EIN 20-8423943

Chordoma Foundation

IRS 501(c) type
Num. employees
Year formed
Most recent tax filings
The mission of the Chordoma Foundation is to rapidly develop effective treatments and ultimately a cure for Chordoma, and to help Chordoma patients get the best care possible.
Total revenues
Total expenses
Total assets
Num. employees

Program areas at Chordoma Foundation

(research) to accelerate the development of better treatments for Chordoma, the Chordoma Foundation initiated and funded a portfolio of research projects spanning basic, translational and clinical science, and provided a variety of vital services to the Chordoma research community, including banking Chordoma tumor tissue, developing and distributing preclinical models of Chordoma, performing preclinical drug screening, and facilitating patient participation in clinical trials.
(patient services) to improve the lives of individuals affected by Chordoma, the Chordoma Foundation helped patients and their families find accurate information about Chordoma and treatment options, overcome barriers to care, and get emotional support from peers. This included developing and distributing educational content, providing patient navigation services, hosting educational conferences, and operating an online community forum for patients and families.

Grants made by Chordoma Foundation

GranteeGrant descriptionAmount
Cancer Research Institute (CRI)Research Grant$100,000
Jackson LaboratoryResearch Grant$35,333
The Children's Hospital of Philadelphia (CHOP)Research Grant$30,791
...and 5 more grants made

Who funds Chordoma Foundation

Grants from foundations and other nonprofits
The Beckman Family FoundationCharitable Purposes$750,000
Herbert and Nell Singer FoundationGeneral & Unrestricted$70,000
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$54,800
...and 27 more grants received totalling $1,248,565

Personnel at Chordoma Foundation

Josh SommerExecutive Director and President$117,540
Tammy SilverthorneDirector of Operations
Shannon LozinskyDirector of Patient Services
Gillian ParrishHead of Engagement
Joan LevyDirector of Research$155,812
...and 3 more key personnel

Financials for Chordoma Foundation

RevenuesFYE 12/2021
Total grants, contributions, etc.$2,961,128
Program services$0
Investment income and dividends$1,432
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$25,080
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$98,114
Total revenues$3,085,754

Form 990s for Chordoma Foundation

Fiscal year endingDate received by IRSFormPDF link
2020-122021-06-29990View PDF
2019-122021-02-17990View PDF
2018-122020-01-10990View PDF
2017-122018-10-16990View PDF
2016-122017-09-28990View PDF
...and 7 more Form 990s
Data update history
May 8, 2023
Updated personnel
Identified 2 new personnel
August 13, 2022
Posted financials
Added Form 990 for fiscal year 2020
August 2, 2022
Updated personnel
Identified 3 new personnel
August 2, 2022
Received grants
Identified 6 new grant, including a grant for $750,000 from The Beckman Family Foundation
May 20, 2022
Used new vendors
Identified 3 new vendors, including , , and
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
HealthDiseases and disorders
Provides grantsConducts researchOperates internationallyNational levelReceives government fundingTax deductible donations
General information
PO Box 2127
Durham, NC 27702
Metro area
Durham-Chapel Hill, NC
Durham County, NC
Website URL
(919) 809-6779
IRS details
Fiscal year end
Taxreturn type
Form 990
Year formed
Eligible to receive tax-deductible contributions (Pub 78)
NTEE code, primary
H12: Medical Research Fund Raising and Fund Distribution
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
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