Cause IQ organization profile

Beyond Batten Disease Foundation

Program areas | Form 990s | Financials | Vendors | Personnel | Peers

Beyond Batten Disease Foundation is a organizations supporting multiple disease-focused nonprofit based in Austin, TX that was founded in 2008. As of 2019 they had $4.6 million in revenue and $3.5 million in assets.

Beyond Batten Disease Foundation was. Beyond Batten Disease Foundation was established to eradicate Batten disease by funding research to find a cure, and by developing a simple rare disease genetic test to detect the gene mutations for Batten disease...

EIN:
26-3223661
City:
State:
Website:
Founded:
2008
Type:
501(c)(3)
NTEE:
Revenue:
$4,640,638
Assets:
$3,529,982
Employees:
5
Fiscal year end:
June
Revenue trends:
Asset trends:

Program areas at Beyond Batten Disease Foundation

To accelerate the discovery and development of medicines to prevent, treat and cure juvenile Batten Disease. This is done through granting funds and contracting services with academic institutions, biotechnology companies, and other organizations with the capacity to assist in achieving our goals. The Foundation also spearheads the development of think-tank conferences and unique partnerships to drive juvenile Batten Disease research.

Form 990s for Beyond Batten Disease Foundation

Fiscal year endingDate received by IRSFormPDF link
2019-06Oct 6, 2020990View PDF
2018-06Feb 21, 2019990View PDF
2017-06Dec 15, 2017990View PDF
2016-06Jul 26, 2017990View PDF
2015-06Jan 20, 2016990View PDF
...and five more Form 990 PDFs

Financials for Beyond Batten Disease Foundation

Field2019
Total grants, contributions, etc.$4,652,945
Program services$0
Investment income and dividends$4,083
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$-16,390
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$4,640,638

Vendors for Beyond Batten Disease Foundation

VendorServicesAmount paidDate
DonorPerfectFundraising software2020-06-18
██████Fundraising software2020-06-18
███████ ███ ████Fundraising software; Payment processing2020-06-18
█████████Content management system software2020-06-18
████████ ███████Marketing software2020-06-18
██████ ███Software2020-03-17
██████ ███ ██████████ ███Tax accounting2020-03-01
█████ ████████ ███ ████Tax accounting2014-01-03

Personnel at Beyond Batten Disease Foundation

NameTitleCompensationMost recent data
Mary Beth KiserPresident and Chief Executive Officer$160,081Oct. 6, 2020
Danielle M. KerkovichPrincipal Scientist / Scientific Officer$131,346Sept. 29, 2020
███████ ██████████ ████Director of the Will Herndon Research Fund-Sept. 29, 2020
█████ █████████Communications Manager-Sept. 29, 2020
██ █████ ██████Chair Board / Board Chair$0Sept. 29, 2020
███ ███████Treasurer$0June 30, 2018
███████ █ ███████Vice President , Secr , Treasurer$0June 30, 2016

Peer organizations supporting multiple disease or disorder focused nonprofits

 NameTypeRevenueLocation
1Angelman Syndrome Foundation501(c)(3)$2.3 millionAurora, IL
2LeukemiaTexas501(c)(3)$1.2 millionIrving, TX
3The Morgan Adams Foundation501(c)(3)$1.3 millionDenver, CO
4CancerFree KIDS501(c)(3)$1.2 millionLoveland, OH
5Tower Cancer Research Foundation (TCRF)501(c)(3)$3.7 millionBeverly Hills, CA
6Project Purple501(c)(3)$1.4 millionSeymour, CT
7Hirshberg Foundation for Pancreatic Cancer Research501(c)(3)$1.8 millionLos Angeles, CA
8National Gaucher Foundation (NGF)501(c)(3)$5.5 millionRockville, MD
9The National Pancreas Foundation501(c)(3)$1.4 millionBethesda, MD
10Cancer Institute of New Jersey Foundation501(c)(3)$3.1 millionNew Brunswick, NJ
11Brain Aneurysm Foundation501(c)(3)$1.6 millionHanover, MA
12CONCERN Foundation501(c)(3)$2.2 millionLos Angeles, CA
13Foundation of Yuma Regional Medical Center501(c)(3)$1.7 millionYuma, AZ
14Rally Foundation501(c)(3)$4.3 millionAtlanta, GA
15The Alliance Pharmacy501(c)(3)$1.8 millionWestbury, NY
16American Parkinson Disease Association (APDA)501(c)(3)$11 millionStaten Island, NY
17Kay Yow Cancer Foundation501(c)(3)$2.0 millionRaleigh, NC
18Family Reach Foundation501(c)(3)$7.0 millionBoston, MA
19Bringing Hope Home501(c)(3)$1.6 millionMalvern, PA
20Lazarex Cancer Foundation501(c)(3)$3.0 millionDanville, CA
21Connecticut Cancer Foundation501(c)(3)$1.6 millionOld Saybrook, CT
22Kure It501(c)(3)$1.1 millionIrvine, CA
23Breast Cancer Alliance501(c)(3)$2.2 millionGreenwich, CT
24Les Turner ALS Foundation501(c)(3)$3.6 millionSkokie, IL
25Triple Negative Breast Cancer Foundation501(c)(3)$1.2 millionNorwood, NJ