EIN 20-2329938

Autism Speaks

IRS 501(c) type
501(c)(3)
Num. employees
194
Year formed
2005
Most recent tax filings
2023-03-01
NTEE code, primary
Description
Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families through advocacy and support.
Related structure
Autism Speaks is a parent organization to a group of 2 other organizations.
Also known as...
Autism Speaks Incorporated
Total revenues
$36,262,685
2023
Total expenses
$42,911,083
2023
Total assets
$41,380,468
2023
Num. employees
194
2023

Program areas at Autism Speaks

We increase knowledge through research to deepen our understanding of Autism and lead to advancements in Autism diagnosis, early intervetnion, and personalized healthcare. Connected families in 50 states and 37 countries with resources and access to Autism experts. Launched two research studies to improve precision Autism care and early identification. Hosted a thought leadership summit on Autism and aging to develop programs and policies for better systems of care for older autistic people and their caregivers. Released the very first Autism by the numbers report to support individual, family and community decision-making.
We are steadfast in our commitment to improve lifelong outcomes and increase understanding and acceptance of people with Autism. Launched e-caregivers skills training enabling underserved families to build their autistic child's communication and behavior skills. Successfully advocated for state licencing laws to provide people with Autism greater access to medically necessary interventions. Engaged 2.8 million people on social media platforms where we provided resources and a supportive environment for autistic people to share their stories. Educated over 2100 people on federal and state policy changes and accessing resources.
Aided more than 1.6 million people. Autism response team provided individualized support to over 87,000 people. Provided 17 new translated resources, downloaded 25,000 times by spanish-speaking community. Led regulatory charge for access to all evidenced based Autism therapies for medicaid enrolled children. Our workplace inclusion now (win) initiative engaged over 5000 autistic job seekers and employers at events. Over 6000 jobseekers accessed the new navigating differences in the workplace course. Funded $1.6 million in grants to support next gen Autism science leaders working to develop models of care.

Grants made by Autism Speaks

GranteeGrant descriptionAmount
Phoenix Children's Hospital Foundation (PCHF)Science Grant$358,082
University of PittsburghScience Grant$343,569
Regents Univ of CaliforniaScience Grant$300,478
...and 29 more grants made totalling $4,429,303

Who funds Autism Speaks

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
The Solomon R and Rebecca D Baker FoundationFunding for Recreation and Research$2,565,850
Vanguard Charitable Endowment ProgramFor Recipient's Exempt Purpose$1,051,500
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$413,666
...and 163 more grants received totalling $7,336,805

Personnel at Autism Speaks

NameTitleCompensation
Keith WargoPresident and Chief Executive Officer$571,476
Joseph T VanyoChief Operating Officer$321,932
Kelli SeelyChief Marketing Officer$207,766
Lisa GoringChief Strategic Initiatives and Innovation Officer$278,519
Andy ShihChief Science Officer / Senior Vice President Public Health and Inclusion / Senior Vice President , Public Health and Inclusion / Senior Vice President Public Health Research / St Public Health Research / Vice President Scientific Affairs$309,270
...and 18 more key personnel

Financials for Autism Speaks

RevenuesFYE 03/2023
Total grants, contributions, etc.$35,557,820
Program services$0
Investment income and dividends$636,623
Tax-exempt bond proceeds$0
Royalty revenue$44,194
Net rental income$0
Net gain from sale of non-inventory assets$-154
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$24,202
Total revenues$36,262,685

Form 990s for Autism Speaks

Fiscal year endingDate received by IRSFormPDF link
2023-032024-01-24990View PDF
2022-032023-01-05990View PDF
2021-032021-12-16990View PDF
2020-032021-04-15990View PDF
2020-032021-04-12990View PDF
...and 11 more Form 990s
Data update history
August 25, 2024
Received grants
Identified 14 new grant, including a grant for $388,602 from American Online Giving Foundation
June 14, 2024
Used new vendors
Identified 2 new vendors, including , and
June 6, 2024
Posted financials
Added Form 990 for fiscal year 2023
May 23, 2024
Updated personnel
Identified 4 new personnel
May 20, 2024
Used new vendors
Identified 3 new vendors, including , , and
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disordersAutism
Characteristics
Political advocacyConducts researchLobbyingFundraising eventsPeer-to-peer fundraisingOperates internationallyNational levelReceives government fundingEndowed supportCommunity engagement / volunteeringGala fundraisersTax deductible donationsAccepts online donations
General information
Address
50 F St NW 360
Washington, DC 20001
Metro area
Washington-Arlington-Alexandria, DC-VA-MD-WV
County
District of Columbia, DC
Website URL
autismspeaks.org/ 
Phone
(888) 288-4762
Facebook page
autismspeaks 
Twitter profile
@autismspeaks 
IRS details
EIN
20-2329938
Fiscal year end
March
Taxreturn type
Form 990
Year formed
2005
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G84: Autism
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Parent of group exemption
Central organization
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