Arizona Bleeding Disorders

Community education - promote community awareness through various conferences and other media:1. Virtual north american camping conference for Hemophilia organizations - annual conference for 200 national and international attendees to promote and enhance the summer camp experience of childern with Bleeding disorders.2. Virtual annual statewide educational symposium - brings together those with Bleeding Disorders and their families from across the state to provide education to help them better manage this chronic condition.3. Conducted an advocacy summit conference via zoom to promote awareness within the Bleeding disorder community and the general public.4. Conducted a virtual hispanic heritage day with the hispanic population affected by Bleeding Disorders to educate and support their unique struggles in their native language.5. Conducted a (now) conference (national educational conference for individuals and families who are living with vonwillebrands).

Community support programs - provide education and support group meetings including:1. Quarterly meetings for the community as a whole that include education, pharmaceutical information, and time for interaction.2. Educational meetings that included: a. Learning to disclose your Bleeding disorder in a safe way. B. Understanding insurance and options available to our community. C. how to interact with legislators to promote insurance reform. D. nutrition and exercise - how to improve quality of life. E. mental health - how to improve quality of life. F. educational meetings for spanish-speaking community. G. on-going program for at-risk youth.

Health center - adult health center established to provide primary care and Bleeding Disorders care to treat the whole person. It is open to those with Bleeding Disorders and their adult family members. Aha purchased a building and renovated it for the health center. The program was discontinued in september 2021 and the buidling was subsequently sold.

Family assistance - provide emergency and temporary financial assistance to Hemophilia patients and their families. Lifeline- provides assistance for medical bills, insurance premiums and cobra payment assistance for the community.