Program areas at Bleeding Disorders Alliance Illinois
Education - the organization provides several education programs throughout the year which support comprehensive and medical care. The organization publishes a newsletter three times a year that reinforces the issues presented in specific educational presentations which includes potential resources for hemophiliacs to utilize.
Advocacy and general programs - the organization's programs include on-going training for the bleeding disorder community on self-advocacy and awareness on critical issues; meeting with state legislators and administrators to develop partnerships that support bleeding disorders; and participation on healthcare consortiums that share common interest with the organization.
Summer Camp - the organization conducts an annual summer camp for youths with hemophilia and related diseases.
Who funds Bleeding Disorders Alliance Illinois
Grants from foundations and other nonprofits
Personnel at Bleeding Disorders Alliance Illinois
| Name | Title | Compensation | Date of data |
|---|
| Kent Sheldon | Executive Director | $75,493 | 2023-12-31 |
| Robert Robinson | Former Executive Director | $26,848 | 2023-12-31 |
| Genny Moore | Treasurer | $0 | 2024-12-13 |
| Margo Schwartz-Newton | Secretary | $0 | 2024-12-13 |
| Sammie Valdez | Vice President | $0 | 2023-12-31 |
| ...and 15 more key personnel |
Financials for Bleeding Disorders Alliance Illinois
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $380,406 | $305,654 | 24.5% |
| Program services | $57,070 | $102,315 | -44.2% |
| Investment income and dividends | $530 | $678 | -21.8% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $-6,784 | $-3,947 | -71.9% |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $20,250 | $44,000 | -54% |
| Total revenues | $451,472 | $448,700 | 0.6% |
Organizations like Bleeding Disorders Alliance Illinois
| Organization | Type | Location | Revenue |
|---|
| The ALS Association - ALS Association of Georgia | 501(c)(3) | Sandy Springs, GA | $1,402,242 |
| Epilepsy Foundation of Colorado | 501(c)(3) | Centennial, CO | $951,288 |
| Spina Bifida Association of North Texas | 501(c)(3) | Arlington, TX | $122,995 |
| Epilepsy Association | 501(c)(3) | Orlando, FL | $813,501 |
| Epilepsy Foundation of Connecticut | 501(c)(3) | Middletown, CT | $389,163 |
| Als in the Heartland | 501(c)(3) | Omaha, NE | $848,401 |
| Epilepsy Foundation of Idaho | 501(c)(3) | Boise, ID | $175,229 |
| The Als Association - Central & Southern Ohio Chapter | 501(c)(3) | Columbus, OH | $1,532,034 |
| ParkinsonFoundationorg & PFNCA | 501(c)(3) | Olney, MD | $924,146 |
| The Bleeding Disorder Foundation of Washington | 501(c)(3) | Shoreline, WA | $493,323 |
Data update history
December 13, 2024
Updated personnel
Identified 1 new personnel
September 1, 2024
Posted financials
Added Form 990 for fiscal year 2023
August 31, 2024
Updated personnel
Identified 7 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthEducationDiseases and disorders
Characteristics
Political advocacyConducts researchFundraising eventsPeer-to-peer fundraisingState / local levelAuction fundraisersFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
- Address
- 210 S Des Plaines St
- Chicago, IL 60661
- Metro area
- Chicago-Naperville-Elgin, IL-IN-WI
- County
- Cook County, IL
- Website URL
- bdai.org/Â
- Phone
- (312) 427-1495
IRS details
- EIN
- 36-2390156
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1959
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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