EIN 35-2029321

The Als Association - Amyotrophic Lateral Sclerosis Association

IRS 501(c) type
501(c)(3)
Num. employees
Unknown
State
Year formed
1997
Most recent tax filings
2024-01-01
Description
Most comprehensive provider of care, support services, and educational resources for ALS patients and families in Indiana. Leading advocate and voice for ALS community funds and promotes ALS research.
Related structure
The Als Association - Amyotrophic Lateral Sclerosis Association is child organization, under the parent exemption from ALS Association (ALS).
Also known as...
The Indiana Chapter of the Als Association; Amyotrophic Lateral Sclerosis Association; The Als Association Indiana Chapter
Total revenues
n/a
Total expenses
n/a
Total assets
n/a
Num. employees
n/a

Program areas at The Als Association - Amyotrophic Lateral Sclerosis Association

Als clinics and certified center support: to support The highest quality healthcare for people with Als, The organization partners with and financially supports community healthcare providers in offering Als multidisciplinary clinics. These clinics are evidence-based models that promote coordinated care for people with Als. These clinics are held at one of The Als Association certified centers of excellence at iu neuroscience center, recognized Als center at richard l. roudebush va medical center, as well as The newly established Als clinic at parkview neuroscience center. The Chapter has assisted with licensed social work staffing, telehealth, nutrition chart, supplies and finical commitment. During The year ended january 31, 2022, The Chapter supported over 1000 clinic appointments for families with Als and over 200 telehealth appointments.
Awareness events: events sponsored by The Chapter include The walk to defeat Als, bob kravitz golf outing, cruisin' for a cure car show, Als research update, may Als awareness month, and mission connected social media. November national caregivers' month activities served as opportunities to bring hope and community to people with Als and their families. By coming together at awareness events, people with Als and their families, as well as those who have lost a loved one to Als, find strength and support with one another. More than 5,000 people participate in these efforts to raise The profile of The Chapter and engage community awareness of The services and resources available from The Indiana Chapter.
Education & support programs: strategically based in and near patient's home communities, care service coordinators work directly with people with Als and their families to help them navigate management of Als as well as access community resources. In fiscal year end january 31, 2022 care service coordinators served over 500 patients providing 3,000 hours of social work. Coordinators are often The crucial support people need with guidance on finance, employment issues, insurance questions, social security disability, medicare, medicaid and long term care planning. Coordinators transitioned to virtual monthly support groups across The region with 250 attendees. Care services staff also provided professional education for community partners such as hospice, home health and home care agencies to increase their knowledge of Als. The Chapter has a very extensive lending program. We recognize The importance of proper equipment and assistive devices in maintaining safety, independence and in maximizing patient's functionality and minimizing financial cost associated with Als. The equipment loan closet program provides access to The needed medical equipment either as a bridge while awaiting insurance approval or to those patients with no insurance coverage for The equipment being requested. The success of this program is due to The generosity of our supporters and vendors who donate equipment and to The funds raised through our walk to defeat Als programs which allow us to purchase new items, repair/replace existing items, and ensures proper maintenance to The various dme items in The loan closet. During The year ended january 31, 2022, The Chapter loaned 170 pieces of equipment to 120 patients. Patient financial grant programs supported patients for bathroom items, and medical copays. The Chapter also funded medical copayments for power wheelchairs.
Outreach & advocacy: as one of 39 chapters affiliated with The national Als Association, The Indiana Chapter provides ongoing financial support for The national Als Association to support federal public policy initiatives to improve The lives of families living with Als, outreach efforts to raise public awareness about Als, as well as global research working towards treatments and a cure for Als. Publicpolicy accomplishments during The year ended january 31, 2022 included virtual delegation of people with Als to Washington d.c. to advocate for social security and disability waiver, The national Als registry, The Als research program at The department of defense, and promoting federal support for Als research.

Who funds The Als Association - Amyotrophic Lateral Sclerosis Association

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Schwab Charitable FundHealth$19,600
The Stratford FoundationGeneral Support$15,000
Network for GoodUnrestricted$14,857
...and 6 more grants received

Personnel at The Als Association - Amyotrophic Lateral Sclerosis Association

NameTitleCompensation
Greg MitchellPresident
Tina KaetzelExecutive Director$92,100
Kelly SmithDirector of Development
Connie SimpsonCare Services Director
Avery SmithDevelopment Manager
...and 9 more key personnel

Financials for The Als Association - Amyotrophic Lateral Sclerosis Association

RevenuesFYE 01/2022
Total grants, contributions, etc.$549,808
Program services$0
Investment income and dividends$33,611
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$52,470
Net income from fundraising events$183,251
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$573
Total revenues$819,713

Form 990s for The Als Association - Amyotrophic Lateral Sclerosis Association

Fiscal year endingDate received by IRSFormPDF link
2024n/a990-N (e-Postcard)
2022-012023-03-21990View PDF
2021-012021-07-15990View PDF
2020-012020-09-10990View PDF
2019-012019-10-12990View PDF
...and 9 more Form 990s
Data update history
November 11, 2023
Updated personnel
Identified 1 new personnel
November 7, 2023
Posted financials
Added Form 990N for fiscal year 2023
July 8, 2023
Updated personnel
Identified 1 new personnel
June 26, 2023
Received grants
Identified 4 new grant, including a grant for $15,000 from The Stratford Foundation
June 18, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsChapter / child organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingPeer-to-peer fundraisingState / local levelFundraising races, competitions, and tournamentsTax deductible donationse-Postcard filer
General information
Address
7202 E 87th St Suite 102
Indianapolis, IN 46256
Metro area
Indianapolis-Carmel-Anderson, IN
County
Marion County, IN
Website URL
webin.alsa.org/site/pageserver?pagename=in_homepage 
Phone
(317) 915-9888
Facebook page
ALSAIndiana 
Twitter profile
@alsaindiana 
IRS details
EIN
35-2029321
Fiscal year end
January
Taxreturn type
Form 990-N / Postcard
Year formed
1997
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Child within group exemption
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