Program areas at Castleman Disease Collaborative Network
In 2022, community contributions, large grants, and proceeds from an annual fundraiser were received and used to support an educational summit meeting held in september 2022 for patients and loved ones dealing with Castleman's Disease. The purpose of this meeting was to provide supportive resources, up to date information about the Disease, current research and treatment options and ways to support the efforts in these areas. Funds were expended for promotion, patient literature, lodging, travel and other related expenses.to support the ongoing research for Castleman's Disease cause and treatment:in 2022, cash contributions totaling $136,405 were made to the university of Pennsylvania, else care carenity in paris, france and the uplifting athletes organization. These cash contributions were made to fund further research in Castleman's Disease. In 2022 cash expenditures of $289,489 were made to cover consulting fees, physician education, patient education and maintain a database for research teams involved in various areas of Castleman's Disease research. These research studies offer promise to understand the Castleman's Disease mechanisms and provide insights for development of personalized therapies.in 2023, further community contribution solicitations and fundraising events are planned so that more money is available to further fund the education, research, cause and cure of Castleman's Disease.
Grants made by Castleman Disease Collaborative Network
Who funds Castleman Disease Collaborative Network
Grants from foundations and other nonprofits
Personnel at Castleman Disease Collaborative Network
Name | Title | Compensation | Date of data |
---|
Greg Pacheco | Chairman | $0 | 2023-11-14 |
Michael Stief | Treasurer | $0 | 2022-12-31 |
Charlyn Pacheco | Secretary | $0 | 2022-12-31 |
David Fajgenbaum | President / Executive Director | $0 | 2022-12-31 |
Jason Clark Diefenderfer | Vice President | $0 | 2022-12-31 |
Financials for Castleman Disease Collaborative Network
Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
---|
Total grants, contributions, etc. | $933,709 | $808,339 | 15.5% |
Program services | $0 | $0 | - |
Investment income and dividends | $10,311 | $190 | 5326.8% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $0 | $0 | - |
Net income from fundraising events | $-45,348 | $-19,898 | -127.9% |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $0 | $0 | - |
Total revenues | $898,672 | $788,631 | 14% |
Organizations like Castleman Disease Collaborative Network
Organization | Type | Location | Revenue |
---|
Walking Strong | 501(c)(3) | Woodland Hills, CA | $495,937 |
Rare Sisters Batten Foundation | 501(c)(3) | Arvada, CO | $227,631 |
The Bev Hartig Huntingtons Disease Foundation | 501(c)(3) | Fishers, IN | $295,171 |
Alstrom Angels Corporation | 501(c)(3) | Lubbock, TX | $486,860 |
National Down Syndrome Society (NDSS) | 501(c)(3) | Washington, DC | $3,651,955 |
Children's Sickle Cell Foundation | 501(c)(3) | Pittsburgh, PA | $834,910 |
DSNetwork | 501(c)(3) | Tempe, AZ | $282,702 |
United Cerebral Palsy of Mobile (UCP) | 501(c)(3) | Mobile, AL | $3,559,042 |
Down Syndrome Alliance of the Midlands | 501(c)(3) | Omaha, NE | $439,895 |
Louvenia D Barksdale Sickle Cell Anemia Foundation | 501(c)(3) | Spartanburg, SC | $678,100 |
Data update history
January 22, 2024
Updated personnel
Identified 1 new personnel
January 15, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 15, 2024
Updated personnel
Identified 1 new personnel
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
August 17, 2023
Posted financials
Added Form 990 for fiscal year 2020
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsGala fundraisersTax deductible donationsNo full-time employees
General information
- Address
- PO Box 3614
- Paso Robles, CA 93447
- Metro area
- San Luis Obispo-Paso Robles, CA
- County
- San Luis Obispo County, CA
- Phone
- (805) 238-4769
IRS details
- EIN
- 37-1510354
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2005
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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