EIN 41-1984675

Child Neurology Foundation

IRS 501(c) type
501(c)(3)
Num. employees
11
Year formed
2000
Most recent tax filings
2022-12-01
NTEE code, primary
Description
CNF provides education, resources, and support for children with neurologic conditions. Funds research and offers community support.
Also known as...
Child Neurology Education and Research Foundation
Total revenues
$1,869,480
2022
Total expenses
$3,680,696
2022
Total assets
$2,744,200
2022
Num. employees
11
2022

Program areas at Child Neurology Foundation

RESEARCH GRANTS: Since 2001, CNF has proudly awarded grants and scholarships totaling over $4.87M to child neurologists, medical students, institutions, and researchers who are working on treatments and cures for pediatric ne urologic diseases. To encourage collaboration and increase research, the Foundation awarded a $150,000 Pediatric Epilepsy Research Foundation (PERF) Elterman and a $150,000 PERF Shields Research Grant in 2022 to support clinical or basic science research by a child neurologist or developmental pediatrician early in their academic career who are members of the Child Neurology Society. To further support interest in the field of child neurology, the Foundation also awarded three of the the Dr. Kenneth F. Swaiman Medical Student Scholarships in the amount of $5,000 for medical students interested in exploring a career in child neurology, plus $1,000 travel stipend for attendance at the Child Neurology Society Annual Meeting, and the Neurodevelopmental Disabilities Summer Research Scholarship of $3,500 to a medical student who has an interest in training in neurodevelopmental disabilities or child neurology.
COMMUNITY SUPPORT AND EDUCATION: In 2022 , CNF provided 75 families with Chromebooks and hotspots to better access telehealth, provided emotional support to over 190 families, reached over 550 clinicians with education, and built collaborations with over 50 other patient advocacy organizations. Program topics included family support, digital access, Infantile Spams Action Network, transition of care, and shortening the diagnostic odyssey, transition of care, care coordination, preventing epilepsy deaths, and clinical trials. CNF also collected insights from over 1,600 families and child neurologists via surveys and focus groups. This information influences the development of CNF programming going forward.

Grants made by Child Neurology Foundation

GranteeGrant descriptionAmount
Ann and Robert H Lurie Children's Hospital of Chicago2023 Perf Grant - $150,000; 2023 Transition of Care Quality Improvement Grant - $25,000$175,000
University of Rochester2023 Perf Grant - $150,000$150,000
TSC Alliance2022 Infantile Spasms Awareness Network Governance Grant - $36,375; 2022 Infantile Spasms Awareness Week Grant - $5,000$41,375
...and 4 more grants made

Who funds Child Neurology Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Pediatric Epilepsy Research Foundation (PERF)Research$305,000
Illumina Corporate FoundationBridging the Digital Divide - Digital Access Program$20,000
Aurelia Konrad Charitable FoundationGeneral Support$1,000
...and 2 more grants received

Personnel at Child Neurology Foundation

NameTitleCompensation
Greta WrightChief Operations Officer$191,270
Loren WoodVice President Marketing / Vice President , Advancement$103,847
Amy BrinExecutive Director$208,848
Brea Mccormley, MBADirector of Development
Katie HentgesDirector of Programs$102,756
...and 11 more key personnel

Financials for Child Neurology Foundation

RevenuesFYE 12/2022
Total grants, contributions, etc.$1,169,746
Program services$728,465
Investment income and dividends$-30,731
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$2,000
Total revenues$1,869,480

Form 990s for Child Neurology Foundation

Fiscal year endingDate received by IRSFormPDF link
2022-122023-07-31990View PDF
2021-122022-06-07990View PDF
2020-122021-09-29990View PDF
2019-122021-01-27990View PDF
2018-122019-08-17990View PDF
...and 8 more Form 990s
Data update history
December 24, 2023
Received grants
Identified 1 new grant, including a grant for $20,000 from Illumina Corporate Foundation
October 10, 2023
Updated personnel
Identified 2 new personnel
October 9, 2023
Updated personnel
Identified 1 new personnel
October 8, 2023
Posted financials
Added Form 990 for fiscal year 2022
October 8, 2023
Updated personnel
Identified 4 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersProfessional associationsDisease-focused nonprofitsCharities
Issues
HealthEducationMedical disciplines
Characteristics
Political advocacyConducts researchLobbyingOperates internationallyNational levelReceives government fundingEndowed supportTax deductible donations
General information
Address
PO Box 1226
Lexington, KY 40588
Metro area
Lexington-Fayette, KY
Website URL
childneurologyfoundation.org/ 
Phone
(888) 417-3435
IRS details
EIN
41-1984675
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2000
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G90: Medical Disciplines
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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