EIN 46-3576700

Conquering CHD

IRS 501(c) type
501(c)(3)
Num. employees
9
Year formed
2013
Most recent tax filings
2022-12-01
Description
Conquering CHD conquers the most common birth defect by empowering and creating awareness through community, research, education, and Mental Health Matters.
Also known as...
Pediatric Congenital Heart Association; Conquering Congenital Heart Disease
Total revenues
$645,405
2022
Total expenses
$629,601
2022
Total assets
$116,383
2022
Num. employees
9
2022

Program areas at Conquering CHD

Learning your child has congenital heart disease can be overwhelming. Many children with congenital heart disease need life saving surgery or intervention in the first few weeks or months of their life. This leads to important medical decisions about the care of your child, often in a short amount of time and under stress. However, the ability to get important information about where your child will get their treatment is limited. The organization is working to address this issue on many levels. We empower patients and families directlythrough the use of the guided questions tool. Given to families at the time of diagnosis, this list of questions offers support and confidence when talking to doctors, surgeons and the care team about quality, what to expect when in the hospital, and beyond. Although widely distributed through our care packages, our website and social media, we are completing a multicenter quality improvement project with the country's top heart hospitals, to document that we are achieving our desired goals with this tool. More broadly, we are influencing national policy and culture surrounding public reporting of pediatric and congenital heart disease outcomes. We are achieving this through a series of stakeholder summits, faculty presentations at national conferences, and building relationships with partner organizations. Results include modifications to national ranking systems (u.s. news and world report) and the increase in respect for and utilization of the parent voice within the medical community. We are presently working with an extensive list of stakeholders toward the development of the organization website to include centralized congenital heart outcome data reporting and information to support interpretation for patients, families and the providers who care for them.
The organization continues to grow our direct impact through the implementation of a state chapter infrastructure. While independent entities, our state chapters are provided with administrative and leadership support, branded resources, core care package materials andgroup exemption through the national organization.
In 2022, Conquering CHD developed mental health matters, a program designed to address the invisible impacts of CHD on mental health. Congenital heart disease is not just about the heart. CHD has a real impact on all aspects of life and health. Mental health issues are extremely common and can be one of the most difficult things patients and families manage, remaining underrecognized and undertreated. Mental health matters provides education, resources and support for all patients and their families while advocating for inclusion of mental health in CHD care and research programs. We've compiled more than 30 resources and tools from leading experts in the field to help families learn more about mental health and how they can seek the support they need.

Who funds Conquering CHD

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
American Online Giving FoundationGeneral Support$11,459
Community Foundation of Middle Tennessee (CFMT)On Behalf of "malcolm's Mighty Heart" Campaign. Malcolm Willis.$11,000
Prolacta Bioscience FoundationPrenatal Resources for Spanish Speaking Families$10,000
...and 4 more grants received

Personnel at Conquering CHD

NameTitleCompensation
Carissa OstromExecutive Director
Benjamin KrudwigMarketing Director
Melanie Medina-TothCommunity Director
Amy BaskenPast Former Executive Director$29,615
Mark FriedPast Executive Director$46,077
...and 1 more key personnel

Financials for Conquering CHD

RevenuesFYE 12/2022
Total grants, contributions, etc.$402,501
Program services$247,302
Investment income and dividends$0
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$-10,452
Net income from gaming activities$0
Net income from sales of inventory$3,926
Miscellaneous revenues$2,128
Total revenues$645,405

Form 990s for Conquering CHD

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-15990View PDF
2021-122022-11-15990View PDF
2020-122021-11-15990View PDF
2019-122021-04-02990View PDF
2018-122020-02-18990View PDF
...and 4 more Form 990s
Data update history
January 7, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 6, 2024
Updated personnel
Identified 3 new personnel
December 26, 2023
Used new vendors
Identified 1 new vendor, including
November 28, 2023
Received grants
Identified 2 new grant, including a grant for $11,000 from Community Foundation of Middle Tennessee (CFMT)
July 22, 2023
Received grants
Identified 3 new grant, including a grant for $11,459 from American Online Giving Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disordersMedical disciplines
Characteristics
Political advocacyConducts researchLobbyingPartially liquidatedFundraising eventsPeer-to-peer fundraisingReceives government fundingEndowed supportGala fundraisersFundraising races, competitions, and tournamentsTax deductible donations
General information
Address
Conquering CHD
Middleton, WI 53562
Metro area
Madison, WI
Website URL
conqueringchd.org/ 
Phone
(405) 922-9699
IRS details
EIN
46-3576700
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2013
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G43: Heart and Circulatory System Diseases, Disorders
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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