Program areas at NBTS
Research: National Brain Tumor Society (nbts) throughout its historyhas funded some of the most important discoveries that have led to theadvancement of Brain Tumor research. Today, nbts is funding innovativeteam-science initiatives including projects in our defeat Brain tumors program portfolio designed to translate discoveries into transformative medical breakthroughs for adults and children with Brain tumors. Our "defeat" program brings together world-renown institutions to accelerate the pace of research by requiring data sharing and partnerships with industry. Nbts Brain Tumor investment fund catalyzes the Brain Tumor biotech and biopharma space bridging promising academic research to move into industrial development. The nbts' research roundtable program convenes stakeholders to take on barriers and opportunities to Brain Tumor treatment development.
Information, awareness and remembrance: nbts is committed to helpingpatients and care partners obtain essential information from the timeof diagnosis including information about treatment options and clinical trials. Through its Brain Tumor experience website, personalized support and navigation for patients and group support programs, nbts provides, to many across the u.s. and globally, timely information and is available to help connect to treatments centers and support services. It also helps patients find clinical trials through the nbts clinical trials finder. Nbts also connects patients to each other through regional events and helps families honor their loved ones. The events provide access to treatment providers for families and friends, and help make the broader public more aware of our cause through communications programs.
Public policy & advocacy: nbts is well-recognized as a leader in publicpolicy related to Brain tumors and cancer generally. Each year weadvance a specific policy agenda with congress and the executive branch to improve patients lives and the likelihood of the development of new treatments. Nbts advocacy efforts have led to greater federalinvestment in Brain Tumor research and improved policies that speed the research process. Through advocacy patients and their families, and researchers also have a voice and can come to Washington dc for our signature head to the hill held annually.
Who funds National Brain Tumor Society (NBTS)
Grants from foundations and other nonprofits
Personnel at NBTS
Name | Title | Compensation | Date of data |
---|
David Arons | Chief Executive Officer | $239,793 | 2023-08-25 |
Dorothy Whalen | Chief Financial Officer | $152,540 | 2022-12-31 |
Lauren Hall | Cso and Chief Financial Officer | $246,411 | 2022-12-31 |
Danielle Leach | Chief of Comm and Government Relations / Chief of Community and Government Relations | $151,951 | 2022-10-06 |
Katie Germain | Chief Marketing and Comm Officer | $146,080 | 2022-12-31 |
...and 18 more key personnel |
Financials for NBTS
Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
---|
Total grants, contributions, etc. | $13,242,979 | $11,743,049 | 12.8% |
Program services | $0 | $0 | - |
Investment income and dividends | $18,168 | $46,779 | -61.2% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $-36,562 | $-13,346 | -174% |
Net income from fundraising events | $0 | $0 | - |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $0 | $0 | - |
Total revenues | $13,224,585 | $11,776,482 | 12.3% |
Organizations like NBTS
Organization | Type | Location | Revenue |
---|
Brain Injury Association of America (BIAA) | 501(c)(3) | Fairfax, VA | $3,478,724 |
Arthritis Foundation Mid Atlantic Region | 501(c)(3) | Atlanta, GA | $4,890,080 |
Immune Deficiency Foundation (IDF) | 501(c)(3) | Hanover, MD | $8,852,448 |
Minnesota Brain Injury Alliance | 501(c)(3) | Roseville, MN | $5,152,179 |
Brain Injury Alliance of New Jersey (BIANJ) | 501(c)(3) | North Brunswick, NJ | $3,992,899 |
Hydrocephalus Association (HA) | 501(c)(3) | Bethesda, MD | $4,148,543 |
National Society to Prevent Blindness / Prevent Blindness America | 501(c)(3) | Chicago, IL | $5,068,074 |
Pediatric Brain Tumor Foundation of the United States | 501(c)(3) | Atlanta, GA | $5,677,466 |
Pulmonary Fibrosis Foundation (PFF) | 501(c)(3) | Chicago, IL | $11,007,903 |
American Liver Foundation (ALF) | 501(c)(3) | West Orange, NJ | $5,792,842 |
Data update history
November 12, 2023
Posted financials
Added Form 990 for fiscal year 2022
November 8, 2023
Updated personnel
Identified 3 new personnel
October 25, 2023
Used new vendors
Identified 2 new vendors, including , and
October 25, 2023
Received grants
Identified 16 new grant, including a grant for $200,000 from The Stringer Foundation Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingPeer-to-peer fundraisingReceives government fundingEndowed supportCommunity engagement / volunteeringFundraising races, competitions, and tournamentsTax deductible donations
General information
- Address
- 55 Chapel St 006
- Newton, MA 02458
- Metro area
- Boston-Cambridge-Newton, MA-NH
- Website URL
- braintumor.org/Â
- Phone
- (617) 924-9997
- Facebook page
- braintumorsÂ
- Twitter profile
- @nbtstweetsÂ
IRS details
- EIN
- 04-3068130
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1989
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G40: Diseases of Specific Organs
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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