EIN 04-3068130

National Brain Tumor Society (NBTS)

IRS 501(c) type
501(c)(3)
Num. employees
51
City
Year formed
1989
Most recent tax filings
2022-12-01
Description
National Brain Tumor Society is fiercely committed to finding better treatments, and ultimately a cure, for people living with a brain tumor today and anyone who will be diagnosed tomorrow. This means effecting change in the system at all levels.
Total revenues
$13,224,585
2022
Total expenses
$10,400,422
2022
Total assets
$15,423,168
2022
Num. employees
51
2022

Program areas at NBTS

Research: National Brain Tumor Society (nbts) throughout its historyhas funded some of the most important discoveries that have led to theadvancement of Brain Tumor research. Today, nbts is funding innovativeteam-science initiatives including projects in our defeat Brain tumors program portfolio designed to translate discoveries into transformative medical breakthroughs for adults and children with Brain tumors. Our "defeat" program brings together world-renown institutions to accelerate the pace of research by requiring data sharing and partnerships with industry. Nbts Brain Tumor investment fund catalyzes the Brain Tumor biotech and biopharma space bridging promising academic research to move into industrial development. The nbts' research roundtable program convenes stakeholders to take on barriers and opportunities to Brain Tumor treatment development.
Information, awareness and remembrance: nbts is committed to helpingpatients and care partners obtain essential information from the timeof diagnosis including information about treatment options and clinical trials. Through its Brain Tumor experience website, personalized support and navigation for patients and group support programs, nbts provides, to many across the u.s. and globally, timely information and is available to help connect to treatments centers and support services. It also helps patients find clinical trials through the nbts clinical trials finder. Nbts also connects patients to each other through regional events and helps families honor their loved ones. The events provide access to treatment providers for families and friends, and help make the broader public more aware of our cause through communications programs.
Public policy & advocacy: nbts is well-recognized as a leader in publicpolicy related to Brain tumors and cancer generally. Each year weadvance a specific policy agenda with congress and the executive branch to improve patients lives and the likelihood of the development of new treatments. Nbts advocacy efforts have led to greater federalinvestment in Brain Tumor research and improved policies that speed the research process. Through advocacy patients and their families, and researchers also have a voice and can come to Washington dc for our signature head to the hill held annually.

Grants made by NBTS

GranteeGrant descriptionAmount
Yale UniversityResearch$1,185,000
Partners Healthcare System / Brigham & Womens Hospital IncResearch$250,000
Regents University of California Los AngelesResearch$180,000
...and 6 more grants made

Who funds National Brain Tumor Society (NBTS)

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Accelerate Brain Cancer CureTo Promote Brain Cancer Research.$1,861,035
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$1,234,080
Global Coalition for Adaptive ResearchGeneral Assistance$250,000
...and 156 more grants received totalling $5,397,542

Personnel at NBTS

NameTitleCompensation
David AronsChief Executive Officer$239,793
Dorothy WhalenChief Financial Officer$152,540
Lauren HallCso and Chief Financial Officer$246,411
Danielle LeachChief of Comm and Government Relations / Chief of Community and Government Relations$151,951
Katie GermainChief Marketing and Comm Officer$146,080
...and 18 more key personnel

Financials for NBTS

RevenuesFYE 12/2022
Total grants, contributions, etc.$13,242,979
Program services$0
Investment income and dividends$18,168
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$-36,562
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$13,224,585

Form 990s for NBTS

Fiscal year endingDate received by IRSFormPDF link
2022-122023-08-25990View PDF
2020-122021-05-21990View PDF
2019-122020-10-16990View PDF
2018-122019-08-16990View PDF
2017-122018-11-15990View PDF
...and 10 more Form 990s
Data update history
February 4, 2024
Received grants
Identified 34 new grant, including a grant for $175,000 from Goldhirsh Yellin Foundation
November 12, 2023
Posted financials
Added Form 990 for fiscal year 2022
November 8, 2023
Updated personnel
Identified 3 new personnel
October 25, 2023
Used new vendors
Identified 2 new vendors, including , and
October 25, 2023
Received grants
Identified 16 new grant, including a grant for $200,000 from The Stringer Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingPeer-to-peer fundraisingReceives government fundingEndowed supportCommunity engagement / volunteeringFundraising races, competitions, and tournamentsTax deductible donations
General information
Address
55 Chapel St 006
Newton, MA 02458
Metro area
Boston-Cambridge-Newton, MA-NH
Website URL
braintumor.org/ 
Phone
(617) 924-9997
Facebook page
braintumors 
Twitter profile
@nbtstweets 
IRS details
EIN
04-3068130
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1989
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G40: Diseases of Specific Organs
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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