Program areas at Cystic Fibrosis Foundation - Group Return for the Chapters
Medical programs: the Cystic Fibrosis Foundation has 70 offices in 39 states that help to communicate and distribute information about scientific studies and investigations, Cystic Fibrosis centers and other medical programs.
Community service programs: the Cystic Fibrosis Foundation provides year-round efforts to educate, inform, and empower patients and their families about the latest developments in treatment and care. the programs are designed to help the general public in the detection of the disease by providing a referral service and handling inquiries concerning those with Cystic Fibrosis. Approximately 28,900 patients were served in 2015 including approximately 850 patients who were newly diagnosed.
Public information and education: to broaden its reach and to support its mission, the Cystic Fibrosis Foundation has programs designed to inform Cystic Fibrosis patients, their families and the general public regarding the disease. In 2015, chapter offices distributed educational materials to the cf community, including audio and visual aids, exhibits and correspondence. the chapter office also made available up to 10 publications and 50 videos that were developed specifically for the cf community by the Cystic Fibrosis Foundation.
Who funds Cystic Fibrosis Foundation - Group Return for the Chapters
Grants from foundations and other nonprofits
Personnel at Cystic Fibrosis Foundation - Group Return for the Chapters
| Name | Title | Compensation | Date of data |
|---|
| C Richard Mattingly | Executive Vice President and Chief Operating Officer | $0 | 2019-09-11 |
| Preston W. Campbell, Iii, M.D. | President and Chief Executive Officer | $0 | 2019-09-05 |
| Vera H. Twigg | Executive Vice President and Chief Financial Officer | $0 | 2019-01-08 |
| Robert J. Beall | President and Chief Executive Officer | $0 | 2019-01-08 |
Financials for Cystic Fibrosis Foundation - Group Return for the Chapters
| Revenues | FYE 12/2015 | FYE 12/2014 | % Change |
|---|
| Total grants, contributions, etc. | $112,962,118 | $117,748,007 | -4.1% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $0 | $0 | - |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $1,009,556 | $1,077,347 | -6.3% |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $113,971,674 | $118,825,354 | -4.1% |
Organizations like Cystic Fibrosis Foundation - Group Return for the Chapters
| Organization | Type | Location | Revenue |
|---|
| Cystic Fibrosis Foundation | 501(c)(3) | Bethesda, MD | $417,237,551 |
| Lupus Research Alliance (ALR) | 501(c)(3) | New York, NY | $44,790,052 |
| The Leukemia and Lymphoma Society | 501(c)(3) | Rye Brook, NY | $426,997,204 |
| Children's National Hospital Foundation | 501(c)(3) | Washington, DC | $111,153,608 |
| ALS Association (ALS) | 501(c)(3) | Arlington, VA | $39,792,803 |
| H Lee Moffitt Cancer Center and Research Institute Foundation | 501(c)(3) | Tampa, FL | $40,611,141 |
| National Organization for Rare Disorders (NORD) | 501(c)(3) | Quincy, MA | $59,872,383 |
| Roswell Park Alliance Foundation | 501(c)(3) | Buffalo, NY | $37,424,046 |
| Lustgarten Foundation | 501(c)(3) | Woodbury, NY | $30,446,505 |
| Prostate Cancer Foundation | 501(c)(3) | Santa Monica, CA | $71,921,851 |
Data update history
April 8, 2023
Used new vendors
Identified 1 new vendor, including
June 23, 2021
Received grants
Identified 3 new grant, including a grant for $47,674 from Breathe Easy for CFF March 17, 2020
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsChapter / child organizations
Issues
HealthEducationDiseases and disorders
Characteristics
Conducts researchFundraising eventsPeer-to-peer fundraisingNational levelCommunity engagement / volunteeringGala fundraisersTerminated
General information
- Address
- 6931 Arlington Rd Suite 200
- Bethesda, MD 20814
- Metro area
- Washington-Arlington-Alexandria, DC-VA-MD-WV
- County
- Montgomery County, MD
- Website URL
- cff.org/Â
- Phone
- (301) 951-4422
- Facebook page
- cysticfibrosisfoundationÂ
- Twitter profile
- @cf_foundationÂ
IRS details
- EIN
- 13-6161105
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1957
- Eligible to receive tax-deductible contributions (Pub 78)
- No
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Child within group exemption
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