EIN 41-1756085

The Als Association - Amyotrophic Lateral Sclerosis Association -- Minnesota North Dakota South Dakota (ALS)

IRS 501(c) type
501(c)(3)
Num. employees
Unknown
Year formed
1993
Most recent tax filings
2024-01-01
Description
Until there is a cure, empower people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support while contributing to the fight to treat and cure ALS through global research and advocacy.
Related structure
ALS is child organization, under the parent exemption from ALS Association (ALS).
Also known as...
The Als Association Minnesota North Dakota South Dakota Chapter; Amyotrophic Lateral Sclerosis Association -- Minnesota North Dakota South Dakota; Amyotrophic Lateral Sclerosis Association Minnesota Chapter; Minnesota North Dakota South Dakota; Als Association MNNDSD Chapter
Total revenues
n/a
Total expenses
n/a
Total assets
n/a
Num. employees
n/a

Program areas at ALS

Care services - helping people with Als and their families live as full a life as possible through direct programs for people living with Als (see schedule 0 for detail), support groups, phone support, and referrals.
Public awareness - educate and inform The public about The nature of Als through advocacy, newsletters, social media and events.
Research - The Als Association, Minnesota/ North dakota/south Dakota Chapter is an affiliate of The national Als Association. Each year since its founding in 1985, The national Als Association has increased its investment in research grants. Since The ice bucket challenge, The Als Association has invested $122 million in The quest to unlock The mysteries of Als. In The past 25 years The Minnesota /North Dakota /South Dakota Chapter has helped raise more than $5.0 million for Als research.the Als Association funds more Als research than any other organization and its research enterprise is recognized in The Als community for its scope and diversity. Currently, The Association is funding 162 active projects globally. Projects are milestone driven, which enables The Association to redirect dollars when The science demonstrates that one approach is not feasible, and another is more promising.

Who funds The Als Association - Amyotrophic Lateral Sclerosis Association -- Minnesota North Dakota South Dakota (ALS)

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Never SurrenderDonations$1,335,000
Saint Paul and Minnesota FoundationMultiple Grants for Multiple Purposes$109,743
American Online Giving FoundationGeneral Support$103,930
...and 23 more grants received totalling $1,841,131

Personnel at ALS

NameTitleCompensation
Jennifer HjelleChief Executive Officer / Executive Director$145,078
Julie SmithVice President , Development
Marianne KeuhnManaging Director , Care Services |$120,508
Greg MitchellPresident
Sarah LettowManaging Director, Volunteer Engagement
...and 9 more key personnel

Financials for ALS

RevenuesFYE 01/2022
Total grants, contributions, etc.$4,662,324
Program services$0
Investment income and dividends$63,341
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$-83,084
Net income from fundraising events$-78,493
Net income from gaming activities$8,055
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$4,572,143

Form 990s for ALS

Fiscal year endingDate received by IRSFormPDF link
2024n/a990-N (e-Postcard)
2022-012022-07-13990View PDF
2021-012021-07-26990View PDF
2020-012020-12-07990View PDF
2019-012019-11-01990View PDF
...and 9 more Form 990s
Data update history
March 4, 2024
Updated personnel
Identified 1 new personnel
March 1, 2024
Posted financials
Added Form 990N for fiscal year 2024
February 4, 2024
Received grants
Identified 5 new grant, including a grant for $50,000 from David and Janis Larson Foundation
January 8, 2024
Updated personnel
Identified 2 new personnel
October 25, 2023
Received grants
Identified 5 new grant, including a grant for $1,335,000 from Never Surrender
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsChapter / child organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingPeer-to-peer fundraisingState / local levelGala fundraisersFundraising races, competitions, and tournamentsTax deductible donationse-Postcard filer
General information
Address
1919 University Ave W 175
Saint Paul, MN 55104
Metro area
Minneapolis-St. Paul-Bloomington, MN-WI
County
Ramsey County, MN
Website URL
als.org/mn-nd-sd 
Phone
(612) 672-0484
Facebook page
ALSAssociationMNNDSD 
Twitter profile
@alsa_mnndsd 
IRS details
EIN
41-1756085
Fiscal year end
January
Taxreturn type
Form 990-N / Postcard
Year formed
1993
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Child within group exemption
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