Grantee | Grant description | Grant year | Amount |
---|---|---|---|
Juvenile Diabetes Research Foundation (JDRF) | Program Support | 2022-12 | $190,000 |
Kyler Cares Foundation QBO | Program Support | 2022-12 | $25,000 |
Willa's Wish Foundation | Program Support | 2022-12 | $25,000 |
...and 2 more grants made |
Grantmaker | Grantmaker tax period | Description | Amount |
---|---|---|---|
The Max Stenbeck Foundation Ea0339985 | 2021-12 | Program Support | $25,000,000 |
The Leona M and Harry B Helmsley Charitable Trust | 2022-03 | Diabetic Ketoacidosis (Dka) Campaign Phase 3 | $451,667 |
The Allergan Foundation | 2020-12 | Gastroparesis + Retinopathy Content Development | $50,000 |
...and 8 more grants received |
Name | Title | Compensation | Date of data |
---|---|---|---|
Deborah Dugan | Chief Executive Officer | $316,134 | 2023-11-15 |
Christel Aprigliano | Chief Advocacy Officer | $162,568 | 2021-12-31 |
Thom Scher | Past Chief Executive Officer and President / Chief Executive Officer / Chief Operating Officer | $190,473 | 2021-12-31 |
Tracey McCarter | Secretary and Treasurer / Director - Interim Chief Executive Officer / Director and Secretary and Chief Financial Officer | $0 | 2022-12-31 |
Sara Jensen | Chief Creative Officer / Creative Director | $136,022 | 2022-03-09 |
...and 2 more key personnel |
Revenues | FYE 12/2022 |
---|---|
Total grants, contributions, etc. | $4,454,134 |
Program services | $0 |
Investment income and dividends | $48,409 |
Tax-exempt bond proceeds | $0 |
Royalty revenue | $0 |
Net rental income | $0 |
Net gain from sale of non-inventory assets | $0 |
Net income from fundraising events | $-38,709 |
Net income from gaming activities | $0 |
Net income from sales of inventory | $3,245 |
Miscellaneous revenues | $0 |
Total revenues | $4,467,079 |
Fiscal year ending | Date received by IRS | Form | PDF link |
---|---|---|---|
2022-12 | 2023-11-15 | 990 | View PDF |
2021-12 | 2022-11-15 | 990 | View PDF |
2020-12 | 2021-11-15 | 990 | View PDF |
2019-12 | 2021-04-01 | 990 | View PDF |
2018-12 | 2019-11-08 | 990 | View PDF |
...and 5 more Form 990s |
Organization | Type | Location | Revenue |
---|---|---|---|
National MPS Society | 501(c)(3) | Durham, NC | $1,837,186 |
National Center for Learning Disabilities | 501(c)(3) | Washington, DC | $3,388,247 |
Prader-Willi Syndrome Association | USA (PWSA) | 501(c)(3) | Brandon, FL | $2,242,320 |
TSC Alliance | 501(c)(3) | Silver Spring, MD | $8,909,542 |
National Pku Alliance | 501(c)(3) | New York, NY | $2,213,963 |
Alpha-1 Foundation Alpha One Foundation | 501(c)(3) | Miami, FL | $10,890,084 |
Cure HHT | 501(c)(3) | Monkton, MD | $2,377,085 |
The National Fragile X Foundation | 501(c)(3) | Washington, DC | $3,240,795 |
Solve Me CFS Initiative | 501(c)(3) | Glendale, CA | $5,520,483 |
Lupus Foundation of America | 501(c)(3) | Washington, DC | $17,263,965 |
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