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EIN 26-1316274

Bobby Jones Chiari and Syringomyelia Foundation

IRS 501(c) type
501(c)(3)
Num. employees
5
City
Staten Island
State
New York
Year formed
2007
Most recent tax filings
2024-12-01
NTEE code, primary
G80: Specifically Named Diseases
Description
The Bobby Jones Chiari and Syringomyelia Foundation advances knowledge through research and educates the medical, allied sciences, and lay community about Chiari Malformation, Syringomyelia and related disorders. Fundraising events are held to raise donations for future research and awareness. These events include education on Chiari malformation, Syringomyelia and related disorders through DVD's and various speakers.
Also known as...
Chiari and Syringomyelia Foundation
Total revenues
$982,468
2024
Total expenses
$846,515
2024
Total assets
$1,306,327
2024
Num. employees
5
2024

Program areas at Bobby Jones Chiari and Syringomyelia Foundation

This consists of various fundraising events in which donations were raised for future research and awareness. These events consisted of educating on Chiari malformation, Syringomyelia and related disorders through media, presentations and various expert speakers.

Who funds Bobby Jones Chiari and Syringomyelia Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
The Monkton InstituteGeneral Funding$105,313
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$60,300
The Stanley E Hanson FoundationGeneral Support$15,000
...and 10 more grants received

Financials for Bobby Jones Chiari and Syringomyelia Foundation

RevenuesFYE 12/2024
Total grants, contributions, etc.$950,491
Program services$0
Investment income and dividends$31,977
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$982,468

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Data update history
May 30, 2025
Posted financials
Added Form 990 for fiscal year 2024
May 29, 2025
Updated personnel
Identified 3 new personnel
May 28, 2025
Received grants
Identified 1 new grant, including a grant for $1,000 from Neil and Ginny Gerald Family Foundation
January 14, 2025
Received grants
Identified 2 new grant, including a grant for $10,000 from Abba's Storehouse Foundation
January 5, 2025
Received grants
Identified 3 new grant, including a grant for $105,313 from The Monkton Institute
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Operates donor advised fundsConducts researchFundraising eventsNational levelCommunity engagement / volunteeringFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
Address
29 Crest LP
Staten Island, NY 10312
Metro area
New York-Newark-Jersey City, NY-NJ-PA
County
Richmond County, NY
Website URL
bobbyjonescsf.org/ 
Phone
(718) 966-2593
IRS details
EIN
26-1316274
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2007
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current
FTB status revoked
Not revoked
AG Registration Number
CT0203900
FTB Entity ID
None yet
AB 488 data last updated ("as-of") date
2025-08-06
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