EIN 37-1510354

Castleman Disease Collaborative Network

IRS 501(c) type
501(c)(3)
Num. employees
0
Year formed
2005
Most recent tax filings
2022-12-01
Description
Castleman Disease Collaborative Network develops awareness of Castleman's Disease and raises funds for education and laboratory research to determine cause, treatment, and ultimate cure. In 2022, the organization received community contributions, large grants, and proceeds from an annual fundraiser to support an educational summit meeting held in September 2022 for patients and loved ones dealing with Castleman's Disease. The purpose of this summit was to provide valuable information about the disease.
Also known as...
Castlemans Awareness and Research Effort
Total revenues
$898,672
2022
Total expenses
$442,509
2022
Total assets
$2,521,021
2022
Num. employees
0
2022

Program areas at Castleman Disease Collaborative Network

In 2022, community contributions, large grants, and proceeds from an annual fundraiser were received and used to support an educational summit meeting held in september 2022 for patients and loved ones dealing with Castleman's Disease. The purpose of this meeting was to provide supportive resources, up to date information about the Disease, current research and treatment options and ways to support the efforts in these areas. Funds were expended for promotion, patient literature, lodging, travel and other related expenses.to support the ongoing research for Castleman's Disease cause and treatment:in 2022, cash contributions totaling $136,405 were made to the university of Pennsylvania, else care carenity in paris, france and the uplifting athletes organization. These cash contributions were made to fund further research in Castleman's Disease. In 2022 cash expenditures of $289,489 were made to cover consulting fees, physician education, patient education and maintain a database for research teams involved in various areas of Castleman's Disease research. These research studies offer promise to understand the Castleman's Disease mechanisms and provide insights for development of personalized therapies.in 2023, further community contribution solicitations and fundraising events are planned so that more money is available to further fund the education, research, cause and cure of Castleman's Disease.

Grants made by Castleman Disease Collaborative Network

GranteeGrant descriptionAmount
University of Pennsylvania (Penn)Medical Research$80,400
Uplifting AthletesMedical Research$10,000

Who funds Castleman Disease Collaborative Network

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$38,600
Schwab Charitable FundHealth$28,000
Charities Aid Foundation of AmericaCharitable Donation$11,000
...and 1 more grant received

Personnel at Castleman Disease Collaborative Network

NameTitleCompensation
Greg PachecoChairman$0
Michael StiefTreasurer$0
Charlyn PachecoSecretary$0
David FajgenbaumPresident / Executive Director$0
Jason Clark DiefenderferVice President$0

Financials for Castleman Disease Collaborative Network

RevenuesFYE 12/2022
Total grants, contributions, etc.$933,709
Program services$0
Investment income and dividends$10,311
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$-45,348
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$898,672

Form 990s for Castleman Disease Collaborative Network

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-14990View PDF
2021-122022-11-07990View PDF
2020-122021-11-12990View PDF
2019-122021-03-31990View PDF
2018-122020-02-11990View PDF
...and 8 more Form 990s
Data update history
January 22, 2024
Updated personnel
Identified 1 new personnel
January 15, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 15, 2024
Updated personnel
Identified 1 new personnel
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
August 17, 2023
Posted financials
Added Form 990 for fiscal year 2020
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsGala fundraisersTax deductible donationsNo full-time employees
General information
Address
PO Box 3614
Paso Robles, CA 93447
Metro area
San Luis Obispo-Paso Robles, CA
County
San Luis Obispo County, CA
Phone
(805) 238-4769
IRS details
EIN
37-1510354
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2005
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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