Program areas at CURE
Since its inception in 1998, CURE Epilepsy has raised more than 90 million to fund epilepsy research and other initiatives that will lead the way to cures for the epilepsies. CURE Epilepsy awards grants for novel research projects to prevent epilepsy related to pediatric epilepsy, post-traumatic epilepsy, treatment resistant epilepsies, sudden unexplained death in epilepsy SUDEP, and sleep and epilepsy advancing the search for a cure, eliminating treatment side effects, and reversing deficits caused by frequent seizures, CURE Epilepsy funds grants for young and established investigators and todate has awarded more than 280 grants in 17 countries around the world.
CURE Epilepsy believes that awareness is a critical vehicle to increase the amount of funding for epilepsy research and to share key learnings and opportunities for those impacted by epilepsy. CURE Epilepsy creates, sponsors and levers our website, webinars, seminars, podcasts, educational events and other digital communication to drive this critical awareness.
Who funds CURE Epilepsy (CURE)
Grants from foundations and other nonprofits
Personnel at CURE
Name | Title | Compensation | Date of data |
---|
Beth Dean | Chief Executive Officer | $299,086 | 2023-05-02 |
John Anderluh | Chief Financial Officer | $110,734 | 2022-12-31 |
Laura Lubbers | Chief Scientific Officer | $295,325 | 2022-12-31 |
Debby Hecht | Senior Director , Market Coms | $162,707 | 2022-12-31 |
Alsyha Biehl | Senior Director , Development | $143,152 | 2021-12-31 |
...and 11 more key personnel |
Financials for CURE
Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
---|
Total grants, contributions, etc. | $5,937,146 | $6,172,734 | -3.8% |
Program services | $0 | $0 | - |
Investment income and dividends | $140,351 | $124,018 | 13.2% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $706,426 | $0 | 999% |
Net income from fundraising events | $-552,547 | $-253,061 | -118.3% |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $0 | $0 | - |
Total revenues | $6,231,376 | $6,043,691 | 3.1% |
Organizations like CURE
Organization | Type | Location | Revenue |
---|
Parent Project Muscular Dystrophy (PPMD) | 501(c)(3) | Washington, DC | $10,753,014 |
Tourette Association of America | 501(c)(3) | Bayside, NY | $4,883,886 |
Cure Sma (CSMA) | 501(c)(3) | Elk Grove Village, IL | $13,668,775 |
Epilepsy Foundation | 501(c)(3) | Bowie, MD | $21,897,167 |
Arthritis Foundation Upper Midwest Region | 501(c)(3) | St Paul, MN | $2,891,319 |
Chicagoland Arthritis Foundation | 501(c)(3) | Chicago, IL | $7,286,804 |
American Parkinson Disease Association (APDA) | 501(c)(3) | Staten Island, NY | $19,021,103 |
Creutzfeldt-Jakob Disease Foundation | 501(c)(3) | Akron, OH | $2,861,917 |
FSHD Society | 501(c)(3) | Randolph, MA | $3,508,920 |
Dravet Syndrome Foundation | 501(c)(3) | Cherry Hill, NJ | $2,515,782 |
Data update history
August 19, 2023
Received grants
August 15, 2023
Posted financials
Added Form 990 for fiscal year 2021
July 8, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchLobbyingFundraising eventsOperates internationallyNational levelReceives government fundingCommunity engagement / volunteeringTax deductible donations
General information
- Address
- 420 N Wabash Ave Ste 650
- Chicago, IL 60611
- Metro area
- Chicago-Naperville-Elgin, IL-IN-WI
- Website URL
- cureepilepsy.org/Â
- Phone
- (312) 255-1801
- Facebook page
- CUREforEpilepsyÂ
- Twitter profile
- @cureepilepsyÂ
IRS details
- EIN
- 36-4253176
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1998
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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