Beyond Batten Disease Foundation is a organizations supporting multiple disease-focused nonprofit based in Austin, TX that was founded in 2008. As of 2019 they had $4.6 million in revenue and $3.5 million in assets.
Beyond Batten Disease Foundation was. Beyond Batten Disease Foundation was established to eradicate Batten disease by funding research to find a cure, and by developing a simple rare disease genetic test to detect the gene mutations for Batten disease...
To accelerate the discovery and development of medicines to prevent, treat and cure juvenile Batten Disease. This is done through granting funds and contracting services with academic institutions, biotechnology companies, and other organizations with the capacity to assist in achieving our goals. The Foundation also spearheads the development of think-tank conferences and unique partnerships to drive juvenile Batten Disease research.
Fiscal year ending | Date received by IRS | Form | PDF link |
---|---|---|---|
2019-06 | Oct 6, 2020 | 990 | View PDF |
2018-06 | Feb 21, 2019 | 990 | View PDF |
2017-06 | Dec 15, 2017 | 990 | View PDF |
2016-06 | Jul 26, 2017 | 990 | View PDF |
2015-06 | Jan 20, 2016 | 990 | View PDF |
...and five more Form 990 PDFs |
Field | 2019 |
---|---|
Total grants, contributions, etc. | $4,652,945 |
Program services | $0 |
Investment income and dividends | $4,083 |
Tax-exempt bond proceeds | $0 |
Royalty revenue | $0 |
Net rental income | $0 |
Net gain from sale of non-inventory assets | $0 |
Net income from fundraising events | $-16,390 |
Net income from gaming activities | $0 |
Net income from sales of inventory | $0 |
Miscellaneous revenues | $0 |
Total revenues | $4,640,638 |
Vendor | Services | Amount paid | Date |
---|---|---|---|
DonorPerfect | Fundraising software | 2020-06-18 | |
██████ | Fundraising software | 2020-06-18 | |
███████ ███ ████ | Fundraising software; Payment processing | 2020-06-18 | |
█████████ | Content management system software | 2020-06-18 | |
████████ ███████ | Marketing software | 2020-06-18 | |
██████ ███ | Software | 2020-03-17 | |
██████ ███ ██████████ ███ | Tax accounting | 2020-03-01 | |
█████ ████████ ███ ████ | Tax accounting | 2014-01-03 |
Name | Title | Compensation | Most recent data |
---|---|---|---|
Mary Beth Kiser | President and Chief Executive Officer | $160,081 | Oct. 6, 2020 |
Danielle M. Kerkovich | Principal Scientist / Scientific Officer | $131,346 | Sept. 29, 2020 |
███████ ██████████ ████ | Director of the Will Herndon Research Fund | - | Sept. 29, 2020 |
█████ █████████ | Communications Manager | - | Sept. 29, 2020 |
██ █████ ██████ | Chair Board / Board Chair | $0 | Sept. 29, 2020 |
███ ███████ | Treasurer | $0 | June 30, 2018 |
███████ █ ███████ | Vice President , Secr , Treasurer | $0 | June 30, 2016 |