Program areas at Pxe International
Pxe International initiates, conducts, and supports research on pseudoxanthoma elasticum (Pxe). We manage a registry and biobank, an epidemiological study, and a number of other biomedical studies. We recruit for clinical trials.
Pxe International supports affected individuals and their families by offering clear, concise, and up-to-date information. We use regional meetings, webinars, our website, youtube, twitter, facebook, biennial conferences, and a google groups chat list to enable a robust, interactive network of support. We also offer contact information for others with Pxe who have agreed to be contacted, a 24-hour access phone line, and a one-way announcements newsletter email list.
Grants made by Pxe International
| Grantee | Grant description | Grant year | Amount |
|---|
| Thomas Jefferson University (TJU) | To Support Research Staff and Facilities for the Establishment of the Pxe International Center of Excellence in Research and Clinical Care. | 2022-09 | $179,286 |
Who funds Pxe International
Grants from foundations and other nonprofits
Personnel at Pxe International
| Name | Title | Compensation | Date of data |
|---|
| Sharon Terry | Chief Executive Officer | $0 | 2023-08-08 |
| Lionel Bercovitch | Medical Director | $0 | 2022-09-30 |
| Sam Harper | Director | $0 | 2021-09-30 |
| Patrick Terry | President | $0 | 2020-09-30 |
Financials for Pxe International
| Revenues | FYE 09/2022 | FYE 09/2021 | % Change |
|---|
| Total grants, contributions, etc. | $593,298 | $396,983 | 49.5% |
| Program services | $125 | $2,470 | -94.9% |
| Investment income and dividends | $801 | $564 | 42% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $594,224 | $400,017 | 48.5% |
Organizations like Pxe International
| Organization | Type | Location | Revenue |
|---|
| Algsa | 501(c)(3) | Collierville, TN | $585,146 |
| Foundation / Diabetes Action Research and Education Foundation | 501(c)(3) | Bethesda, MD | $698,403 |
| Parkinsons Community Los Angeles | 501(c)(3) | Los Angeles, CA | $174,019 |
| Wylder Nation Foundation | 501(c)(3) | Scottsdale, AZ | $546,737 |
| Diabetes Training Camp Foundation | 501(c)(3) | Margate City, NJ | $239,102 |
| Learning Disabilities Association of America | 501(c)(3) | Allison Park, PA | $626,302 |
| Parkinsons Association of Alabama | 501(c)(3) | Birmingham, AL | $457,517 |
| Diabetes Solutions of Oklahoma | 501(c)(3) | Oklahoma City, OK | $253,560 |
| Setebaid Services | 501(c)(3) | Winfield, PA | $820,823 |
| Andrews Firefly Fund | 501(c)(3) | Austin, TX | $553,765 |
Data update history
October 3, 2023
Posted financials
Added Form 990 for fiscal year 2022
August 21, 2023
Posted financials
Added Form 990 for fiscal year 2021
September 9, 2022
Used new vendors
Identified 1 new vendor, including
August 13, 2022
Posted financials
Added Form 990 for fiscal year 2020
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchTax deductible donations
General information
- Address
- 26400 Woodfield Rd 189
- Damascus, MD 20872
- Metro area
- Washington-Arlington-Alexandria, DC-VA-MD-WV
- Website URL
- pxe.org/Â
- Phone
- (202) 362-9599
IRS details
- EIN
- 04-3294138
- Fiscal year end
- September
- Taxreturn type
- Form 990
- Year formed
- 1995
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G80: Specifically Named Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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