Program areas at National Data Bank for Rheumatic Dis
Janssen ra: characterize baseline demographic differences between individuals with ra vs individuals with iim and compare changes in patient report outcomes (pros) over time between individuals with ra and iim.
Bristol myers squibb: to examine whether increases in gc dosage in response to increase in disease activity result in worse outcomes compared to changes/additions of other immunosuppressive medications in sle patients and health care utilization associated with levels of gc use.
Ufcw: to understand how ufcw members in The us have been affected by The covid-19 pandemic, including covid-related topics such as testing, illness outbreaks, and vaccination.
All other program service initiatives, including registry that uses The internet to create a community of Arthritis patients, who willingly provide patient information to be used for discovery Research and The development of personalized medicine for people with Arthritis, to gather Data to be used for analyses of heart disease in rheumatoid Arthritis and using The ndb ra patient date from 1998 through june 2011 to determine The most common treatment pathways over The past decade and characterize The patients on these pathways.
Who funds National Data Bank for Rheumatic Dis
Grants from foundations and other nonprofits
Personnel at National Data Bank for Rheumatic Dis
Name | Title | Compensation | Date of data |
---|
Rebecca Schumacher | Executive Director | $88,771 | 2023-11-14 |
Frederick Wolfe | President | $0 | 2022-12-31 |
Financials for National Data Bank for Rheumatic Dis
Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
---|
Total grants, contributions, etc. | $666,094 | $1,240,090 | -46.3% |
Program services | $372,211 | $524,093 | -29% |
Investment income and dividends | $4,150 | $38 | 10821.1% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $0 | $-11,987 | -100% |
Net income from fundraising events | $0 | $0 | - |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $5,700 | $5,777 | -1.3% |
Total revenues | $1,048,155 | $1,758,011 | -40.4% |
Organizations like National Data Bank for Rheumatic Dis
Organization | Type | Location | Revenue |
---|
Global Virus Network | 501(c)(3) | Baltimore, MD | $790,234 |
Learning Disabilities Association of America | 501(c)(3) | Allison Park, PA | $672,684 |
Wisconsin Institute for Learning Disabilities Dyslexia | 501(c)(3) | Dodgeville, WI | $518,567 |
Dyslexia Center of Utah | 501(c)(3) | American Fork, UT | $990,993 |
Asthma and Allergy Foundation of America St Louis Chapter | 501(c)(3) | Saint Louis, MO | $607,677 |
Dyslexia Association of Greater Baton Rouge the Brighton School | 501(c)(3) | Baton Rouge, LA | $3,104,368 |
Launch / Learning Disabilities Association of Central New York Inc | 501(c)(3) | Syracuse, NY | $1,581,340 |
Sparks of Life | 501(c)(3) | Lakewood, NJ | $430,208 |
Gene Spotlight | 501(c)(3) | Miami Beach, FL | $475,304 |
Parkinson's Resources Of Oregon | 501(c)(3) | Beaverton, OR | $1,098,899 |
Data update history
December 25, 2023
Posted financials
Added Form 990 for fiscal year 2022
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
June 30, 2023
Posted financials
Added Form 990 for fiscal year 2020
August 22, 2021
Posted financials
Added Form 990 for fiscal year 2019
April 27, 2021
Posted financials
Added Form 990 for fiscal year 2018
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disordersPublic policy
Characteristics
Conducts researchState / local levelTax deductible donations
General information
- Address
- 727 N Waco 200
- Wichita, KS 67203
- Metro area
- Wichita, KS
- Website URL
- forwarddatabank.org/Â
- Phone
- (316) 263-2125
IRS details
- EIN
- 48-1223461
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1999
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G80: Specifically Named Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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