Program areas at The Als Association - Als Association North Carolina Chapter
Care services is a program that serves families living with Als in all 100 counties in North Carolina. Despite The disruption caused by The ongoing covid-19 pandemic, no cuts were made to any crucial programs or services. The Als Association North Carolina Chapter continues to support all Als clinics in North Carolina, maintain a medical equipment loan program, host monthly support groups, and provide financial support to families to help alleviate stress related to The cost of medical treatments and services for Als as identified in The focus survey "understanding insurance needs and financial burdens." In The 2023 fiscal year alsnc held 104 support group meetings, loaned 501 pieces of durable medical equipment, paid for more than 3,300 hours of in-home care, and supported our multidisciplinary clinics that served more than 1,000 patients.
The public education and awareness program is designed to increase understanding, education, and awareness of The impact of Als and The role that The Association plays in providing care services, advancing global Als research, and advancing important public policy initiatives.
The global research program provides funding to The Als Association national office to support international medical research to discover effective treatments and a cure for Als.
Who funds The Als Association - Als Association North Carolina Chapter
Grants from foundations and other nonprofits
Personnel at The Als Association - Als Association North Carolina Chapter
| Name | Title | Compensation | Date of data |
|---|
| Dave Shore | President and Chief Executive Officer | | 2024-02-08 |
| Anthony Boor | Chief Financial Officer, and Executive Vice President of Finance and Administration | | 2022-02-16 |
| Catherine Lacour | Chief Marketing Officer | | 2022-02-16 |
| Todd Lant | Chief Information Officer | | 2022-02-16 |
| Margaret Driscoll | Chief People and Culture Officer | | 2022-02-16 |
| ...and 24 more key personnel |
Financials for The Als Association - Als Association North Carolina Chapter
| Revenues | FYE 01/2023 | FYE 01/2022 | % Change |
|---|
| Total grants, contributions, etc. | $2,387,308 | $2,600,340 | -8.2% |
| Program services | $11,750 | $0 | 999% |
| Investment income and dividends | $133,702 | $179,500 | -25.5% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $-49,233 | $-27,183 | -81.1% |
| Net income from fundraising events | $-215,144 | $-120,812 | -78.1% |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $5,801 | $0 | 999% |
| Total revenues | $2,274,184 | $2,631,845 | -13.6% |
Organizations like The Als Association - Als Association North Carolina Chapter
| Organization | Type | Location | Revenue |
|---|
| ALS Association St Louis Regional Chapter | 501(c)(3) | Saint Louis, MO | $2,624,591 |
| The Als Association - Greater New York Chapter | 501(c)(3) | New York, NY | $4,837,719 |
| The Als Association Minnesota North Dakota South Dakota Chapter | 501(c)(3) | St Paul, MN | $4,572,143 |
| The Als Association - Central & Southern Ohio Chapter | 501(c)(3) | Columbus, OH | $1,532,034 |
| ALS Association of Georgia | 501(c)(3) | Atlanta, GA | $1,495,964 |
| The Als Association - Amyotrophic Lateral Sclerosis Association | 501(c)(3) | Indianapolis, IN | $819,713 |
| ALS Association Wisconsin Chapter | 501(c)(3) | Wauwatosa, WI | $1,806,254 |
| The ALS Association - ALS Association Golden West Chapter | 501(c)(3) | Woodland Hills, CA | $10,245,280 |
| The Als Association - The Als Association Iowa Chapter | 501(c)(3) | West Des Moines, IA | $1,214,799 |
| The Als Association - Arizona Chapter | 501(c)(3) | Phoenix, AZ | $1,372,285 |
Data update history
February 8, 2024
Updated personnel
Identified 10 new personnel
February 6, 2024
Posted financials
Added Form 990 for fiscal year 2023
January 2, 2024
Received grants
Identified 4 new grant, including a grant for $46,713 from PVH Foundation November 25, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsChapter / child organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchFundraising eventsPeer-to-peer fundraisingState / local levelReceives government fundingEndowed supportFundraising races, competitions, and tournamentsTax deductible donations
General information
- Address
- 4 N Blount St Suite 200
- Raleigh, NC 27601
- Metro area
- Raleigh-Cary, NC
- County
- Wake County, NC
- Website URL
- alsnc.org/Â
- Phone
- (919) 755-9001
- Facebook page
- ALSACatfishChapterÂ
- Twitter profile
- @catfishchapterÂ
IRS details
- EIN
- 56-1609591
- Fiscal year end
- January
- Taxreturn type
- Form 990
- Year formed
- 1988
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Child within group exemption
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