EIN 94-3124732

The Als Association - Amyotrophic Lateral Sclerosis Association

IRS 501(c) type
501(c)(3)
Num. employees
33
City
State
Year formed
1987
Most recent tax filings
2023-01-01
Description
The Als Association improves the lives of people living with ALS and funds research to discover treatments and a cure.
Also known as...
Amyotrophic Lateral Sclerosis Association; The Als Association Florida Chapter; Florida Chapter
Total revenues
$3,983,976
2023
Total expenses
$4,341,253
2023
Total assets
$2,179,124
2023
Num. employees
33
2023

Program areas at The Als Association - Amyotrophic Lateral Sclerosis Association

Care services: The Als Association Florida Chapter provided a wide range of services and programs to help people living with lou gehrig's disease. The Chapter served 1,779 patients in fiscal year 2023. Programs included: 1) partnership with 12 multidisciplinary Als clinics in The state of Florida, which include in-kind staff support, providing 2030 clinic visits; 2) a network of ten care services staff who helped patients, families, and caregivers navigate The physical, social, emotional, and financial effects of Als through case management, social work services, referrals, assessments, education and government/veteran benefits/insurance advocacy; 3) 10 monthly/bimonthly virtual support/resource groups offered to all registered patients throughout Florida, 132 meetings held in fy2023; (continued on schedule o)4) loaned medical equipment and assistive technology programs that provided 435 pieces of durable medical equipment and assistive augmented communication devices to patients in need; 5) Als specialty home health coordination; 6) funding for 173 monetary grants to patients that provided 2202 hours of respite care, as well as home modifications, van modifications, transportation, medical equipment not covered by insurance, and other financial needs; 7) The rick and sherry murray medical futures scholarship fund, providing scholarships to 1 student; 8) one hope and help symposium, a full-day event that featured informative sessions for patients, caregivers, and supporters of people with Als and included important keynote speakers, a vendor fair, opportunities to "ask The docs, and an ambassador of hope. The fy2023 event was held in orlando and 229 attended.
Awareness: through public outreach, media relations, online platforms, Chapter collateral, and social media, The Als Association Florida Chapter continued to raise awareness about Als, The people we serve, our public policy goals, and The search for a treatment and cure. Our website is an invaluable source of information for those living with Als and people looking for The latest information about The disease. Chapter collateral such as brochures, infographic handouts, and flyers provided our constituents in The communities we serve with timely information about The Chapter and The achievement of our mission priorities.
Research: The Als Association Florida Chapter, through The Als Association, has funded research at several renowned research centers in The state including The mayo clinic in jacksonville, The university of south Florida in tampa, The university of Florida in gainesville and jacksonville, The university of miami, and holy cross. Florida patients and researchers participate in a variety of studies including biomarker, drug development, genetics, disease mechanism, observational/natural history, and symptom management. The Chapter also work to encourage people living with Als to register with The national Als registry through The centers for disease control and prevention.
Advocacy: The Als Association Florida Chapter supports The Als Association's advocacy agenda including appropriations, legislation, and regulatory affairs.

Grants made by The Als Association - Amyotrophic Lateral Sclerosis Association

GranteeGrant descriptionAmount
ALS Association (ALS)Research$1,503,254

Who funds The Als Association - Amyotrophic Lateral Sclerosis Association

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Vanguard Charitable Endowment ProgramFor Recipient's Exempt Purpose$51,000
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$32,480
The Community Foundation for Northeast FloridaJacksonville Als Walk - Duval Motor Company Team$25,000
...and 32 more grants received totalling $279,413

Personnel at The Als Association - Amyotrophic Lateral Sclerosis Association

NameTitleCompensation
Greg MitchellPresident and Chief Executive Officer
Neil Thakur, Ph.D.Chief Financial Officer
Tina ZeffChief Mission Officer
Ray CarsonPast President and Chief Executive Officer$163,308
Sharon MaybrookSecretary / Trustee$0
...and 5 more key personnel

Financials for The Als Association - Amyotrophic Lateral Sclerosis Association

RevenuesFYE 01/2023
Total grants, contributions, etc.$3,972,126
Program services$0
Investment income and dividends$17,504
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$235,100
Net income from fundraising events$-240,754
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$3,983,976

Form 990s for The Als Association - Amyotrophic Lateral Sclerosis Association

Fiscal year endingDate received by IRSFormPDF link
2023-012023-12-05990View PDF
2022-012022-11-21990View PDF
2021-012021-12-13990View PDF
2020-012021-04-05990View PDF
2019-012019-10-25990View PDF
...and 9 more Form 990s
Data update history
February 4, 2024
Updated personnel
Identified 1 new personnel
February 3, 2024
Posted financials
Added Form 990 for fiscal year 2023
February 3, 2024
Used new vendors
Identified 2 new vendors, including , and
January 3, 2024
Updated personnel
Identified 4 new personnel
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofits
Issues
HealthDiseases and disorders
Characteristics
Political advocacyProvides grantsConducts researchLobbyingPartially liquidatedFundraising eventsPeer-to-peer fundraisingState / local levelReceives government fundingEndowed supportCommunity engagement / volunteeringProvides scholarshipsFundraising races, competitions, and tournaments
General information
Address
501 E Kennedy Blvd 1400
Tampa, FL 33602
Metro area
Tampa-St. Petersburg-Clearwater, FL
County
Hillsborough County, FL
Website URL
als.org/florida 
Phone
(813) 637-9000
Facebook page
ALSFlorida 
Twitter profile
@alsflorida 
IRS details
EIN
94-3124732
Fiscal year end
January
Taxreturn type
Form 990
Year formed
1987
Eligible to receive tax-deductible contributions (Pub 78)
No
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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