 | % Change |
|---|
| Total grants, contributions, etc. | $6,587,947 | $3,263,861 | 101.8% |
| Program services | $104,766 | $410,107 | -74.5% |
| Investment income and dividends | $104,940 | $55,714 | 88.4% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $29,643 | $13,387 | 121.4% |
| Net income from fundraising events | $-43,605 | $-7,967 | -447.3% |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $6,620 | $5,763 | 14.9% |
| Total revenues | $6,790,311 | $3,740,865 | 81.5% |
Organizations like Cure HHT
| Organization | Type | Location | Revenue |
|---|
| Aids Research Foundation AMFAR | 501(c)(3) | New York, NY | $29,082,707 |
| National MPS Society | 501(c)(3) | Durham, NC | $2,296,659 |
| TSC Alliance | 501(c)(3) | Silver Spring, MD | $10,000,895 |
| Boomer Esiason Foundation | 501(c)(3) | Bethesda, MD | $5,920,362 |
| Children's Diabetes Foundation | 501(c)(3) | Aurora, CO | $4,231,939 |
| National Pku Alliance | 501(c)(3) | Washington, DC | $2,563,389 |
| Alpha-1 Foundation | 501(c)(3) | Miami, FL | $11,614,380 |
| International Dyslexia Association (IDA) | 501(c)(3) | Pikesville, MD | $2,535,779 |
| EB Research Partnership | 501(c)(3) | New York, NY | $7,430,625 |
| The Cure Starts Now | 501(c)(3) | Cincinnati, OH | $5,080,693 |
Data update history
June 3, 2025
Updated personnel
Identified 1 new personnel
May 30, 2025
Posted financials
Added Form 990 for fiscal year 2024
April 1, 2025
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthEducationDiseases and disordersCommunity improvementBusiness and industry
Characteristics
Provides grantsConducts researchLobbyingFundraising eventsNational levelReceives government fundingEndowed supportFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
- Address
- PO Box 329
- Monkton, MD 21111
- Metro area
- Baltimore-Columbia-Towson, MD
- County
- Baltimore County, MD
- Website URL
- curehht.org/Â
- Phone
- (410) 357-9932
IRS details
- EIN
- 22-3115041
- Fiscal year end
- June
- Taxreturn type
- Form 990
- Year formed
- 1990
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G80: Specifically Named Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current
- FTB status revoked
- Not revoked
- AG Registration Number
- 131567
- FTB Entity ID
- 2351078
- AB 488 data last updated ("as-of") date
- 2025-08-06
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