Program areas at ALS
Care services - helping people with Als and their families live as full a life as possible through direct programs for people living with Als (see schedule 0 for detail), support groups, phone support, and referrals.
Public awareness - educate and inform The public about The nature of Als through advocacy, newsletters, social media and events.
Research - The Als Association, Minnesota/ North dakota/south Dakota Chapter is an affiliate of The national Als Association. Each year since its founding in 1985, The national Als Association has increased its investment in research grants. Since The ice bucket challenge, The Als Association has invested $122 million in The quest to unlock The mysteries of Als. In The past 25 years The Minnesota /North Dakota /South Dakota Chapter has helped raise more than $5.0 million for Als research.the Als Association funds more Als research than any other organization and its research enterprise is recognized in The Als community for its scope and diversity. Currently, The Association is funding 162 active projects globally. Projects are milestone driven, which enables The Association to redirect dollars when The science demonstrates that one approach is not feasible, and another is more promising.
Who funds The Als Association - Amyotrophic Lateral Sclerosis Association -- Minnesota North Dakota South Dakota (ALS)
Grants from foundations and other nonprofits
Personnel at ALS
Name | Title | Compensation | Date of data |
---|
Jennifer Hjelle | Chief Executive Officer / Executive Director | $145,078 | 2022-04-12 |
Julie Smith | Vice President , Development | | 2022-04-12 |
Marianne Keuhn | Managing Director , Care Services | | $120,508 | 2024-01-08 |
Greg Mitchell | President | | 2024-01-31 |
Sarah Lettow | Managing Director, Volunteer Engagement | | 2024-01-08 |
...and 9 more key personnel |
Financials for ALS
Revenues | FYE 01/2022 | FYE 01/2021 | % Change |
---|
Total grants, contributions, etc. | $4,662,324 | $4,155,841 | - |
Program services | $0 | $0 | - |
Investment income and dividends | $63,341 | $55,564 | - |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $-83,084 | $-71,695 | - |
Net income from fundraising events | $-78,493 | $-85,675 | - |
Net income from gaming activities | $8,055 | $7,580 | - |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $0 | $0 | - |
Total revenues | $4,572,143 | $4,061,615 | - |
Organizations like ALS
Organization | Type | Location | Revenue |
---|
ALS Association St Louis Regional Chapter | 501(c)(3) | Saint Louis, MO | $2,624,591 |
The Als Association - Greater New York Chapter | 501(c)(3) | New York, NY | $4,837,719 |
The Als Association - Amyotrophic Lateral Sclerosis Association | 501(c)(3) | Indianapolis, IN | |
The ALS Association - ALS Association Golden West Chapter | 501(c)(3) | Woodland Hills, CA | $10,245,280 |
ALS Association of Georgia | 501(c)(3) | Atlanta, GA | $1,495,964 |
The Als Association - Central & Southern Ohio Chapter | 501(c)(3) | Columbus, OH | $1,532,034 |
The ALS Association - ALS Association Wisconsin Chapter | 501(c)(3) | Wauwatosa, WI | |
The Als Association - Greater Philadelphia Chapter | 501(c)(3) | Ambler, PA | $5,908,214 |
The Als Association - Arizona Chapter | 501(c)(3) | Phoenix, AZ | $1,372,285 |
The ALS Association - ALS Association Texas Chapter | 501(c)(3) | Dallas, TX | $3,702,107 |
Data update history
March 4, 2024
Updated personnel
Identified 1 new personnel
March 1, 2024
Posted financials
Added Form 990N for fiscal year 2024
January 8, 2024
Updated personnel
Identified 2 new personnel
October 25, 2023
Received grants
Identified 5 new grant, including a grant for $1,335,000 from Never Surrender Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsChapter / child organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingPeer-to-peer fundraisingState / local levelGala fundraisersFundraising races, competitions, and tournamentsTax deductible donationse-Postcard filer
General information
- Address
- 1919 University Ave W 175
- Saint Paul, MN 55104
- Metro area
- Minneapolis-St. Paul-Bloomington, MN-WI
- County
- Ramsey County, MN
- Website URL
- als.org/mn-nd-sdÂ
- Phone
- (612) 672-0484
- Facebook page
- ALSAssociationMNNDSDÂ
- Twitter profile
- @alsa_mnndsdÂ
IRS details
- EIN
- 41-1756085
- Fiscal year end
- January
- Taxreturn type
- Form 990-N / Postcard
- Year formed
- 1993
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Child within group exemption
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