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EIN 26-1316274

Bobby Jones Chiari and Syringomyelia Foundation

IRS 501(c) type
501(c)(3)
Num. employees
5
City
Staten Island
State
New York
Year formed
2007
Most recent tax filings
2022-12-01
NTEE code, primary
G80: Specifically Named Diseases
Description
The Bobby Jones Chiari and Syringomyelia Foundation advances knowledge through research and educates the medical, allied sciences, and lay community about Chiari Malformation, Syringomyelia and related disorders. Fundraising events are held to raise donations for future research and awareness. These events include education on Chiari malformation, Syringomyelia and related disorders through DVD's and various speakers.
Also known as...
Chiari and Syringomyelia Foundation
Total revenues
$769,207
2022
Total expenses
$760,382
2022
Total assets
$885,796
2022
Num. employees
5
2022

Program areas at Bobby Jones Chiari and Syringomyelia Foundation

This consists of various fundraising events in which donations were raised for future research and awareness. These events consisted of educating on Chiari malformation, Syringomyelia and related disorders through dvd's and various speakers.

Who funds Bobby Jones Chiari and Syringomyelia Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$82,750
The Monkton InstituteGeneral Funding$68,063
Abba's Storehouse FoundationGeneral & Unrestricted$20,000
...and 13 more grants received

Personnel at Bobby Jones Chiari and Syringomyelia Foundation

NameTitleCompensation
Dorothy J PoppeExecutive Director$135,488
Pamela FennerSecretary$0
Lory WatsonDirector and Founding Member$0
Catherine LoughinTreasurer$0
Cameron Kim DawsonDirector$0
...and 7 more key personnel

Financials for Bobby Jones Chiari and Syringomyelia Foundation

RevenuesFYE 12/2022
Total grants, contributions, etc.$758,088
Program services$0
Investment income and dividends$11,119
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$769,207

Form 990s for Bobby Jones Chiari and Syringomyelia Foundation

Fiscal year endingDate received by IRSFormPDF link
2022-122023-03-31990View PDF
2020-122021-05-24990View PDF
2019-122022-02-15990View PDF
2018-122019-10-19990View PDF
2017-122018-11-15990View PDF
...and 8 more Form 990s

Organizations like Bobby Jones Chiari and Syringomyelia Foundation

OrganizationLocationRevenue
Lupus Foundation of America DC / MD / VA ChapterWashington, DC$761,790
United Mitochondrial Disease Foundation (UMDF)Pittsburgh, PA$3,021,406
Beyond CeliacAmbler, PA$2,656,405
International Dyslexia Association (IDA)Pikesville, MD$1,447,753
VHL AllianceBoston, MA$1,073,740
Lupus Foundation of New EnglandWorcester, MA$220,303
Cure HHTMonkton, MD$2,377,085
Dysautonomia InternationalEast Moriches, NY$1,133,539
Autoimmune AssociationClinton Township, MI$3,410,964
Cooley's Anemia FoundationNew York, NY$1,066,981
Data update history
June 15, 2023
Posted financials
Added Form 990 for fiscal year 2022
June 12, 2023
Updated personnel
Identified 3 new personnel
May 8, 2023
Received grants
Identified 1 new grant, including a grant for $5,000 from Robertson Foundation
February 4, 2023
Posted financials
Added Form 990 for fiscal year 2019
November 11, 2022
Used new vendors
Identified 4 new vendors, including , , , and
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Operates donor advised fundsConducts researchFundraising eventsNational levelCommunity engagement / volunteeringFundraising races, competitions, and tournamentsTax deductible donations
General information
Address
29 Crest LP
Staten Island, NY 10312
Metro area
New York-Newark-Jersey City, NY-NJ-PA
County
Richmond County, NY
Website URL
bobbyjonescsf.org/ 
Phone
(718) 966-2593
IRS details
EIN
26-1316274
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2007
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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