| Grantee | Grant description | Grant year | Amount |
|---|---|---|---|
| Jackson Laboratory | Collaborative Research Agreement | 2022-06 | $190,287 |
| Georgia Tech Research Corporation | Collaborative Research Agreement | 2022-06 | $96,000 |
| American Pharmacists Association Academy of Student Pharmacists / University of Illinois at Chicago | Collaborative Research Agreement | 2022-06 | $78,070 |
| Grantmaker | Grantmaker tax period | Description | Amount |
|---|---|---|---|
| Grandview Steers Foundation | 2021-12 | General Support | $500,000 |
| Schwab Charitable Fund | 2022-06 | Health | $131,856 |
| Fidelity Investments Charitable Gift Fund | 2022-06 | For Grant Recipient's Exempt Purposes | $112,150 |
| ...and 16 more grants received | |||
| Name | Title | Compensation | Date of data |
|---|---|---|---|
| Cleary Simpson | Chief Executive Officer / Member | $0 | 2022-06-30 |
| Erich Fasnacht | Chief Operating Officer | $201,200 | 2023-08-09 |
| Keith Fargo | Chief Scientific Officer | $171,200 | 2022-06-30 |
| Susan Ruediger | Founder and Chief Mission Officer / Founder and Chief Executive Officer | $155,808 | 2022-06-30 |
| Adam Kauffman | Treasurer / Finance Chair | $0 | 2022-06-30 |
| ...and 3 more key personnel | |||
| Revenues | FYE 06/2022 |
|---|---|
| Total grants, contributions, etc. | $4,349,158 |
| Program services | $0 |
| Investment income and dividends | $3,127 |
| Tax-exempt bond proceeds | $0 |
| Royalty revenue | $0 |
| Net rental income | $0 |
| Net gain from sale of non-inventory assets | $0 |
| Net income from fundraising events | $0 |
| Net income from gaming activities | $0 |
| Net income from sales of inventory | $0 |
| Miscellaneous revenues | $0 |
| Total revenues | $4,352,285 |
| Fiscal year ending | Date received by IRS | Form | PDF link |
|---|---|---|---|
| 2022-06 | 2023-08-09 | 990 | View PDF |
| 2021-06 | 2022-09-01 | 990 | View PDF |
| 2021-06 | 2022-05-23 | 990 | View PDF |
| 2020-12 | 2021-05-25 | 990 | View PDF |
| 2019-12 | 2021-04-28 | 990 | View PDF |
| ...and 1 more Form 990 | |||
| Organization | Type | Location | Revenue |
|---|---|---|---|
| Oklahoma Heart Hospital Research Foundation | 501(c)(3) | Oklahoma City, OK | $1,143,021 |
| Cornea Research Foundation of America | 501(c)(3) | Indianapolis, IN | $1,137,490 |
| Foundation for Sarcoidosis Research (FSR) | 501(c)(3) | Chicago, IL | $2,385,283 |
| Foundation for Prader Willi Research (FPWR) | 501(c)(3) | Walnut, CA | $3,838,959 |
| Scleroderma Research Foundation (SRF) | 501(c)(3) | San Francisco, CA | $3,768,969 |
| Children's Health Foundation / Children's Medical Research Inc | 501(c)(3) | Oklahoma City, OK | $6,186,741 |
| International FOP Association | 501(c)(3) | North Kansas City, MO | $3,272,897 |
| Glaucoma Research Foundation | 501(c)(3) | San Francisco, CA | $5,777,174 |
| Pennington Biomedical Research Foundation (PBRF) | 501(c)(3) | Baton Rouge, LA | $5,462,788 |
| Brain Research Foundation (BRF) | 501(c)(3) | Chicago, IL | $2,489,419 |
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