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EIN 82-2473513

Cure Rare Disease

IRS 501(c) type
501(c)(3)
Num. employees
7
City
Woodbrdge
State
Connecticut
Year formed
2018
Most recent tax filings
2022-07-01
NTEE code, primary
G12: Voluntary Health Associations and Medical Disciplines Fund Raising and Fund Distribution
Description
Cure Rare Disease enables and finances the development of life-saving genetic medicines for ultra-rare patient populations previously deemed too rare to treat. Their unique ecosystem facilitates collaboration between world-renowned researchers to advance the development of ultra-rare disease therapeutics.
Also known as...
Terrys Foundation for Muscular Dystrophy
Total revenues
$2,797,783
2022
Total expenses
$3,210,905
2022
Total assets
$839,519
2022
Num. employees
7
2022

Program areas at Cure Rare Disease

To advance the development of ultra-rare Disease therapeutics.

Who funds Cure Rare Disease

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$274,245
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$274,245
America's Charities (AC)General Support$59,529
...and 19 more grants received totalling $751,574

Personnel at Cure Rare Disease

NameTitleCompensation
Richard HorganExecutive Director$74,845
Sarah KriegerDirector of Community Engagement
Melissa Hunter EnsorChairwoman$0

Financials for Cure Rare Disease

RevenuesFYE 07/2022
Total grants, contributions, etc.$2,645,017
Program services$0
Investment income and dividends$6,232
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$81,897
Net income from fundraising events$61,872
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$2,765
Total revenues$2,797,783

Form 990s for Cure Rare Disease

Fiscal year endingDate received by IRSFormPDF link
2022-072023-08-07990View PDF
2021-072022-05-25990View PDF
2020-072021-06-15990View PDF
2019-072021-03-19990View PDF
2018-072018-11-15990EZView PDF

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Eagles Autism ChallengePhiladelphia, PA$7,420,791
American Childrens Cancer FoundationHuntington, NY$871,732
Children's Cancer Fund of AmericaBrentwood, TN$2,589,913
Brain Treatment FoundationIrving, TX$931,579
Aid for Aids (AFA)New York, NY$7,081,886
Data update history
October 25, 2023
Received grants
Identified 2 new grant, including a grant for $14,633 from The Blackbaud Giving Fund
October 9, 2023
Posted financials
Added Form 990 for fiscal year 2022
October 9, 2023
Updated personnel
Identified 2 new personnel
September 28, 2023
Used new vendors
Identified 1 new vendor, including
August 31, 2023
Updated personnel
Identified 8 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsFundraising races, competitions, and tournamentsTax deductible donations
General information
Address
4 Research Dr
Woodbrdge, CT 06525
Metro area
New Haven-Milford, CT
Website URL
cureraredisease.org/ 
Phone
(607) 215-6401
IRS details
EIN
82-2473513
Fiscal year end
July
Taxreturn type
Form 990
Year formed
2018
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G12: Voluntary Health Associations and Medical Disciplines Fund Raising and Fund Distribution
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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