EIN 23-7124261

American Kidney Fund (AKF)

IRS 501(c) type
501(c)(3)
Num. employees
105
Year formed
1971
Most recent tax filings
2022-12-01
NTEE code, primary
Description
The American Kidney Fund's vision is a world without kidney disease. Until that day comes, every kidney patient should have access to health care, and every person at risk for kidney disease should be empowered to prevent it.
Total revenues
$342,102,742
2022
Total expenses
$313,631,959
2022
Total assets
$89,141,143
2022
Num. employees
105
2022

Program areas at AKF

Patient assistance:in 2022, we helped more than 73,000 low-income Kidney failure patients in all 50 states gain access to lifesaving healthcare, including dialysis and transplant, by providing need-based grants to pay for health insurance premiums, transportation to treatment, prescription medications and nutritional products, and emergency assistance in the wake of natural disasters. With akf's support for health coverage they otherwise could not afford, nearly 1,800 dialysis patients had lifesaving Kidney transplants and post-transplant care, representing nearly 7% of all u.s. Kidney transplants performed in 2022. We provided nearly 2,500 dialysis patients disaster relief assistance in the wake of hurricanes, floods, and wildfires. Patients seeking help from akf must demonstrate financial need through completion of a grant application. On average, our grant recipients have total household incomes less than $25,000 per year.
Research:established in 1988, akf's clinical scientist in nephrology program has provided research funding to many of nephrology's brightest scholars. Many former csn fellows have gone on to distinguished careers in the field, conducting groundbreaking research that advances knowledge and treatment of Kidney disease. In 2022, akf selected two new fellows: dr. janewit wongboosin from brigham and women's hospital and dr. jillian caldwell from stanford university school of medicine. Dr. wongboosin will study the genetic signatures of nephrotic syndrome through an existing electronic health record-linked biobank of 130,000 participants. Dr. caldwell will examine the interplay between immunologic matching in Kidney transplants and equitable access to transplantation.akf took major steps in addressing the problem of unknown causes of Kidney disease (uckd) by implementing aspects of akf's uckd roadmap. These included conducting a wide-ranging survey of 300 healthcare professionals, creating a cme course and the creation of a uckd coalition focused on legislative and policy efforts. The survey data was presented at two national scientific conferences and akf also convened a virtual summit of its uckd workgroups in december.
Public education, awareness and prevention activities:awareness and prevention37 million americans have chronic Kidney disease (ckd), and most don't realize they have it. Akf's education programs help individuals identify their risks for ckd and manage ckd, Kidney failure and co-morbidities. We reached millions of people in 2022 with awareness and prevention information on our website. A hallmark of this work was our third annual Kidney action week, held from june 6-10, 2022. The virtual educational event was streamed through a digital conference platform and simulcasted through akf's facebook and youtube social channels. More than 4,000 people preregistered for the event, with more than 8,500 viewing the live sessions through all channels. The archived views of the Kidney action week sessions have been viewed nearly 44,000 times. Public educationwe continually enhance our education content and offerings. In 2022, we launched a completely redesigned version of our website, kidneyfund.org. We invested significant effort into making the site more user-friendly for our visitors, with richer health education content. The site had more than 14 million pageviews as we continued to add new content, including educational information about coping with the pandemic; our Kidney kitchen resource featuring in-depth diet and nutrition information; and expanded information on anemia, gout, lupus, rare diseases and many other topics. We also published many additional pages for our spanish-language website. We continued to run awareness campaigns which focus on managing various aspects of Kidney disease and its co-morbidities. We also continued to provide our Kidney health coach peer-to-peer community outreach program. For children, living with Kidney disease is extremely challenging. We provide a nationwide art contest for pediatric Kidney patients, giving them an opportunity to be recognized for their artistic talents. Thirteen drawings were chosen for the calendar and we recognized the winning cover artist at our gala, the hope affair, in Washington, dc. Engaging patients and caregivers around advocacy issues is another important initiative. We held a virtual fly-in as well as a congressional briefing on health disparities. Akf is a strong and independent voice advocating for policies that improve access to health care and strengthen the quality of care for individuals with Kidney disease. We work with congress, the administration, federal agencies, and state governments to advance legislation and regulatory policies important to Kidney patients and their families. We published our second annual "state of the states: living donor protection report card," which holds each state accountable for the laws it has in place to make it easier for people to be living Kidney donors.professional educationakf develops courses that are provided online and meet the continuing education requirements for professionals who treat Kidney patients. In 2022, we registered more than 11,000 courses completed by social workers, dialysis technicians, dietitians, health educators and other renal care professionals. The growth in this area was due to the creation of two new accredited courses on early ckd diagnosis and anemia , as well as three a new non-accredited professional webinar courses on apol-1, gout and fabry disease.

Who funds American Kidney Fund (AKF)

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Dialysis ClinicDonation for General Support$5,000,000
Wake Forest University Health Sciences Group ReturnFinancial Assistance Program for Qualified Kidney Patients$1,455,800
Robert I. Schattner FoundationGeneral Support$250,000
...and 150 more grants received totalling $8,348,432

Personnel at AKF

NameTitleCompensation
Lavarne A. BurtonChief Executive Officer$803,781
Tara BunchExecutive Vice President and Chief Operating Officer$405,509
Michael NosilChief Financial Officer and SR Director of Finance and Administration
Julianne PuzzoVice President of Development and Chief Development Officer
Tamara RuggieroVice President and Chief Communications and Marketing Officer$338,573
...and 30 more key personnel

Financials for AKF

RevenuesFYE 12/2022
Total grants, contributions, etc.$341,074,995
Program services$590
Investment income and dividends$413,387
Tax-exempt bond proceeds$0
Royalty revenue$74,700
Net rental income$0
Net gain from sale of non-inventory assets$425,070
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$114,000
Total revenues$342,102,742

Form 990s for AKF

Fiscal year endingDate received by IRSFormPDF link
2022-122023-04-19990View PDF
2021-122022-04-21990View PDF
2020-122021-05-28990View PDF
2019-122020-10-07990View PDF
2018-122019-06-19990View PDF
...and 8 more Form 990s
Data update history
February 3, 2024
Received grants
Identified 37 new grant, including a grant for $1,455,800 from Wake Forest University Health Sciences Group Return
October 26, 2023
Received grants
Identified 15 new grant, including a grant for $5,000,000 from Dialysis Clinic
August 19, 2023
Received grants
Identified 64 new grant, including a grant for $5,020,702 from Dialysis Clinic
August 11, 2023
Posted financials
Added Form 990 for fiscal year 2021
July 13, 2023
Used new vendors
Identified 17 new vendors, including , , , , , , , , , , , , , , , , and
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingFundraising eventsNational levelEndowed supportCommunity engagement / volunteeringFundraising races, competitions, and tournamentsTax deductible donations
General information
Address
11921 Rockville Pike 300
Rockville, MD 20852
Metro area
Washington-Arlington-Alexandria, DC-VA-MD-WV
Website URL
kidneyfund.org/ 
Phone
(800) 638-8299
Facebook page
AmericanKidneyFund 
Twitter profile
@kidneyfund 
IRS details
EIN
23-7124261
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1971
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G44: Kidney Disease
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Central organization
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