Program areas at The Sudc Foundation
In 2020, The Foundation served over 1,000 families, offering various support services including but not limited to: - expanding our virtual services to include online social hours, special online programming and an inaugural virtual retreat to help our community connect while maintaining their health and safety during a global pandemic.- personalized support by a social worker - unique online and targeted email support groups - peer support programs matching specially trained volunteer family members who are farther removed from their loss with newly bereaved family members.- resources to support The unique needs of grieving parents, siblings and grandparents. - monthly support group meetings online and in person. - memorial tribute pages for Sudc children
The Sudc Foundation funds research crucial to increasing The understanding of The characteristics, circumstances, medical histories and pathologies of children from ages 11 months through 18 years who have died suddenly and unexpectedly, and in some instances, without explanation.
In 2020, advocacy included, but was not limited to: - publishing a first-of-its kind book, unexplained pediatric deaths: investigation, certification and family needs, establishing The first-ever national consensus guidelines in The u.s. to fill crucial needs to determine why unexplained pediatric deaths happen and support families after The tragedy. - supporting The passage of scarlett's sunshine on sudden unexpected death act, federal legislation to strengthen existing efforts to understand suid and Sudc better, facilitate data collection and analysis, improve preventative efforts, and support children and families. Providing information and resources through our website and social media platforms - a monthly digital newsletter. - annual printed and mailed newsletter. - individualized case advocacy to assist families with navigating The death investigation process. - family advocate to assist families wishing to pursue banking of their child's dna. - event planning support for those wishing to raise awareness or raise funds for Sudc Foundation. - participation in conferences and leading presentations to educate professionals on Sudc and on The resources available from The Sudc Foundation.- conceived, established and spearhead yearly campaign to honor march as Sudc awareness month
Grants made by The Sudc Foundation
| Grantee | Grant description | Grant year | Amount |
|---|
| NYU Langone Health | Funding of Neuropathology Research and Sudc Registry and Research Collaborative | 2019-12 | $275,000 |
Who funds The Sudc Foundation
Grants from foundations and other nonprofits
Personnel at The Sudc Foundation
| Name | Title | Compensation | Date of data |
|---|
| Tina Yun Lee | Executive Director | | 2022-05-18 |
| Elizabeth Milliken | Director of Development | | 2022-05-18 |
| Stephanie Zarecky | Public Relations Manager | | 2021-03-15 |
| Sarah Morrison | Business Office Manager | | 2022-05-18 |
| Laura Crandall | Officer | $0 | 2021-03-31 |
| ...and 2 more key personnel |
Financials for The Sudc Foundation
| Revenues | FYE 12/2020 | FYE 12/2019 | % Change |
|---|
| Total grants, contributions, etc. | $888,212 | $818,424 | 8.5% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $23,650 | $4,375 | 440.6% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $6,435 | $-6,422 | 200.2% |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $30,509 | $1,658 | 1740.1% |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $948,806 | $818,035 | 16% |
Organizations like The Sudc Foundation
| Organization | Type | Location | Revenue |
|---|
| Hydrocephalus Association (HA) | 501(c)(3) | Bethesda, MD | $3,247,779 |
| National Down Syndrome Society (NDSS) | 501(c)(3) | New York, NY | $3,450,089 |
| Arthritis Foundation Upper Midwest Region | 501(c)(3) | St Paul, MN | $2,891,319 |
| National Tay-Sachs and Allied Diseases Association | 501(c)(3) | Brighton, MA | $1,320,048 |
| New England Hemophilia Association | 501(c)(3) | Dedham, MA | $1,171,995 |
| American Council of the Blind | 501(c)(3) | Alexandria, VA | $1,844,532 |
| National Society to Prevent Blindness / Prevent Blindness America | 501(c)(3) | Chicago, IL | $3,840,707 |
| The Als Association - Amyotrophic Lateral Sclerosis Association | 501(c)(3) | Tampa, FL | $2,660,252 |
| CaringKind | 501(c)(3) | New York, NY | $3,485,894 |
| Arizona Hemophilia Association | 501(c)(3) | Phoenix, AZ | $2,335,637 |
Data update history
August 2, 2022
Received grants
Identified 1 new grant, including a grant for $8,161 from PayPal Giving Fund July 21, 2022
Posted financials
Added Form 990 for fiscal year 2020
May 18, 2022
Updated personnel
Identified 2 new personnel
August 23, 2021
Posted financials
Added Form 990 for fiscal year 2019
Nonprofit Types
Social advocacy organizationsMedical research organizationsCharities
Issues
HealthHuman rightsDiseases and disorders
Characteristics
Political advocacyProvides grantsConducts researchLobbyingFundraising eventsPeer-to-peer fundraisingNational levelCommunity engagement / volunteeringFundraising races, competitions, and tournamentsTax deductible donations
General information
- Address
- 12030 Sunrise Valley Dr No 450
- Reston, VA 20191
- Metro area
- Washington-Arlington-Alexandria, DC-VA-MD-WV
- Website URL
- sudc.org/Â
- Phone
- (703) 437-9720
IRS details
- EIN
- 46-5008779
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2014
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- H01: Medical Research Alliances and Advocacy
- NAICS code, primary
- 813319: Social Advocacy Organizations
- Parent/child status
- Independent
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