Program areas at Cure HHT
Research - the research program is supportive in funding research for the understanding of the mechanism of HHT disease, novel therapeutic approaches to treatment and management, and translational research leading to multi-center trials. The HHT International scientific conference is held every other year.
Education - the goal of education program is to promote education, diagnosis, and best practice treatments related to HHT through its support of conferences, meetings, and comprehensive HHT clinical centers of excellence.
Public information - the goal of public information program is to increase public, private and governmental awareness of the HHT disorder through the press and media.
Advocacy - the goal of the advocacy program is to advocate for and support those with HHT bypursuing recognition and funding for awareness, access to expert care and clinical trials.
Who funds Cure HHT
Grants from foundations and other nonprofits
Personnel at Cure HHT
| Name | Title | Compensation | Date of data |
|---|
| Nicole Schaefer | Chief Operating Officer | $89,583 | 2022-06-30 |
| Christopher C.W. Hughes, PHD | Chief Medical Officer and Chair, Center of Excellence Executive Committee | | 2021-09-21 |
| Marianne Clancy | Executive Director | $153,068 | 2023-03-31 |
| Phyllis Loveland | Operations and Communications Manager | | 2021-09-21 |
| Savanah Schott | Secretary | $0 | 2022-06-30 |
| ...and 6 more key personnel |
Financials for Cure HHT
| Revenues | FYE 06/2022 | FYE 06/2021 | % Change |
|---|
| Total grants, contributions, etc. | $2,356,154 | $2,144,594 | 9.9% |
| Program services | $23,936 | $3,000 | 697.9% |
| Investment income and dividends | $13,736 | $7,772 | 76.7% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $1,780 | $0 | 999% |
| Net income from fundraising events | $-22,807 | $47,461 | -148.1% |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $4,286 | $1,497 | 186.3% |
| Total revenues | $2,377,085 | $2,204,324 | 7.8% |
Organizations like Cure HHT
| Organization | Type | Location | Revenue |
|---|
| National MPS Society | 501(c)(3) | Durham, NC | $1,837,186 |
| TSC Alliance | 501(c)(3) | Silver Spring, MD | $10,016,383 |
| Lupus Foundation of America Philadelphia Tri-State Chapter | 501(c)(3) | King of Prussia, PA | $715,394 |
| Alpha-1 Foundation Alpha One Foundation | 501(c)(3) | Miami, FL | $10,453,299 |
| National Center for Learning Disabilities | 501(c)(3) | Washington, DC | $3,388,247 |
| National Psoriasis Foundation | 501(c)(3) | Alexandria, VA | $11,591,439 |
| United Mitochondrial Disease Foundation (UMDF) | 501(c)(3) | Pittsburgh, PA | $3,572,403 |
| Arthritis Foundation New England Region | 501(c)(3) | Newton, MA | $4,617,772 |
| Beyond Celiac | 501(c)(3) | Ambler, PA | $3,093,277 |
| Arthritis Foundation Upper Midwest Region | 501(c)(3) | St Paul, MN | $2,891,319 |
Data update history
June 15, 2023
Posted financials
Added Form 990 for fiscal year 2022
June 13, 2023
Updated personnel
Identified 2 new personnel
May 27, 2023
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthEducationDiseases and disordersCommunity improvementBusiness and industry
Characteristics
Political advocacyConducts researchLobbyingFundraising eventsPeer-to-peer fundraisingNational levelReceives government fundingEndowed supportFundraising races, competitions, and tournamentsTax deductible donations
General information
- Address
- PO Box 329
- Monkton, MD 21111
- Metro area
- Baltimore-Columbia-Towson, MD
- County
- Baltimore County, MD
- Website URL
- curehht.org/Â
- Phone
- (410) 357-9932
IRS details
- EIN
- 22-3115041
- Fiscal year end
- June
- Taxreturn type
- Form 990
- Year formed
- 1990
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G80: Specifically Named Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
Free account sign-up
Want updates when Cure HHT has new information, or want to find more organizations like Cure HHT?
Create free Cause IQ account