EIN 04-3503931

Clinical Data Interchange Standards Consortium

IRS 501(c) type
501(c)(3)
Num. employees
47
City
State
Year formed
2000
Most recent tax filings
2022-12-01
NTEE code, primary
Description
CDISC supports global data standards for healthcare research, developing therapeutic area standards and virtual training events.
Total revenues
$8,105,543
2022
Total expenses
$9,610,015
2022
Total assets
$5,085,701
2022
Num. employees
47
2022

Program areas at Clinical Data Interchange Standards Consortium

Technical - to date, cdisc has developed therapeutic area Standards for over 44 disease areas and we continue to update and expand these Standards when possible. In 2022, cdisc continues to develop significant new versions of the cdisc foundational Standards (send, cdash, sdtm, sdtmig, adam, controlled terminology and Data exchange Standards). The trial master file reference model (tmf rm) standard has became part of the cdisc suite of standards.cdisc released several updates to the cdisc library to add new features as well as new versions of the Standards. Cdisc core rule engine and rule editor software has released as open source and the team continues to make progress. For the cdisc the digital Data flow project we realeased a reference architecture as a standard and are working on version 3. Cdisc continues to run numerous hackathons and workshops to promote, support, and sometimes sponsor open-source software focused on implementing or developing the cdisc Standards to drive innovation.
Events - cdisc hosted three virtual and one in-person conference in 2022. These conferences were "interchanges," individually focused on europe, japan, china and united states markets. The events promoted recent advancements by cdisc Standards teams, cdisc members and independent developers. Attendees came from various organizations in pharmaceutical, cro, technology, academic and biotech sectors. Cdisc also supported non-cdisc events throughout the year to further promote the aims of the organization to the broader Clinical research community.
Education - in 2022, cdisc education held the most live on-line training events in program history with over 130 virtual training events led throughout the year and over 1200 virtual attendees. The education team migrated to a new e-commerce system and upgraded the cdisc learning system to the latest version for the first time since 2018, allowing for easier access and new learning tools for the cdisc community.
Partnerships & collaboration - cdisc has over 530 active memberorganizations. Our members' support ensures that the cdisc standardsremain open and free. Membership dues allow cdisc to accomplish theprogram services mentioned above. Cdisc also works closely withregulators around the world to ensure that cdisc Standards facilitatethe e-submission review process and support the approval of new curesand treatments.

Who funds Clinical Data Interchange Standards Consortium

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
The Leona M and Harry B Helmsley Charitable TrustCdisc Standards Development Project for Type 1 Diabetes$14,355
AmazonSmile FoundationGeneral Support$13

Personnel at Clinical Data Interchange Standards Consortium

NameTitleCompensation
David EvansChief Executive Officer$410,719
Samuel HumeVice President , Data Science$228,330
Rhonda Yvonne FacileVice President , Development and Partnerships$224,310
Anthony ChowHead of Data Science$167,258
Charles ShadleHead of Data Science Operations$166,968
...and 11 more key personnel

Financials for Clinical Data Interchange Standards Consortium

RevenuesFYE 12/2022
Total grants, contributions, etc.$4,130,952
Program services$3,935,285
Investment income and dividends$39,306
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$8,105,543

Form 990s for Clinical Data Interchange Standards Consortium

Fiscal year endingDate received by IRSFormPDF link
2022-122023-09-25990View PDF
2021-122022-11-01990View PDF
2020-122021-09-03990View PDF
2019-122020-12-18990View PDF
2018-122019-10-11990View PDF
...and 8 more Form 990s
Data update history
December 2, 2023
Posted financials
Added Form 990 for fiscal year 2022
December 1, 2023
Updated personnel
Identified 4 new personnel
November 27, 2023
Used new vendors
Identified 4 new vendors, including , , , and
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
July 8, 2023
Updated personnel
Identified 6 new personnel
Nonprofit Types
Professional associationsBusiness and community development organizationsHeadquarter / parent organizationsCharities
Issues
HealthPublic policyBusiness and industry
Characteristics
MembershipsOperates internationallyNational levelReceives government fundingCommunity engagement / volunteeringTax deductible donations
General information
Address
401 W 15th St 520
Austin, TX 78701
Metro area
Austin-Round Rock-Georgetown, TX
Website URL
cdisc.org/ 
Phone
(512) 363-5826
Facebook page
clinical-data-interchange-standards-consortium-cdisc 
Twitter profile
@cdisc 
IRS details
EIN
04-3503931
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2000
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
S41: Promotion of Business
NAICS code, primary
813920: Professional Associations
Parent/child status
Central organization
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