Program areas at Chordoma Foundation
(research) to accelerate the development of better treatments for Chordoma, the Chordoma Foundation initiated and funded a portfolio of research projects spanning basic, translational and clinical science, and provided a variety of vital services to the Chordoma research community, including banking Chordoma tumor tissue, developing and distributing preclinical models of Chordoma, performing preclinical drug screening, and facilitating patient participation in clinical trials.
(patient services) to improve the lives of individuals affected by Chordoma, the Chordoma Foundation helped patients and their families find accurate information about Chordoma and treatment options, overcome barriers to care, and get emotional support from peers. This included developing and distributing educational content, providing patient navigation services, hosting educational conferences, and operating an online community forum for patients and families.
Grants made by Chordoma Foundation
Who funds Chordoma Foundation
Grants from foundations and other nonprofits
Personnel at Chordoma Foundation
| Name | Title | Compensation | Date of data |
|---|
| Josh Sommer | Executive Director and President | $117,540 | 2022-07-18 |
| Tammy Silverthorne | Director of Operations | | 2021-11-09 |
| Shannon Lozinsky | Director of Patient Services | | 2021-11-09 |
| Gillian Parrish | Head of Engagement | | 2021-11-09 |
| Joan Levy | Director of Research | $155,812 | 2020-12-31 |
| ...and 3 more key personnel |
Financials for Chordoma Foundation
| Revenues | FYE 12/2021 | FYE 12/2020 | % Change |
|---|
| Total grants, contributions, etc. | $2,961,128 | $2,488,341 | 19% |
| Program services | $0 | $1,775 | -100% |
| Investment income and dividends | $1,432 | $5,729 | -75% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $25,080 | $0 | 999% |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $98,114 | $0 | 999% |
| Total revenues | $3,085,754 | $2,495,845 | 23.6% |
Organizations like Chordoma Foundation
| Organization | Type | Location | Revenue |
|---|
| Leukemia Research Foundation (LRF) | 501(c)(3) | Northfield, IL | $2,562,072 |
| Christopher and Dana Reeve Foundation | 501(c)(3) | Short Hills, NJ | $14,446,353 |
| Open Medicine Foundation | 501(c)(3) | Agoura Hills, CA | $5,827,682 |
| Dravet Syndrome Foundation | 501(c)(3) | Cherry Hill, NJ | $1,964,117 |
| Mario Lemieux Foundation | 501(c)(3) | Pittsburgh, PA | $5,742,046 |
| Pediatric Cancer Research Foundation (PCRF) | 501(c)(3) | Irvine, CA | $3,233,755 |
| National Foundation for Cancer Research (NFCR) | 501(c)(3) | Rockville, MD | $11,465,290 |
| Musella Foundation for Brain Tumor Research and Information | 501(c)(3) | Hewlett, NY | $1,451,701 |
| Aplastic Anemia and MDS International Foundation (AAMDSIF) | 501(c)(3) | Bethesda, MD | $4,687,320 |
| Children's Tumor Foundation | 501(c)(3) | New York, NY | $12,831,946 |
Data update history
May 8, 2023
Updated personnel
Identified 2 new personnel
August 13, 2022
Posted financials
Added Form 990 for fiscal year 2020
August 2, 2022
Updated personnel
Identified 3 new personnel
May 20, 2022
Used new vendors
Identified 3 new vendors, including , , and
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchOperates internationallyNational levelReceives government fundingTax deductible donations
General information
- Address
- PO Box 2127
- Durham, NC 27702
- Metro area
- Durham-Chapel Hill, NC
- County
- Durham County, NC
- Website URL
- chordomafoundation.org/Â
- Phone
- (919) 809-6779
IRS details
- EIN
- 20-8423943
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2007
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- H12: Medical Research Fund Raising and Fund Distribution
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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