EIN 04-3511754

Choroideremia Research Foundation

IRS 501(c) type
501(c)(3)
Num. employees
7
Year formed
2000
Most recent tax filings
2024-06-01
Description
To raise funds to hasten medical research for a cure or treatment of Choroideremia as well as promote greater understanding of this inherited degenerative eye condition to those affected, the medical and research communities, and the public at large. To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease and the public.
Total revenues
$699,069
2024
Total expenses
$689,478
2024
Total assets
$810,811
2024
Num. employees
7
2024

Program areas at Choroideremia Research Foundation

To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease and the public.

Grants made by Choroideremia Research Foundation

GranteeAmount
University of Pennsylvania (Penn)$127,000

Who funds Choroideremia Research Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
American Online Giving FoundationGeneral Support$27,797
The Blackbaud Giving FundGeneral Support$26,354
Ed Lucas FoundationSupport Research$10,000
...and 5 more grants received

Personnel at Choroideremia Research Foundation

NameTitleCompensation
Kathi WagnerExecutive Director$97,948
Beth FossDirector of Operations$0
Eric HartmanDirector of Advocacy
Cory MacDonaldEngagement Director

Financials for Choroideremia Research Foundation

RevenuesFYE 06/2024
Total grants, contributions, etc.$660,391
Program services$0
Investment income and dividends$38,678
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$699,069

Form 990s for Choroideremia Research Foundation

Fiscal year endingDate received by IRSFormPDF link
2024-062024-12-20990View PDF
2023-062024-03-02990View PDF
2022-062023-02-19990View PDF
2021-062022-01-16990View PDF
2020-062021-03-01990View PDF
...and 10 more Form 990s
Data update history
November 25, 2024
Updated personnel
Identified 3 new personnel
September 21, 2024
Received grants
Identified 3 new grant, including a grant for $26,354 from The Blackbaud Giving Fund
May 28, 2024
Posted financials
Added Form 990 for fiscal year 2023
May 21, 2024
Updated personnel
Identified 3 new personnel
May 19, 2024
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthEducationDiseases and disorders
Characteristics
Provides grantsConducts researchEndowed supportCommunity engagement / volunteeringTax deductible donationsAccepts online donations
General information
Address
23 E Brundreth St
Springfield, MA 01109
Metro area
Springfield, MA
County
Hampden County, MA
Website URL
curechm.org:443/ 
Phone
(800) 210-0233
IRS details
EIN
04-3511754
Fiscal year end
June
Taxreturn type
Form 990
Year formed
2000
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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