EIN 33-1213657

Schizophrenia & Psychosis Acti

IRS 501(c) type
501(c)(3)
Num. employees
4
Year formed
2008
Most recent tax filings
2022-12-01
Description
Schizophrenia & Psychosis Acti promotes hope and recovery for individuals living with schizophrenia-related brain illnesses through advocacy, support, and education.
Also known as...
Schizophrenia and Related Disorders Alliance of America; Sardaa
Total revenues
$1,548,339
2022
Total expenses
$1,044,222
2022
Total assets
$1,247,503
2022
Num. employees
4
2022

Program areas at Schizophrenia & Psychosis Acti

Care, Support & Education:The Organization provides administrative support, materials and oversight for more than 100 Schizophrenia Alliance (SA) self-help/peer support groups, which are run by and for people diagnosed with psychiatric brain disorders that include psychosis. Support groups hold weekly conference calls that serve hundreds of attendees.The Organization also supports Families for Care (FFC), which organizes peer support groups for families of those with schizophrenia or schizophrenia-related brain illness. FFC provides education and support to enable families and their loved ones with schizophrenia to build positive, accepting relationships.
Research InitiativesThe Organization funds research initiatives that: - Increase schizophrenia disease awareness and understanding (recharacterize schizophrenia for the public/key audiences). - Seek new disease biomarkers and other early disease indicators that could improve diagnosis and treatment. - Expose and eliminate barriers to care. - Amplify the impact of anosognosia on treatment and care decisions.
Collaboration and AdvocacyThe Organization promotes timely and appropriate diagnoses, treatments, peer support intervention and education and is a National Institute of Mental Health (NIMH) Outreach and Research AlliancePartner to advocate for research specific to schizophrenia and psychosis. It participates in advocacy coalitions such as the Mental Health Liaison Group to improve community awareness of andtreatments for schizophrenia and other psychosis-spectrum diseases.The Organization also advocates for inclusion of the patient voice in treatment research andregulatory reviews, including sponsoring an Externally-Led Patient-Focused Drug Developmentmeeting in 2022 that amplified patient and caregiver voices to reach key drug development andreview audiences.
Awareness: The Organization builds awareness of and educates about schizophrenia, psychosis and related disorders through extensive website resources, initiatives such as the Anosognosia Coalition, social media outreach and participation in media interviews, webinars and public programs.

Grants made by Schizophrenia & Psychosis Acti

GranteeGrant descriptionAmount
Foundation for the National Institute of Health (FNIH)Research Grant$300,000

Who funds Schizophrenia & Psychosis Acti

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$151,350
American Endowment FoundationDisease/disorder$50,000
Pharmaceutical Research and Manufacturers of of America (PHRMA)General Contribution$25,000

Personnel at Schizophrenia & Psychosis Acti

NameTitleCompensation
Gordon LavigneChief Executive$120,000
Joel FoundedExecutive Director
Linda L. Mimms, M.a.Vice Chair$0
Holly Krasa, M.S.Secretary$0
Kurt A. TalbotTreasurer$0
...and 5 more key personnel

Financials for Schizophrenia & Psychosis Acti

RevenuesFYE 12/2022
Total grants, contributions, etc.$1,578,295
Program services$0
Investment income and dividends$5,061
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$-35,017
Total revenues$1,548,339

Form 990s for Schizophrenia & Psychosis Acti

Fiscal year endingDate received by IRSFormPDF link
2022-122023-10-12990View PDF
2021-122022-10-08990View PDF
2020-122021-06-01990View PDF
2019-122020-09-10990View PDF
2018-122019-10-29990View PDF
...and 6 more Form 990s

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Data update history
December 5, 2023
Posted financials
Added Form 990 for fiscal year 2022
November 27, 2023
Used new vendors
Identified 1 new vendor, including
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
October 25, 2023
Received grants
Identified 2 new grant, including a grant for $270,000 from Pharmaceutical Research and Manufacturers of America (PhRMA)
May 8, 2023
Received grants
Identified 2 new grant, including a grant for $27,000 from Val A Browning Charitable Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingNational levelGala fundraisersTax deductible donations
General information
Address
2308 Mount Vernon Ave Ste 207
Alexandria, VA 22301
Metro area
Washington-Arlington-Alexandria, DC-VA-MD-WV
County
Alexandria city, VA
Website URL
sczaction.org/sardaa/ 
Phone
(240) 423-9432
IRS details
EIN
33-1213657
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2008
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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